SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 08-19-2012, 07:32 AM #1
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Quote:
Originally Posted by Elysium1973 View Post
Hello all. New to these forums.
I had an L5-S1 microdiscectomy in may 2011 and at first had total numbness in the left foot. Since, the feeling has returned in the form of constant burning pain and allodynia. When I was with my first PM, he did 2 epidural steroid injections that were supposed to help break down the scar tissue at the S1 nerve root. He performed two and then decided it was time for an SCS trial. At that time I was only on Percocet 10/325 and cymbalta 60mg.
I went to see my neurosurgeon for a second opinion and he said it was way too early to think about doing that and referred me to another PM doc for more medication management. Incidentally, this new PM was the old PM's partner! We live in a small community so everyone kind of knows everybody else.
Anyway, I'm now on Perc 10/325, Lyrica 600mg, and Cymbalta 60mg. He did a sympathetic nerve block that was successful for two days and now the pain is back even worse. Not sure if I'm dealing with CRPS or sympathetically mediated neuropathic pain. Regardless, my question is:

1) do you think it's worthwhile to do the SCS trial?
2) do you think it's worthwhile to do a pain pump trial?

Incidentally, the whole idea behind the SCS is to get "a young person like me" off all narcotics. I'm 39. They also said they wouldn't give me any pain meds for breakthrough pain after getting the SCS put in. If I get the pain pump put in, they told me they would put in lidocaine and clonidine, but nothing else (this is the first PM). The second PM told me he wouldn't put a pain pump inside me, period. He would only consider an SCS if I totally failed everything else.

Very confused.
i am confused with youuuuuuuuuuu
how is a person to trust a doctor
i'm sorry
my status is where pain pump
was recommended
my experience and not
trusting 2 failed surgeries
ACDF 5/6-6/7 PLATE 6 SCREWS
PCDF DONOR BONE AGAIN AND CAGE
MY PAIN AND ADDED COMPLICATION
WITH SOMEONE I TRUSTED
CANNOT DO ANY MORE DO OVERS
now i started with a new team
monday emg new doctors
was left for the birds
hoping for answers

someone who cares
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someone who cares
eva
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Rrae (08-19-2012)
Old 08-19-2012, 08:30 AM #2
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Heart Elys

Please read this in small bites- http://neurotalk.psychcentral.com/th...7854.html:hug:
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Old 08-19-2012, 11:34 AM #3
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Originally Posted by Mark56 View Post
You have a small error at the end of your link that makes it return "Page not found". Here it is corrected, my friends: http://neurotalk.psychcentral.com/thread117854.html


Personally, Elysium, I'm baffled why the doctor is so quick to send you down the pain-pump/SCS pathway. I'm no expert but suffice it to say my doctor exhausted so many methods to shut down my pain...and all throughout the procedures she was formulating a final opinion that SCS was the way to go. How sure is your doctor that SCS will help? Has any kind of nerve-study been done? Has a nerve-block been considered/tried?

Again, I'm not a doctor but these are the things my doctor considered AND tried (nerve-blocks really helped her determine whether SCS is indicated or some long-term treatment that would be more local to the pain). Yes, getting off narc's is a good idea at any age, really, but especially someone young. They really can wrech havoc on your organs over time (liver, kidneys, brain (I hear that's not good! ), etc.).

Don't be afraid to ask questions of your doctor and/or get additional opinions. I don't know where you live but there are sites on the 'Net that you can actually look up various doctors and see if they have a good reputation or if they have a reputation of pushing patients out the door quickly and not really digging deep to find the best answer. Sometimes, to me, it seems rather obvious a doctor is trying to get as much $$ as they can (recommend a large procedure early in the treatment plan) rather than really try to find the best answer for the patient. I'm not suggesting this is occuring with you at all-just suggesting you take a little time, do some research, and be real comfortable with the doctor you're going to. These things can be around for a long time...you want the best care-provider you can have.

For the record I'm NOT trying to talk you (or anyone else) out of the SCS. I'm 48 hours post-permanent implant and am enjoying unbelievable success with it so I'm a believer in the treatment...for the right person/condition.

Hope some of this helps. Pain really stinks!
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Old 08-19-2012, 12:29 PM #4
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I too had Neuro surgery that "went wrong" I.e. failed back surgery and it's left me with drop foot in my lower left leg. I feel no pain howevere, not even sciatic pain which still shoots from my hips down my left leg.

The scs .. Finally, worked for me, but the pain is still there, it's just like someone is massaging your temples when you have a stinker of a headache.

Sadly I had to lose all my wires, paddle lead and battery due to infection, but saw my Neuro surgeon last week who says he will give it another try. Trouble is, there is so much scar tissue on my back he may not be able to do the op.

Fingers crossed,. And for you too ... Loads of people's stories to read on here so settle yourself down and have a good read.
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