SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 01-29-2012, 05:28 PM #1
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Thumbs up Medtronic

Hi Melly,

It's good to hear that your Medtronic implant is working well for you and you are and seem happy with it. I had my Medtronic inplanted December 2009. It worked very well for the first 5 months and then it just stopped, I had it revised and no luck, I had injections and no luck so in the end my Comsultant decided to take it out... At the moment I have nothing/nada and the pain isn't good. It varies from rotten to unbearable and I can't do anything until the pain subsides.
My left leg is hopping with pain. It throbes, it spasms and I feel the need to drag my leg around, I've even been to my Consultant and he can't give me anymore medication because of all the meds I'm taking.

So really, really I hope your Stim works better than mine. Would you let me know how you get on with it.

Take care and the very best of luck

Sinéad xx
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Mark56 (01-29-2012), Rrae (01-29-2012)
Old 01-29-2012, 06:01 PM #2
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Heart Melly---- they need to let you take the "wheel"

I am beating large tympani tunes for maximum attention on the whole idea of involving the patient personally in the programming phase of permanent implants. Heather aka Coral Toe was allowed to program her own unit recently and she, like I , finds herself thrilled with the results.

A new poster on our forum, Paul aka DY something something, is a manufacturer employee, so I have done my level best to cause his ears to burn or his eyes to water as we take the "let the patient drive" mantra to new heights of attention. More patient action at the controls in programming sessions is our goal. Endless tweak sessions which are games of chance at best impress me not at all. If I now sound wholly jaded, then alongside my pain management specialist I am as jaded as they come. We feel as a duo patient needs would better be served by patient controlling the program sessions......

So Melly, I am thrilled for you some relief has been attained!! Additionally, I wonder whether your needs would be better met with attention to your fingers dancing on the computer keyboard in a "tweak" session. I rant, rave, and soapbox all I can anymore seeking a better implant outcome for ALL!!!

Sophie- you dear heart, I am continuing to pray for your solution-
Mark56[one for each of ya]
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Old 01-29-2012, 09:55 PM #3
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Thumbs up Wow!

Thanks for sharing this Melly! Good stuff!
I've heard that they were coming out with memory features (maybe YOU were the one I heard it from in a pryor post or something )

This is great! You are our first living testimony of having this new piece of technology. I hope you get tweaked to perfection and that this new little device can help get your quality of life back!
How very exciting this is to learn about!

Rae
Me too, Sinead I've been thinkin of you and praying for your situation to improve sooner than not. I continue to pin my hopes on the fact that something just HAS to be right around the corner! This just can't go on.
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Old 01-30-2012, 11:44 AM #4
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Laugh Wow

This sounds wonderful! I have an older Medtronic unit, installed this last one in 2006 so will soon be hitting EOL with my battery Wanting more info as I would prefer not to have my leads removed and new ones placed when I do hit EOL! HOWEVER I believe that Mark is right about letting us "drive" the settings.[/I]
zzzzzzzz
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Old 01-30-2012, 12:22 PM #5
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Default Congratulations

Congrats on the great experience with your SCS system. I hope the reps are able to figure out a way around the bending issues you are having.

The adaptive technology they have developed is a great step forward for the patient experience. Not having to manually switch between multiple programs must be very convenient.

I wish you the best in your pain coverage moving forward.
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Old 02-03-2012, 07:33 PM #6
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Default Oh

There you are Brent! Hope you are well.

Mark56
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