Nobody should be trying to prove anything with what articles are read. We just need to support each other, in what ever direction people decide to go in. This horrible condition is pain to the max, I am for any treatment that has a hope of working. Each person is unique, and should have a right to that hopeful part in treatment. What I think is when in the back of my mind I hear, "It could be me" What would I do? I would try most anything I think to get out of the pain and at a least give some of these devices a chance. I wouldn't want my hope taken away from me. since I do have some new and unexpained pain, It does make me think about the individual. I care about all of you, and hope each person gets help with their pain. ginnie

Hi everyone
I am going to just step in here and emphasize again that what makes our Community work is that we have members representing many different viewpoints on treatments and protocols, and they are all welcome to share their knowledge or experience here.
We are a patient support community, which means simply that no "experts" rule here

It does a disservice to others when anyone suggests that there is only *one* effective treatment, as experience shows that is simply not factual. What works for one, or some, does not necessarily do so for others. It would be wrong to not have open discourse and then let people decide for themselves what route they want to take. It is also upsetting to people for whom a treatment *is* working to be told that it is not.
So please be respectful of the choices others have made, and allow them to freely share their experiences with others.

thanks

Dear Chemar-

Thank you for bringing Phyllis Diller back to our minds as we contemplate every possible means toward restorative actions to life. Each of us in our own ways look for hope as the means to remind us of smiles, of blessings, of opportunity to know life again....... and in case anyone was looking on Valentine's Day at a particular dance floor, I held my dear lady nearby as she strove to help me waltz. It seems my feet will no longer cooperate for that step we used to so enjoy, BUT, we did manage to Foxtrot slowly and I did not evidently flatten her feet beneath mine.

Many viewpoints? Absolutely. Many doctors with differing perspectives? Thus the genesis of second opinions. Last time I checked, only God had the supreme perspective. I am willing to do just the best I can do, and respect the perspectives of others. The world is much more fun that way.

BIG HUGZ,
Mark56