Hi all, new member here. All set last week to go to Emory for Medtronics PNS for AFP/ATN (Atypical Facial Pain/Atypical Trigeminal Neuropathy/Neuralgia and the day before surgery was told insurance denied as experimental. We have BCBS of Fla. Can anyone tell of their success with appeals and perhaps how approached? MD dealing with insurance co. vs. patient dealing with insurance co, CPE/IDC codes, etc)
Thanks loads! This forum is a lifesaver!!!

Hello there!

We have another forum here at NT that might provide you with even more info regarding SCS for face pain/Trigeminal Neuralgia. Our good friend "Burntmarshmallow" will no doubt have some good insight to offer. You'll see her name when you get over to that forum. Be sure to check out the upper part of the page there in the "Sticky" section. VERY helpful stuff that Burntmarshmallow has provided.

Here is the link to get you to that forum:

http://neurotalk.psychcentral.com/fo...aysprune=&f=26

I bet you can appeal your insurance's denial. Hopefully you'll get feedback on this. Hang in there and we'll round up some help, K!
Keep us posted

Rae

And Burntmarshmallow [BMW] is IN Florida, so she has probably experienced the very issue or may know of those who have for trigeminal neuralgia as you experience it, for she heads up MUCH of the interpersonal interaction on the TNS/PNS forum. She is life to those there who have issues, needs, difficulties. I pray you all make acquaintance VERY SOON!

Mark56

Oh my .. I thank heavens for our National Health Service in the UK. Although we pay a voluntary amount each week, when you need it, treatment is free. Without this I would not have been able to have my scs as BUPA, our private health cover will not cover it as it is not a "cure"

Hi Lncamp I have a PNS for my face pain, it is rumor has it to be approved this year . I am in Florida I had my Stim done in 2002 in Daytona. Medtronic
Most times for appeals it takes the Doctor to say this is the next step as meds no longer provide effective pain control. and surgery such as MVD or gamma will not help or maybe you have had one of those surgeries already. It is used off market for face pain and considered experimental but not for long ..rumoring this year for approval and The Doc should have info on the success rate of this if not they can find it here search on the comp easy or I can provide plenty of folks with T.N. O.N. Atypical , bi lat ,a.d. etc who have gotten pain relief via the PNS . I will see if I can hunt down some more info on appeals. I see Rae left you link to the t.n. forum I hope you come by and read lots of info and If i get any helpful info I will share it your way.
PEACE
BMW
P.S. HI Mark and Rae

I spoke on the phone for about an hour the other day to a person our friend Cheryl sent my way. She had much in the way of questions, then I encouraged her to take a fast walk through my thread to see if it was helpful to her, inviting her to call me again whenever she wishes.

Hope you are doing well!
Blessings and hugs to you,
Mark56