SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.


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Old 05-22-2012, 05:43 AM #11
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Hi Kirstie,

You're very welcome to the forum and all of us here are going through this tortuous pain and trying our best to cope and unless you're in this pain people don't understand so you'll get tons of support here if and when you need it.

I was reading your post where you said you find it difficult to type. I'm using an iPad and I found this app called "QuickVoice" and basically you speak and it types, it's not that expensive eiher I think it cost me €3 so about $4. I'm still getting the hang of it and I reckon I'll need to speak slower. You'd probably still have to make some changes but you could then copy and paste it. I think you'd have to select the recording to email it but I've copied it from there! There is a free version too but I don't think it allows you to convert the recording to text. It might be worth looking at if you have an iPad.

I'm still reading your other posts but I wish you the very best of luck and like you want my life back.

All the very best

Sinéad :hugs:






Quote:
Originally Posted by bringontherain28 View Post
Rare,

Thank you for your quick response. The scs was placed for trial on Monday. If I look up or down, the frequency increases. I can't tel if my fingers are still numb, if it is the buzz sensation, or a combination. My occupation involves computer usage. If the permanent is the same, I will have more sleep but I don't know that I will be able to work. I want to tell you more, but hurts to even type on the touchpad. Am I doing something wrong? I want this to be my answer.

Thanks.
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Old 05-22-2012, 05:51 AM #12
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Heart Hi Kirsty

You dont say where you are from? Do you mind telling us.

In Ireland and the UK we also have another SCS called a Nevro and there is no sensation from it at all. I had to have my Medtronic SCS out because it wasn't working properly for me but now I'm waiting to be called for the Nevro SCS and I can't wait, when the previous SCS worked it was fantastic the relief I got from it.

Stay strong and focused and you'll get there.

Sinéad xxx
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Old 05-22-2012, 01:12 PM #13
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Default Sinead :)

How interesting that app for the iPad......I will definitely check that one out. As when I type on my iPad the predictive text comes up with some gems completely off topic to what Im writing

BTW Sinead why did your SCS stop working, was it faulty or was it that you just werent happy with it all, sorry I just cant recall it?!

Hope you are having a good day

Jackie









Quote:
Originally Posted by Sophie_ View Post
You dont say where you are from? Do you mind telling us.

In Ireland and the UK we also have another SCS called a Nevro and there is no sensation from it at all. I had to have my Medtronic SCS out because it wasn't working properly for me but now I'm waiting to be called for the Nevro SCS and I can't wait, when the previous SCS worked it was fantastic the relief I got from it.

Stay strong and focused and you'll get there.

Sinéad xxx
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Old 05-22-2012, 05:44 PM #14
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Heart Hi Jackie :)

Hi Jackie,

That app (it's called Quick Voice) is pretty cool alright and it works, you need to speak a little slower and speak clearly, I guess it would have a problem with something like my Irish name. Then you send it to email as text, send the email to yourself and it comes back as text. It would be really useful for someone who has trouble typing or maybe eyesight problems. Right now it's quicker for me to type but then I'm a good typist, I work in Admin.

I'm replying to your other bit privately as the SCS wasn't the right one for me.

How are you getting on? How are your pain levels, I'm taking a serious amount of meds 156 a week and I hate every single one of them, I can't understand why anyone would intentionally want to take any form of Oxy! The side effects are truly rotten.

Nice chatting to you and keep in touch, I look forward to any news you have.

Love Sinéad xxxx
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Old 05-24-2012, 08:00 AM #15
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Default Welcome Kristy

Kristy hopefully you find all your answers to your questions here. There are so many people here who have had the SCS implanted and like the results, don't like the reults or on the fence. I am one that is on the fence right now. I had the implant in January and had a revision done at the end of April. I still don't know if this was the correct choice for me?? I still feel pain when the stimulator is on. I guess I just need to keep going back for alot of tweeking. I'm not giving up but I am getting a little discouraged. Good luck with your SCS and all I pray that it takes the pain away!! Living it pain all the time really makes me ..... Anyway welcome to this forum and good luck to you.
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Old 05-27-2012, 12:21 AM #16
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On my tablet and on my phone there is a symbol for a microphone. I just tap the microphone and begin speaking slowly and it types my words for me. I don't know how it compares to quick voice but it sure is handy. Easy to use when you're lying in bed or having trouble typing due to hand or arm pain. good luck
Sandy
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Old 05-27-2012, 02:55 AM #17
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Default Quick Voice

Hi Sandy,

I know the one your talking about, I even got the mic for it, can it send your recorded message as text in an email or for a report or stuff like that. I will probably get more use out it when I go back to work, driving in every morning, it will be safely connected to those head phones, pull over click on the icon and off I go, I can them send it to myself as text when I arrive in. I wouldn't drive dangerously with it we all have too many horror stories. I might never have caused an accident in my many years driving and I'm not going to start now!

Enjoy your day, although you're probably still sleeping

All the best

Sinéad



Quote:
Originally Posted by Sandy Kay View Post
On my tablet and on my phone there is a symbol for a microphone. I just tap the microphone and begin speaking slowly and it types my words for me. I don't know how it compares to quick voice but it sure is handy. Easy to use when you're lying in bed or having trouble typing due to hand or arm pain. good luck
Sandy
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Old 05-27-2012, 08:43 AM #18
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Heart Dear Kristy

My office computer [ this one at home also ] have MS 7 operating suite which includes a wonderful speech recognition software for dictation. My office is all MS Office set up for all the workers, so I obtained and plugged a good quality wireless mic to the computer, spent 2 1/2 hours on the tutorials even repeating them, to verifty the computer was learning my speech rhythms and waves, and away I went. Friday, for instance, I was able to kick out 5 contracts [I practice law] and communicate via myriad emails all dictated from me to computer, and the correction engine is fantastic. I was going to go the expense of dragon, but found it unnecessary.

Regarding te buzz, I have assuredly become accustomed to it, and my career zoomed off again specifically due to gaining the benefit of the SCS implant. Both Coral Toe and I are semit unique in the world, as we were allowed to actually program our units under the watchful gaze of the rep. I have never needed a tweak or revision surgery for my waist down nervous system issues due to an awful rearender on I-70 by a full speed fella who was not controlling his car when traffice ground to a halt. 20 surgeries later, I am even about to be sworn in to practice in New York, as I have client matters there, so an air flight from Colorado to NY to set things aright once I am sworn.

Life CAN be better with the stim. It has been a fantastic result for me, so I am on the end of the continuum who is assuredly blessed with it, while there are those who have problems very serious with it on the other end of the continuum, and a complete smattering of different results from one end of the scale to the other.

One thing for sure,
I am praying for you Kristy,
Agape,
Mark56zzzz
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Old 05-27-2012, 02:13 PM #19
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Heart Hi Mark

Hi Mark,

I was wondering how you were coping with your arm problems and I'm happy and not surprised you got this software especially if you can't type for whatever reason. On the other hand I'm a trained typist and can probably type as fast as I can speak, I've been out of practice these last few months but hey it's like riding a bike and I hope the same can be said for driving as I haven't driven far since I finished work last October! What is the name of the software you have, can you remember?

Sworn in New York hey well done you, maybe Ireland and the UK will be next, we might speak English but in terms of language now that is very different and pompous. Wigs, gowns and all... A big pile of BS that's unnecessary if you ask me.
You know Mark, you amaze me so much with your strength and your courage, after what 20 surgeries, did you never say at any time no enough is enough? I know I certainly I couldn't do that many surgeries but I don't mind the injections or even the Rhizotom. I can't even remember how many I've had over the last 6 years. Maybe if they were available in 1995 things might have turned out differently but seriously, coulda, woulda, shoulda huh! I'm sure Cleo and your family have helped you through all of those heartaches, difficult decisions and the sheer worry, the same way my Pauli and both our families have helped us. It's tough but we are a very strong bunch of people on this site, too many to mention and we all help and advise each other in ways we might never imagine.

Later alligators or until the fat lady sings!

Sinéad xxxx
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Old 06-02-2012, 09:40 PM #20
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Default Hi!

Hi Kristy,

I'm new here, and soaking up any information and experience I can find! Thanks for asking some of the questions/concerns that I've had also. I hope your trial went well and you experienced some pain relief!
Jan
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