Mark56 (and the others on this thread)

I just wanted to say Hello and further let you know how much I have appreciated reading your story. I was also in a head on collision just over 2 years ago and have endured by the GRACE of GOD 10 major operations and after a nerve injury sustained during one of my most recent hip operations I am now left with an inoperable neuroma and subsequent CRPS 2. I am getting my SCS trial on Thursday with the hopes that it will allow me to regain my active life so that this ugly disease does not have a chance to take root in my heart. Your posts as well as the posts from others have inspired me and helped me in more ways than you will ever know. Thank you so much for sharing and caring!!

Tessa

You help bring to light the very reason these words appear poured liberally from our hearts and spirits. We ARE support for one another. You are an intended beneficiary, and it warms my soul to know one more time, our work helps others.

We receive and feel blessings here. Surely, many of us consciously feel a spiritual connection with those blessing manifestations; yet, in purposely naming the Blessings Thread as was done, it is intended for each of us [and I do have friends who profess agnosticism and atheism among other faiths and spiritual followings, each of whom know they are blessed] to wrap our hands and arms around the truth of experiencing good things in life.

So, with you, I feel sad you are experiencing these terrible pains arising in your body, and by the same token I feel glad you are looking up with Hope for a tomorrow which may possibly be lived with less pain. I was reminded this week as I was sharing with a friend in person and they learned for the first time about this journey a car wreck commenced for my family. Sure, they learned I have the Boston Scientific scs and that I am thrilled with it, resuming my career practice and some of those things which additionally bring pleasure, then they heard and realized pain will never be gone from me as my nervous system is long term damaged...... BUT, it is a certain Blessing not to have to consume opiates any longer. Yesssssssss indeedy. I am thrilled to have electronic management of my pain.

Thus, I hope [and pray] for you a similar result in the coming time with your trial.

If, as, and when you have questions, pop them! Lots of us answer. And, as Eva everyday reminds us there is "someone who cares."

One who cares a lot as well,

Awe.. thank you! I believe without a doubt that when I cried out to God and was lead to stumble upon your thread, it was in part an answer to prayer. It was by your story that re-fueled my fire.. to not let this wreck defeat me or this new nerve issue define me.

I have read the controversy regarding the SCS for CRPS but I think some of the statistics talk more about type 1 (I have type 2), it also states many times that timing of the SCS is crucial.. the sooner the better. It makes sense that the most important aspect is gaining control over pain so that nerve won't have time to essentially "recruit" the other nerves in this pain party. Also so that the brain won't learn the pain/disuse pattern. My thought process was that either way I will always risk spread; whether it be by an accidental new injury, surgery of any type or just the course of the disease spread is possible. I want a fighting chance .. I don't want to live on drugs or wonder if it would have helped.. better to try now, than to wait until the disease has further embedded itself in my body so that I can focus on my rehab with all my might.

There is much to say about the positive spirit and how it affects the bodies ability to recover.

May God continue to shine through you each and every day,
Tessa

dear Tessa
so sorry to hear
of that accident
if i may

it has been a good
3 years and some
one evening getting
up from sleep
thinking i had the only
stiff neck
no such luck
my life changed on
that dreadful night
it turned out i was
on the way out
acdf 5/6-6/7 failed to fuse done 3-11-10
pcdf same done 4-15-11 a bunch of things are
now wrong
forgive me for not listing
them they are posted
my hands are doing terribly
the nerve pain has moved midway
from finger tips midway to both forearms
same with feet
L-5 needs mechanical fixing
not having it

I BEGAN IMMEDIATELY
being put on drugs
if you can
try to take the route
where no or minimal
drugs are necessary
it is not anything you want
to start and have to struggle to come
off i am clearly speaking of the DRUGS
i have several things going south
my nerve pains independent from
the mechanical if i had the opportunity
and not be scared i would do it
i won't have any more surgeries
mine are horrific experiences all
around and the test i was subjected to
never
i hope in my possible dreams
none that i remember
a miracle occur
that one day i wake up and it
be all gone
i please plead with you the drugs
are a hard and difficult route
i do not take anything for the
fibromyalgia RSD neuropathy
as i did had severe reaction to
Lyrica my eldest daughter is on it
800mg she is epileptic hit her at 23 years
old my baby has been through hell and back
she knows how mommy feels
after having part of her occipital lobe
removed go permanently blind in right eye
and have even more seizures and on
the umteen amounts of med in a day she
must take
had the VNS implant
Lyrica is extremely dangerous
but work for some with no severe
recations
anyhow cymbalta and others neurontin
i will not take them that's how scared i am
after taking Lyrica as per neurologist
thanks but no thanks
discogram and meylogram are test i never
want to have again
my future bleak as nerves
and mechanical need to be addressed
separately oxycontin percs muscle relaxers
meds from my shrink meds for my cancer
faild to mention the hiccup in the road
i found a lump positive cancer
had both breasts removed
tamoxifen for another 5 1/2 years left
already a year and a half in
meds s**k
but for some like myself
that never wants to be cut
open again it is there for me
the thought of going through any withdrawals
send shivers up and down my painful spine
may you be yet another success story with your trial
TAKE NOTES ABOUT EVERYTHING
FROM BEGINNING TO END

i wish you a happy life
a painless as you can get

someone who cares

I feel a BLESSING coming ON...... it is a virtual party at Pooh's pond.... right here on the SCS Subforum......

Yup, a blessing indeedy

dear Father
Brother
Mother

thank you for another day

Lord hear our prayers
we go to the pool again
oh how i just want to be able
to enjoy it
noted that coming out
the pool step by step
lower back L-5 hurts more
this year than last
as a matter of fact it hurts
so badly today and in my sleep
don't know if i mad it worse
how ever
the sun my two ladies who sit with me
is nice
and to have my Granddaughter
behave so well is just breathless
and speechless
she is so precious
her and Corissa
my two Angels who need my love
Saraeve is coming today
got her a beautiful purple blue deep
in color so striking on her
getting ready

someone who cares

dear Father
Brother
Mother

thank you for another DAY

thank you for answering my prayer
the Judge gave me temporary custody
and this be the last time
you are the Almighty and came through for
this family
i love my God

someone who cares

for that Blessing, Eva....

and

for the blessing our home is filled with the delightful chuckles, squeals, smiles and such of our blessed little Samson. He and parents are here. WOW! I can't stop kissing him!

Love this, yes I do,
Uh huh,

these are the days my friend
i hope for Sir Samson
will never end
with the Love and Kisses
you just can't stop

enjoy every morsel
together

love to all
God bless us all

someone that cares

dear Father
Brother
Mother

thank you for another day

dear God
i don't get it
these last 3 day
felt like one big
mess
in the end
i am given temporary custody
of the baby
i had a reason to call
management then
with three of them and a machete
lifted the rug out on the veranda
i took the mop out to clean up the mess
left behind walking through the entire
apartment
i began going slowly back and forth
somehow my fall began with me
going a split broke that as my left knee
could not handle it afraid to fall on my right
side somehow twisted my body trying to
manipulate the fall
well not to successful
fell on my left buttocks
hitting my buttocks bone
then my left arm went under
free to slam the floor
a full body fall
and i hurt so badly
hoping my med will help
my shoulder left hip and left
knee won't even talk about my
lower back and my neck has
a different feel as i move it
i feel the internal cracking
my pain specialist
is on vacation this month
if it does not get better i'll
ask him to order a x-ray
of the shoulder and my
knee
my back i already know
it is L-5 that is out of commission
to the point it is one other surgery
Peterson the surgeon that dropped
me as his patient when my hiccup
in the road being addressed was
the removal of both my breasts
to cancer
cancer was found by me
it was a lump 3:00 right
breast
have had my breast mammo's
every year since i was 40 years old

my God,
my Father,
it may have been my stupidity
but a job need to be done and
i did it and then to take this terrible
fall makes no sense
why have added pain
if i am the one to be here for
them
have taken my meds
still feel pain in shoulder
my left side the only side
that was comfort zone
almost in fetal position
now that is painful as
i do not have the strength
to lift my hips and push
my buttocks backward
sticking outward i needed help
pulling it outward
so i trust you will keep
all moving along
as i try to keep focused
and do all that needs
to be done
i trust you Father
all in your plan
to my dear friends
i have become close to
and the family in general
hear our prayers
i pray for a miracle
and a belly laugh in a day
if it's not much to ask

someone who loves and cares