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-   -   C'mon! Let's tell 'em what not to say! (https://www.neurotalk.org/scs-and-pain-pumps/163200-cmon-tell-em.html)

JoanB 01-11-2012 12:55 PM

Us r sloh 2dae
 
Quote:

Originally Posted by Mark56 (Post 840102)
You gotta read the whole bloomin post I write if you want to place it in context. Perhaps this is how the Robinson family got into trouble with a stowaway.

The entirety of my context was ...... if there were time travel, I could go back and use the treatment reply you suggested. Followed by our kids did not follow that particular gene path of my line, so they did not have to deal with it, making the thought irrelevant to my family in the present time.

So, I reckon you could say I wa off topic,
Yep,
Moi

Thanks Mark. I didn`t get it at first either. But I did get acne and all the stupid advice that went with it as a kid too.

Fireball 01-11-2012 01:15 PM

What not to say.
 
I thought all the suggestions mentioned were great...Much better to consider from here than hearing them in real life.....It make me think about that over 6 ft man that cussed me out one morning after I pulled my car into the handicapped space....He happened to think I didn't look disabled even though I never even got out of my car....I suppose he had some pain and just couldn't legally park there himself and was upset to see that I could....I suppose that because I worked very hard at smiling, I must have somehow ruined his day, even though it was morning....So I happily replied how I felt sorry for his wife, should he be fortunate enough to have one....Cause he was a true dumb-azz in the sense of the word.....I have resembled all of those quotes typed at one time or another since my injury back in Aug of 07....That I did bring on myself as I was working....Working harder than the two other employees that were sitting on their hineys that very busy Monday morning.....Brought my life as I knew it to a screeching hault....And I became the literal pain in the azz your mothers always warned you about....And I've heard all those other quotes...Even the folks that would tend to go through the motions of " there by the grace of God go I" attitude have thrown a few at me a time or two.....Breaks my heart every time and they act like "what did I do"...When it upsets you....Christmas has passed and I took pleasure in wrapping some gifts for someone that is "helping" me....And wrapping those ackward gifts kicked me royally...Head to toe....And he said, "well you brought it all on yourself"....OMG...Thought I'd just shrink enough to totally disappear forever....Wish I had....Cause it's not getting any better in the world of those that are "helping" me.....The pretending period or the vacation period I used to call it when my son's were younger....Is only less than a month long, for adults too.....Please can't I just shrink enough to disappear, please.....The fires not burnt out of the RSD / CRPS I have to deal with...but the fires burnt out of this fireball......

Quote:

Originally Posted by JoanB (Post 839976)
Here on this thread http://neurotalk.psychcentral.com/thread163083.html, a few of us were talking about people who are not as understanding as we'd like. Dr. Smith brought up the idea of a buisiness-sized card with a list of things not to say to us that you could hand out to them. I thought that it would be fun to compile a list just for it's own sake, and if some of the entries made it onto such a card, great. If not, it would still be gratifying. I'm sure that not all will universally applicable.

I'll start with some of my favorites:

Maybe if you just exercised more, you'd feel better.

It's all mind over matter, you know.

Have you tried compression socks? (I have PN in my feet--just kill me now!)

:mad::mad::mad::mad::mad::mad::mad::mad::mad::mad: :mad::mad::mad:

I know you all have some gems too--show us what you got!


anon21816 01-11-2012 01:40 PM

"just suck it up!"............

Dr. Smith 01-11-2012 02:28 PM

Quote:

Originally Posted by Mark56 (Post 840102)
You gotta read the whole bloomin post I write if you want to place it in context. .... The entirety of my context was ...... if there were time travel,

Actually, I did, but I misread it. What you wrote was, "Next time I time travel" which I read as, "Next time I travel" (mea culpa) which just made it all the more confusing... :Hum:

Doc

Rrae 01-11-2012 05:03 PM

Fireball...
 
I agree with you WHOLEHEARTEDLY!
I think because of this, it gets to a point where a person would just WANT to go off and isolate themself.....it just gets too dang frustrating .... :thud:

Rae
:grouphug:

yellow 01-11-2012 06:17 PM

"If you just *insert action here* more..."

The worst I've had it is actually from my own parents who, especially before my diagnosis, were convinced I was bringing the pain on myself. Gotta love it when people think they know more than doctors :rolleyes:

Luckily I have some great friends who understand though.

Also before getting the SCS: "I'm so glad your pain will be all gone".

Sophie_ 01-11-2012 07:47 PM

Hi guys
Those comments are really good and a lot of them I have to agree with. I hate the cheeky buggar who asks what's wrong with you when you park in the disabled spot because that day I'm hardly able to walk.

When my colleagues in work ask how I'm coping there is one girl that has a friend who had a fusion 20 years ago and she always brings her mate up to remind us of the exact same thing and how she decided to go ahead and have her kids despite doctors advice and because she had kids they can't offer her any help now. It drives us all up the wall!

As much as I love my parents they're always tring to fix me, they can't understand why I get so tired and wanna have a snooze at 3.00 in the afternoon. They often suggest that when I feel tired like that, that I should go for a walk then.... Oh you've put on weight, time to get rid of that with your bad back! In saying all that they mean the world to me and do help me now they realise how fu*k*d up I am. My Mam does my ironing, my hubby does almost everything including the cooking and cleaning. My Dad would do anything for me, especially driving me to work or hospital appointments, same with my parents in law.

I like this thread keep the comments coming.

Love Sinéad xxx

Dr. Smith 01-11-2012 07:55 PM

:Thats-Funneh:
Quote:

Originally Posted by yellow (Post 840290)
Gotta love it when people think they know more than doctors :rolleyes:

:ROTFLMAO: BITING.... HOLE.... CLEAN.... THROUGH.... LIP....!!!! :yikes: :picknose:

Doc

JoanB 01-11-2012 08:18 PM

Well-timed thread!
 
Whoa-boy, did this hit home for me today! My brother called me to ask how the SCS trial was going and I told him that I wasn't sure that it was really helping my pain much. Then he asks me, "Well, other than that, you're feeling pretty good?"

What?!?

Other than that, Mrs. Lincoln, how was the play?


GAAAAAAHHHHHHH!!!!!

I had a therrmo-nuclear meltdown right in the middle of the cube farm where I work. If my coworkers didn't think I was unstable before, they surely do now!

Rrae 01-11-2012 08:40 PM

Quote:

Originally Posted by JoanB (Post 840329)
Other than that, Mrs. Lincoln, how was the play?


....... :ROTFLMAO:....... Oh my LORD, Joan, that is too funny!


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