SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 03-02-2012, 10:23 PM #1
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Heart Hi Lynn and Welcome

Mine has never moved that I could discern, but Rrae on here had a lead which moved all of the way down her back. That one was finally removed because it was not helping anyway.

Tchr012 had a generator which moved I believe, and ultimately the whole affair was switched out to another unit much to her joy.

Others on here have noticed movement, whether as with Saffy who even showed on you tube, I think, how she could manipulate her abdominally mounted generator.

It seems we have a few of us around here with things that move and go bump in the night, and I hope for you, the solutino is quick in coming.

Mark56
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Old 03-03-2012, 06:56 PM #2
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Default Hi Lynn!

Gee I'm sorry to hear this. It does leave us scratching our heads doesn't it.
This is something that I would THINK the Dr's would do something about in the first place! Too many pts have this problem of the leads slipping. I'm amazed that yours has moved this much especially since you have paddle leads.
In my case, I would almost be willing to admit that it was 'my' fault, as I became a bit overambitious and was doing too much strenuous work out in my pasture with the horses. We'll never really know tho. Like Mark said, we ended up just pulling that lead out since it was not helping in the first place. So, I get by just fine with one lead.

I know how frustrating this is, but hang in there. Let's see what your Dr says. I'm really curious. It WILL get straightened out and eventually the leads will scar in. Be prepared for the Dr to blame 'you' for moving too much or bending wrong during recovery.....evidentally it's in the 'small print' somewhere that it's OUR fault when this happens

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Old 03-05-2012, 08:54 AM #3
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Default counting the days

OK-----counting the days until I see the doctor!!! 5 to go!! And I'm sure Rae you are right--the doctor will say that I moved too fast or something to that affect.
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Old 03-05-2012, 10:56 AM #4
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Heart Cause is not relevant

Though doc may attempt to chide, if the unit has moved, the cause is irrelevant as it could just as easily have been an ineffective creation of the pocket for its containment in your body and ineffective securing of the unit in the body.

Relevance is whether it has moved. A moved unit is a moved unit. If it, having moved, results in questionable operation, recharging, or program accessibility, doctor has a duty to inquire. You are the patient, and doctor operates under a duty of professional care so take no guff. Press the issue if you are concerned.

Give accurate information regarding your activities and take along a corroborator, such as spouse or good friend. Doc will perceive the scenario as best possible according to skill level and care, then hopefully you will receive treatment as required.

I may seem cranky, but trepidation when it comes to whether doc gives a %!#$ is beyond the pale. They must treat issues presented not hold judgment whether something is amiss, for they may just as easily be the cause. So, worry not, and go be seen for your need. Head held high. Expecting the best of care because you are the deserving patient!

How's that for a locker room spirit call?
Mark56 OO-AH!!
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Old 03-06-2012, 08:56 AM #5
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Smile Thanks for the pep talk

Quote:
Originally Posted by Mark56 View Post
Though doc may attempt to chide, if the unit has moved, the cause is irrelevant as it could just as easily have been an ineffective creation of the pocket for its containment in your body and ineffective securing of the unit in the body.

Relevance is whether it has moved. A moved unit is a moved unit. If it, having moved, results in questionable operation, recharging, or program accessibility, doctor has a duty to inquire. You are the patient, and doctor operates under a duty of professional care so take no guff. Press the issue if you are concerned.

Give accurate information regarding your activities and take along a corroborator, such as spouse or good friend. Doc will perceive the scenario as best possible according to skill level and care, then hopefully you will receive treatment as required.

I may seem cranky, but trepidation when it comes to whether doc gives a %!#$ is beyond the pale. They must treat issues presented not hold judgment whether something is amiss, for they may just as easily be the cause. So, worry not, and go be seen for your need. Head held high. Expecting the best of care because you are the deserving patient!

How's that for a locker room spirit call?
Mark56 OO-AH!!
This makes me want to go out and kick some butt!! Thanks for the pep talk. This puts a smile to my face My husband is going with and he is not a happy camper about this situation. Anyway I will get back to everyone after I see the doctor. Shall be interesting ~~thanks for the support that one needs
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Old 03-06-2012, 11:46 AM #6
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Default

Great that hubby is going with. Doctors seem to take me more seriously when my husband goes with. Bummer if the lead has moved but that may well be the answer to the unexplained pain you've been having. I would hope that moving the lead back to where it should be won't be as big a surgery as the original one Praying you get some answers and some RELIEF
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Old 03-06-2012, 10:27 PM #7
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Thumbs up Lest they be unnamed

Our wives make wondrous advocates for the hubby as mine so assuredly has! How blessed am I!

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Old 03-05-2012, 05:04 PM #8
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Default Lynn

Quote:
Originally Posted by lynn1667 View Post
OK-----counting the days until I see the doctor!!! 5 to go!! And I'm sure Rae you are right--the doctor will say that I moved too fast or something to that affect.
Just so the leads do not scar in a position they were not meant to be. There is a real concern for that as well.

(Ger)
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Old 03-05-2012, 11:01 AM #9
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Default

Quote:
Originally Posted by Rrae View Post
Gee I'm sorry to hear this. It does leave us scratching our heads doesn't it.
This is something that I would THINK the Dr's would do something about in the first place! Too many pts have this problem of the leads slipping. I'm amazed that yours has moved this much especially since you have paddle leads.
In my case, I would almost be willing to admit that it was 'my' fault, as I became a bit overambitious and was doing too much strenuous work out in my pasture with the horses. We'll never really know tho. Like Mark said, we ended up just pulling that lead out since it was not helping in the first place. So, I get by just fine with one lead.

I know how frustrating this is, but hang in there. Let's see what your Dr says. I'm really curious. It WILL get straightened out and eventually the leads will scar in. Be prepared for the Dr to blame 'you' for moving too much or bending wrong during recovery.....evidentally it's in the 'small print' somewhere that it's OUR fault when this happens

Rae
dear rae
hope all well
just wanted to say
thanks for your last line
do not be afraid to voice your concerns
always go with your gut
doctors have HUGE egos
it is a job to listen
make them listen
lynn i wish the outcome 100%
eva
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eva
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