SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 11-04-2012, 07:41 PM #1
SnowWhyte SnowWhyte is offline
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SnowWhyte SnowWhyte is offline
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Default I hear you!

Hi Ashley, I truly understand your situation- I was 23 when I developed CRPS, (I'm 25 now). When the pain hit, it was like life stopped. Everything changed. I lost many friends, because I was constantly having to turn down plans to 'go out' (aka go to the bars, etc), while I was bed-bound and desperately wanted to go... talk about a double whammy! I also didn't really have hobbies. I did however, get a puppy as part of my pt. If it weren't for him, I'd have had no reason to get out of bed in the morning... he's my best friend, and truly my savior! Now, I'm not saying get a dog, but I was so incredibly lonely, living alone and very isolated, it was one thing that saved me from going over the edge. I've also started scrap-booking. It's actually really fun, and very rewarding (and can be done in bed, although it can get a bit messy). I used to think that it was an 'older person' activity, but it's a great creative outlet.

I'm also seeing a psychiatrist, as I got to a very dark place for a while. It took some time (and one very bad reaction to an anti-depressant), but I'm now on Lexapro and feel much better mentally!

I'm very excited for you and your upcoming SCS- I too am awaiting my SCS trial (to be scheduled next week, for as soon as possible).

I feel very connected to you, as you must also understand the feeling of being young and trapped. Everyone here is so supportive, but it's nice to 'meet' someone else who understands what it's like to be this age, and have everything change. But I assure you, it's not all bad. It's different, and giving up things once loved is heartbreaking, but I hope you'll be able to accept the changes in your life, and see the silver lining, as hard as they are to see sometimes. For example, because of the meds I'm on, I don't drive anymore (for now, anyway), so my dad, who is recently retired, picks me up from my apt and drives me to all my appts, or errands, etc. I see him so often now, which I didn't before, nor would I if not for this. and we've become closer than ever for it. It's just one thing that I can say is positive out of this experience. And I try to focus on things like that, and it's made life ok again.

I'm sorry for rambling, but that's my CRPS meds for ya, lol... Anyway, best of luck to you and your upcoming SCS, I pray it brings you relief.

Colleen
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ashley_r310 (11-04-2012), Mark56 (11-04-2012), Rrae (11-04-2012)
Old 11-04-2012, 10:35 PM #2
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Mark56 Mark56 is offline
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Mark56 Mark56 is offline
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Smile Thank YOU Colleen!!

Beautiful post! Not rambling! Good sharing important stuff, so go, go, go! Giving makes the heart feel lighter in so many ways!

Grateful,
Mark56z
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Rrae (11-07-2012), SnowWhyte (11-05-2012)
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