NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)

- - getting a SCS (https://www.neurotalk.org/scs-and-pain-pumps/156769-getting-scs.html)

ECHO, ECHo, ECho, Echo, echo............

Mark writes as he shouts in a mountain canyon...... YAY for PW, Emily, Patricia... for the potential to manage pain in a better way!

Yup,
Mark56:grouphug:

Quote:

Originally Posted by pwdavis1 (Post 820172)

i have pain at the 6-10 level 5-6 days a week in my lower left quadrant. Have had this for 10 years now and have been off work for 5 months now trying to move forward. just rec'd approval for temp. medtronic implant on Nov 1. Any help appreciated. I wish you all the best and will try to post info on my results as they come along. Thank you

:welcome_sign:

Hi PW
Just saw your note and hope that your trial goes well. As others have said try and walk and do some of your daily activities. That way you can see what works for you.
I had my trial in May and my implant of Bos Sci in Aug. My pain is abdominal
, very different from many here but I have found great relief and get about 60% relief and have cut my meds in half.

Send good wishes and prayers your way.

Sandy

Quote:

Originally Posted by emily24 (Post 803148)

Hi everyone!! i've just dicovered this forum its fantastic!!!
I'm really looking for other ppls experiences with having a SCS.
Here's my story: I'm 24 years old and have had chronic pain in my right flank just below my ribs for roughly 3 years now. The pain is caused by my kidney which is scarred and has a reduced function due to renal reflux from when i was a child. I only found out i had a problem with my kidney 3 years ago when i was hospitalised with recurrent kidney infections and they did a scan which showed my right kidney to be half the size of a normal kidney (sorry its a long story) Anyway after numerous tests and poking and prodding my renal specialist said that he could do no more and he wasn't happy with removeing it due to the fact that it still has some fucntion. I was referred to a pain specialist who proceeded, over almost a year, to do nerve block after nerve block (8 in total) none of which gave me any relief. I've been referred onto a new pain specialist now who is sending me for a SCS. That is pretty much all he was able to tell me! 'yes emily i'm sending you for this, no its nothing to worry about' (his exact words!! the consult lasted a whole of 5 minutes during which time he poked me in the back with apaper clip saying 'yes you have an area of hypersensitivity there alright!!')
My SCS trial is due to go ahead on Nov the 18th. I have another consult with my specialist on Sept 28th which i made myself as i feel so unprepared for this and wish to have a proper talk about it with him but i want to be prepared which is why i'm looking for your opinions and expereinces on the SCS.
ps sorry about rambling on and on!

Hi Emily, My name is Melonie, welcome to the site i am quite new to the site too, i like you suffer from Kidney problems also bladder, lower back and abdominal and pelvic pain, i had my trial 29th June this year and am still waiting for the permenant SCS to be fitted, my trial went really well with approx 60% coverage mainly in my trunk area, to obtain coverage in my lower back the stimulator had to be turned up on a high setting which then resulted in alot of tingling in my legs(i do not have pain in my legs) My surgeon and rep are sure with the permenant one they will be able to get better coverage in my lower back with more settings. Ive had my pre-op which took place on the 2nd Nov so im now waiting for a date for surgery! I hope the trial works for you and i would love to hear how it goes for you, Good Luck and if you want to ask me anything which you think might help you feel free to ask away :)

Hi Melonie, Emily, PWDavis

Hi Melonie, Emily, PWDavis,

I'm just wondering how you got on with your trials or other procedures?
It's been a while since I read this thread and I'm lying in bed in hospital after my surgery last week to remove parts of my Medtronic SCS. I'm currently waiting on an appointment for a neurosurgeon to fix two disc prolapses, at the moment I'm in that much pain that I can't do anything.

If yee happen to read this please do let us know, we're such a family on this site that we like to support each other through their tough times.

All the best

Sinéad :hug::)

:hug:Prayin for ya my friend,
Gently,:hug:
Mark56:hug:

Quote:

Originally Posted by melly27 (Post 822256)

Hi Melonie
I to suffer from abdominal pain and had my implant Aug. 5. I have gotten about 60% relief and and reduced my meds significantly. Like you when turning it up the tingling went down my legs to the knees. The Boston Sci rep was able to walk me through the adjustments with the remote over the phone in just a few minutes.
Hope your wait for surgery is short and the stim brings you the relief you are waiting for.

Good Luck,
Sandy:smile::Good-Luck:

Quote:

Originally Posted by Sophie_ (Post 822483)

:Wave-Hello::Wave-Hello::Wave-Hello::Wave-Hello::Wave-Hello::Wave-Hello::Wave-Hello:

Hi Sinead

So sorry to hear of all your pain today. Sending prayers and good thoughts your way.

Sandy. :smileypray:

Hi Sandy-Kay,

Thanks for your kind words, yeah this pain is really rotten and particularly since my Stim came out.

Thanks again

Sinéad xxx :)

Quote:

Originally Posted by Sandy Kay (Post 822544)

Hi Sandy thankyou for your reply, so pleased your SCS is working for you and its so good that you've been able to cut your meds, that is something i would love to do as i suffer really badly for all the nasty side-effect sickness and weight loss is the worse for me! Its been just over 18 weeks since my trial and im going a lil demented, as im sure you know its always a waiting game with your life on hold, hopefully my surgery will be done before christmas im hoping next year will be a better year and that the SCS will help me get my life back :) I hope you continue to get some pain relif from your SCS, hugs for the bad days Melonie x

I see you've been with us since earlier this summer and somehow I missed getting to know you! :o You must've come aboard during the time I was gone for a couple of months.
I'm so sorry you've had to wait so long to get your surgery date for your permanent unit! I sure hope you'll get that call soon, so you can get on the road to a better quality of life.

Anyway, I just wanted to give you a hug :hug: and to say that it's great to have you here. Isn't everyone here just fantastic!
It'll be exciting to hear how it goes for you once you get your long-awaited surgery!

A fellow SCSer and friend,
Rae
:grouphug: