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Old 01-25-2012, 10:09 AM #4
fionab fionab is offline
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Join Date: Feb 2010
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15 yr Member
fionab fionab is offline
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Join Date: Feb 2010
Posts: 487
15 yr Member
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The way I got diagnosed with peripheral neuropathy was rather through the back door. I had complaints about elbow pain (both of them) and ankle pain (both of them). So my neurosurgeon says let's do a small procedure where I go in and take the pressure off those nerves that's bothering you. So, he goes it, and relieves the pressure off the nerves. Later he told me that he found that the nerves were being choked off by overgrowth of fascia, and thus I was diagnosed with peripheral neuropathy.

A neurologist, who I saw later and described some of my other weird symptoms to, like all my muscles easily spasming/cramping (esp. feet), not being able to sweat, my muscles seeming to not like any kind of fast, repetitive motion (was ok if I sloooowly repeated a muscle motion), diagnosed me with small fiber neuropathy.

So have been diagnosed with both. Unfortunately the two medications they give (gabapentin and lyrica) don't treat me well so I've opted to just live with the problems both conditions cause rather than taking those meds. and dealing with their nasty side effects.

Almost forgot: When I was looking into why I was so ill and had so many infections (which is what led up to my being diagnosed with Primary Immune Deficiency), I went to the Cleve. Clinic and saw a specialist who worked with mitochondrial problems. He ran extensive tests on me and said I was fine in that area.

Last edited by fionab; 01-25-2012 at 10:13 AM. Reason: additional info.
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