Hi guys, I had SCS surgery in December 11.my CRPS is in my left foot.I am still having severe pain around the surgery sites.Cant do much of anything.Still on crutches and in wheelchair.I would love to hear of fellow scs implant people.Im in UK and had my scs surgery at The Walton Centre .my neuro nurse check up is in August...any advice etc

Hi Lynn

I'm sorry to hear you're in so much pain still after 6 months. I hope that everything has healed well and there is no infection. Is the problem with the leads or battery?
My implant was a year ago this August. What has your surgeon had to say about the pain?

I hope you have a better day ahead and get some relief.

Sandy Kay

Welcome aboard this good place! Severe surgical pain was NOT the case for me six months post surgery, and if it had been I would truly be sitting in the surgeon's office to ask one simple question........."Why?"

If you followed all of the post surgical instructions and the BLAST concept of no Bending, Lifting, Stretching, Twisting there should not be a reason for the surgical sites to continue irreconcilable pain this long. I did hurt fairly severely for a couple of weeks post surgery for the T8-T9 implant of my SCS paddles, the run of the wiring down to my right hip, and the creation of the pocket for the stim generator........ but by six months post surgery I had even fully weaned off of all of the pain medications used to manage pain pre-surgery!

Please consider getting an appointment with your surgeon to inquire "WHY?"

In the meantime, I will add you to my prayers,
Mark56zzzzzzzzzzzzzz

It's great to have you - Glad you found us!
We've several great friends here from the UK!

I'm sorry about this pain you describe, and the fact that you are still wheelchair-bound.

Are you getting good stimulation in your foot?

Something sure seems amis. I agree, get in with Dr soon and try to find out what's up.
Is this pain only at the surgical sites.....or would you describe it as burning pain, similar to the pain in your foot?

I hope you can get some answers soon. Please stick around and keep us posted!
Your Dr really needs to know about this. It could be several possibilities......battery overheating, leads migrated, infection.....

Hopefully this is something that can be fixed, especially if you are getting the stimulation you need - it'd sure be worth fighting for......but since you are still in wheelchair, makes me suspect you aren't getting the proper pain control?

Caring!
Rae

Thankyou all for the very warm welcome here....please excuse any of my typos etc as I am so good ( NOT ) with a PC that even Nasa said I was over qualiFried...and I dont suffer from Insanity....I Enjoy Every minute of it....Im not fully sure yet as to doing posts here.. yes, Im a crazy smiling Cat lady ..ok..I have crutches..and wheelchair..The SCS is helping ease the pain in my left foot ..but since day 1 after the SCS surgery my back has been bad..I expected pain from the surgery ..of which is all healed ,no sign of any infections...I did all the right post opp things ..didnt do anything that I was told not to do..Ive been back ..was re referred via the neuro Mod team.I saw the Dr..and was told that sadly sometimes this can happen ( I read all the pro,s n cons of SCS surgery.) The Dr checked the scs and battery sites and all was looking ok.The pain is like an Ice cold stabbing..I cant lean at a slight angle,it may sound silly but my spine feels like its in 3 separate pieces..it "jars/jolts. and although its not like my foot..Its as if I need susspension on my crutches.Im left thinking ..my scs is easing lots of the foot pain but my back is sadly.."one of the things we were told /warned about that could happen.. Im not sure on how I can stop the musclecontractions /spasms Sometimes it feels like every bone in my body hurts..I cant wear anything but loose light cloths as my skin dosnt like much touching it ..not all the time..mainly when Im hurting bad.I also wear hand splints/straps (due to long term use of crutches )..and I often fall always landing on my right knee..which is now bad..tween the devil and the deep !Any advice,tips ect MOST Welcome..thankyou all ..Purrs n Smiles (yep, I purr....crazy cat lady..must purr ! )

Forgot to mention..Im Still on all the same meds..plus the instant release oxynorm..for when I really need some fast relief..morphine.zomorph,naproxen, ,omeprazole,amitriptyline,pregabalin.