SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

Reply
 
Thread Tools Display Modes
Old 08-25-2012, 04:07 PM #1
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Help Medtronic AdaptiveStim Spinal Cord Stimulator

I am thinking it might be a good idea to have a separate thread for this technology. It's very new and patient feedback may be important as time goes on.

Mine went in 8/17 and I was the first patient my pain doctor had implanted with this particular technology. So far the AdaptiveStim (AS for ease) has not been turned on yet - that's supposed to happen later this week.

The one thing that really struck me today is - I wonder if there is anything about this new technology that would cause mine to 'stutter' as I discussed in this other thread.

I'm hoping others with this device will stop out here and post their experiences, good, bad, indifferent.
DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (08-26-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-26-2012)
Old 08-26-2012, 01:53 AM #2
anon21816
Guest
 
Posts: n/a
anon21816
Guest
 
Posts: n/a
Default

Andy I don't have one of these I have a St Jude model, but are you saying the tottering is actually present without the unit being powered up/on ??????
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Dalejrfanil (09-14-2013), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-26-2012)
Old 08-26-2012, 01:32 PM #3
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Thumbs up

Great idea Andy, to start this thread. That way people's eyes will go straight to this, without having to weed thru a bunch of other threads to get bits and pieces of info on this unit.

I sure hope you'll get some answers real soon regarding the stuttering.

Rae
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012)
Old 08-26-2012, 01:38 PM #4
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Default Nope

Quote:
Originally Posted by Jackiey View Post
Andy I don't have one of these I have a St Jude model, but are you saying the tottering is actually present without the unit being powered up/on ??????
No, it only happens when the unit is turned on. Thing is, it happens so bad sometimes it feels like it's been completely turned off...then suddenly it JOLTS back on.

I don't know if I'm being overly hopeful but it seems like maybe it's not happening as much as week 1 post-op ... time will tell.
DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-26-2012), tkayewade (08-26-2012)
Old 08-26-2012, 10:20 PM #5
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Thumbs up

I have a st. Jude eon myself andit would be interested to see how each works. I loooooove mine.
tkayewade is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-27-2012)
Old 08-26-2012, 10:21 PM #6
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

Andy I did have those exact sensations you're describing with a completely different scs. They are gone now. I think scarring helped a lot.
tkayewade is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), DFW_Andy (08-27-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-27-2012)
Old 08-27-2012, 10:49 AM #7
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Default Thanks TK

Quote:
Originally Posted by tkayewade View Post
Andy I did have those exact sensations you're describing with a completely different scs. They are gone now. I think scarring helped a lot.
Thank you very much for that, TK. I was just contemplating this morning really pushing the issue with the Rep but maybe I just really need to be patient. It's tough, though, because I've already gotten to where I tune-out the stimulation sometimes and I'll be be-boppin along and suddenly notice the pain starts showing up and I realize the stim has gone into it's "hic-up" so I have to shift, or something, to bring the stim back online.

I'll try to be patient...in all honesty I think it might be better now than it was immediately post-op so ... 'hang in there, Andy'!

DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (08-27-2012)
Old 08-30-2012, 03:20 PM #8
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
lynn1667 lynn1667 is offline
Junior Member
 
Join Date: Nov 2011
Location: Chicago
Posts: 37
10 yr Member
Thumbs up Hi Andy

I have the Medronic Adapative Stim. I had the surgery in January 2012 and a revision done in April. Medronic just had this type of stimulator approved in December. They "released" the battery after the 1st and still haven't released it from April's surgery. I did like it and I think its amazing that the stimulator knows when you sitting, standing or laying down. You will like it just because you don't get that jolt like you do now when you change positions. I'm just having other problems. They can't seem to program it where I need it. I think its because of all of the surgeries I had and the scar tissue is in the way. I have the pulse set at the highest it will go--1200--and it drains my battery every day. What a pain to have to charge it every day. Well hopefully you will feel better and like the adapative part of the stimulator. Good luck and welcome to the world of SCS's
lynn1667 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), DFW_Andy (08-30-2012), eva5667faliure (09-04-2012), Mark56 (08-31-2012), Rrae (09-02-2012)
Old 08-31-2012, 01:02 AM #9
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Heart Well How COOL Is That?

Two adaptive stims in one neighborhood?!? Wow! I was hoping someone was going to be able to give ON POINT responsiveness to your inquiry and BAM Lynn comes in and bats one out of the park!

I sure cannot fathom the stuttering you have been enduring in your stim. Of course, mine being another type of unit, I have not known anything such as you describe. Just pay attention to the warranty on your unit in case that stuttering does not S T O P; because, if you get real close to the push you are going to be running out of luck if the company is not put on notice.

Why do I harp on a warranty? Oh, I thought no one would ever ask..... it has something to do with the fact of my remote control having died early on in the life of my unit JUST beyond a year after the implant. I got ahold of the company who manufactured my unit and learned "hmmmmm, seems your remote unit is OUT OF WARRANTY Mr. Mark........" Sobering words to hear when you learn the itsy bitsy remote item markets at $1500 a shot. No one had mentioned an "extended warranty" program, so I bought the extended warranty the second time around. Regarding my stim unit itself and its charger, both are working top notch for me. I am pleased as punch.

Now as to the two of you with adaptive technology in your innards, I hope for both of you the stims work Precisely as advertised, that Andy's will settle in if that is what is necessary, and the whole situation will become a good result for the both of you, Andy and Lynn. Adaptive technology, and to think years ago, adaptive technology was this little bit of mercury in a vacuum tube with an embedded wire, all strung on a wheel and armature and they called that little bit of adaptive technology a thermostat. What will they think of next?

Prayin for ya,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (08-31-2012), Rrae (09-02-2012)
Old 08-31-2012, 10:52 AM #10
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Default Lynn/Mark

Thanks to both of you for your response.
Lynn - wow, 1200?!? And having to charge everyday?? Bless your heart! These things take hours to charge! And thanks for letting me know you also experienced the stuttering. I'm cautiously optimistic that it'll go away in time. 'Course I TOTALLY forgot about this thing the other day and bent right down to do something on the floor! MAN was I upset with myself. But - I feel no difference in the stimulation so HOPE I didn't cause any migration of the probes.

Mark - yes, the technology in these things is amazing. I so remember the part of my dad's business that was the Avionics repair center (he owned both Avionics (radio equipment in a plane) and Instrument (how those guys fly in cloudy weather!) and seeing the inside of those radios...and the TUBES everywhere!

I now have the Six Million Dollar Man "running" .MP3 as my ring-tone on my phone! LOL! Couldn't resist.

I often think of Daniel 12:4:
(NASB)
But as for you, Daniel, conceal these words and seal up the book until the end of time; many will go back and forth, and knowledge will increase.”
DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (09-02-2012), eva5667faliure (08-31-2012), Mark56 (09-01-2012), Rrae (09-02-2012)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Need Help RSD & Spinal cord stimulator Jessicav21 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 04-04-2012 07:19 PM
considering spinal cord stimulator sukadog Reflex Sympathetic Dystrophy (RSD and CRPS) 26 06-13-2011 12:47 AM
Spinal fluid leak with spinal cord stimulator lynnieg Spinal Disorders & Back Pain 0 12-14-2009 12:53 PM
Spinal cord stimulator MominPainRSD Reflex Sympathetic Dystrophy (RSD and CRPS) 26 01-26-2009 08:22 PM
Spinal cord stimulator TerriM Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-30-2006 11:00 AM


All times are GMT -5. The time now is 05:00 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.