SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


advertisement
Reply
 
Thread Tools Display Modes
Old 12-05-2011, 03:48 PM #1
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
Default My First Thread

This is my very first thread~~yea me!! I have been reading the logs about the SCS and how successful or unsuccessful whatever the case may be. I just wanted to thank everyone for their true comments about the procedure. I have had the trial-didn't really like it, but I thinking the real stimulator once it's in place will help me. I see the doctor on Monday December 12th to get more information. As I posted before does anyone have any helpful tips of what to ask the doctor? I have multiple surgeries which I ended up finally with a fusion on my C2-C6 and L4-S1. That sciatic nerve just won't settle down which brings me to have pain all the time. Thank you for this site~~I do find myself reading and searching more comments all the time.
lynn1667 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-05-2011), Rrae (12-05-2011)

advertisement
Old 12-05-2011, 07:45 PM #2
Ananimity Ananimity is offline
Junior Member (formerly Vivster)
 
Join Date: Oct 2011
Posts: 74
10 yr Member
Ananimity Ananimity is offline
Junior Member (formerly Vivster)
 
Join Date: Oct 2011
Posts: 74
10 yr Member
Default Hi Lynne

Glad you found this forum! There are sho many helpful and supportive people here. For me, the trial showed me that the stim is a tool, that allowed me to move easier with much, much less pain. I think the physicians look for over 50% pain relief before they will implant one. Good luck to you
Ananimity is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-05-2011), Rrae (12-05-2011)
Old 12-05-2011, 07:54 PM #3
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Default Welcome new threadster!!

Dear Lynn-

Questions to ask the doc...... If they aren't lost in Rae's left pocket, I might have a few around here.....

BTW- congratulations on your new thread.. before you know it you will have gone from collecting threads to weaving fabric to assembling quilts!! Amazing how that works!

I found a few in the linty corners of my storage........
You mentioned the trial would be an out-patient procedure. Is it performed at the Belmar surgical center and do you insert the leads?

I spoke with one of the ANS patient ambassadors, and she described the original plan had been to leave the trial leads inserted for one day but that she elected to leave them in for five days to give the trial a thorough go. Do you allow the leads to be left in for five days, and if you recommend otherwise, what is your recommendation?

If the trial is successful, how long must we await the ultimate procedure for the implant?

I was told that post surgically, the patient should significantly limit their movement because the leads are at risk of loosening. Is this true?

Would the implant, if done, be of the EON transdermally rechargeable unit?

Reading and viewing the material, we understand the current technology is specified with a hope for a life up to ten years. Since the battery life issue is technology which seems to have been taken from the longstanding cardiac pacemaker technology, is it known how long the battery life is expected by existing evidence, or is it more a hope?

The patient ambassador spoke of recovery, beyond incissional pain, as a process which was several weeks in duration as opposed to the many month recovery she endured in laminectomy. She said the most common need is to recognize the need to wait out the formation of scar tissue to hold the leads secure. Is scar tissue the real security in holding the leads fast?

Viewing the materials and video, we learned the leads/paddles are secured to the spinal cord and that there is risk of paralysis, can you speak to the manner in which the leads are secured and to what tissue? Can you speak to the risks of paralysis the fine print on the video pointed out?

The materials show a variety of leads which are part of the product for implant. Are all of the leads/paddles used so it is a once in a lifetime implant, or are the leads only inserted in my case in the lumbar spine?

I understand the unit may be used as long throughout a day as the patient dictates in conjunction with the doctor and ANS, is the use a 24/7 proposition, or would I be limited in use as I am supposed to be with the interferential neuro stimulator? I currently use it from 3 to 6 hours per day.

Maybe these will help you form questions of your own.....
Thrilled for you,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ron h (12-06-2011), Rrae (12-05-2011)
Old 12-05-2011, 09:04 PM #4
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Laugh YaYY Lynn!

Welcome to the
!!
Before you know it, you're thread will be up to 800 posts like Mark's!
NOW you must learn the SECRET HANDSHAKE!

RAE
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-05-2011), ron h (12-06-2011), Vivster (12-07-2011)
Old 12-05-2011, 10:35 PM #5
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Teeth Oh Me Oh My

Already 800,,,,,, pretty soon the great grand poohbahs will shut me down for reaching capacity!!

Well, I'll just have to post on Lynn's thread when that happens..... Well Lynn, are you and Rae getting squared away on that secret handshake? Funny, I just had a thought....... no, I better not........ oh why not...... So, whaddya suppose would happen to our devices, if anything, if we were actually HAVE a BBQ at Pooh's and all be in such close proximity to one another? Do you reckon we would collect an extra Shock Value? That would be interesting.

Well, maybe not as interesting as Rae teaching the secret handshake.


Or Saffy showing the flippin around of that battery emplacement.


Or..... I am fresh out of oars, or was it ors, or ores, or have I gone
Yeah, for sure, having the flu, we decided after a family conference that is what grabbed me, I have flipped a gasket from confinement,
Let me outta here!
Mark56 No flu shot next year for me......
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ron h (12-06-2011), Rrae (12-06-2011), Vivster (12-07-2011)
Old 12-06-2011, 01:46 PM #6
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Tongue Super-Sonic Cyber Blast!

Quote:
Originally Posted by Mark56 View Post

Well, I'll just have to post on Lynn's thread when that happens..... Well Lynn, are you and Rae getting squared away on that secret handshake? Funny, I just had a thought....... no, I better not........ oh why not...... So, whaddya suppose would happen to our devices, if anything, if we were actually HAVE a BBQ at Pooh's and all be in such close proximity to one another? Do you reckon we would collect an extra Shock Value? That would be interesting.

Mark56 ......
Yep, that's EXACTLY what would happen
if we all DARED to come that close in contact....
.......................
I sure as heck wouldn't want to be the one to have to pick up the aftermath of THAT disaster
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-07-2011), ron h (12-06-2011), Vivster (12-07-2011)
Old 12-07-2011, 12:01 AM #7
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Teeth You are SO slap your leg FUNNY!!!

Yep Rae, if there is anyone who can put a smile on a face in this precious space, it is you!

Yep,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ron h (12-08-2011), Rrae (12-07-2011)
Old 12-07-2011, 12:38 PM #8
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
Default

I'M ready for the SECRET Handshake
lynn1667 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-07-2011), ron h (12-08-2011), Rrae (12-07-2011), Vivster (12-07-2011)
Old 12-07-2011, 05:34 PM #9
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Cool



FIRST you have to wait for the dude disguised as a DUCK!!
..................................................
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-07-2011), ron h (12-08-2011)
Old 12-17-2011, 12:25 AM #10
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
10 yr Member
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
10 yr Member
Default

My word! We could also all become magnetic and stick to each other's butts.
Lisa in Ohio is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (12-17-2011), Rrae (12-17-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Rednow thread #109..mushed-brain wonder thread CoolAngel26 Survivors of Suicide 21 07-04-2008 12:08 AM
Wonder Thread #106 Doody Survivors of Suicide 34 06-26-2008 03:04 PM
60th Banana bread thread..oops Wonder thread. CoolAngel26 Survivors of Suicide 26 12-06-2007 07:35 PM
Wonder Thread #35 Alffe Survivors of Suicide 23 04-23-2007 10:29 AM


All times are GMT -5. The time now is 09:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.