SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

Reply
 
Thread Tools Display Modes
Old 11-29-2012, 06:00 PM #11
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
tkayewade tkayewade is offline
Member
 
Join Date: Jun 2012
Location: Texas!!!
Posts: 326
10 yr Member
Default

I have 9 programs on mine. I use three. 1 constant, one soft for sleep, and one cycling. I have others that are uncomfortable sensations in a couple, so I just bypass those. Harder in the trial since you don't have as many to choose from though. I hope things get better soon!! Mine works great since revision!
tkayewade is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), eva5667faliure (11-30-2012), Hannabananna (11-29-2012), Mark56 (11-29-2012), Rrae (12-01-2012), SnowWhyte (11-30-2012)
Old 11-30-2012, 12:14 AM #12
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
Thumbs up Reprogramming = Success!

Hey everyone! So I just wanted to let you know that my appt today for the reprogramming of my trial SCS went great! The Medtronic rep was SO patient with me and worked miracles with the unit... today I took TWO pain pills! That's down from 6-7! AND I went out to dinner with my dad and step-mom. It was great... My P.A. came in when I was working with the Medtronic Rep and I was actually receiving about 75% pain relief right on the spot, and she was shocked-looking and exclaimed "It's so great to see you smiling!" (because, of course, usually when I see her I'm in pain, so she doesn't see me smiling often).

Anyway, this has me ecstatic for the permanent stim. Although I know the recovery is much longer and more serious, I know this is my solution! Not 100%, but of course, that wouldn't be appropriate to expect, either. I'm very happy with the approx 75% reduction (at least!)... I still have half of my trial to go, so let's just hope it keeps up this pace!

Thanks to you all for your prayers and well-wishes, I know they are what have helped get me here!!!

~Colleen
SnowWhyte is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), eva5667faliure (11-30-2012), Mark56 (11-30-2012), Rrae (12-01-2012), Saffy (11-30-2012)
Old 11-30-2012, 12:28 AM #13
Njbackpain Njbackpain is offline
Junior Member
 
Join Date: Nov 2012
Location: Mount Holly, NJ
Posts: 68
10 yr Member
Njbackpain Njbackpain is offline
Junior Member
 
Join Date: Nov 2012
Location: Mount Holly, NJ
Posts: 68
10 yr Member
Default

Great news! I was about in tears when my trial was about done. So enjoy your weekend!
Njbackpain is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), eva5667faliure (11-30-2012), Mark56 (11-30-2012), Rrae (12-01-2012), SnowWhyte (11-30-2012)
Old 11-30-2012, 01:01 AM #14
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
SnowWhyte SnowWhyte is offline
Junior Member
 
Join Date: Dec 2010
Location: Wisconsin
Posts: 99
10 yr Member
Default Happy tears or sad tears?

When you say you were in tears when your trial was done... happy tears because it worked, or sad tears because it didn't..?

~Colleen
SnowWhyte is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), eva5667faliure (11-30-2012), Mark56 (11-30-2012), Rrae (12-01-2012)
Old 11-30-2012, 01:15 AM #15
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Heart Isn't it Good?

That blessing we feel during Trial if the therapy is going to work? I was in tears when I realized it worked so very well, then was filled not with tears, but severe trepidation when I KNEW the pain would be back after the Trial was removed.

Doc told me it was good I did show up, not only because the stim ports were infected.... but because otherwise an arrest warrant would have been sworn out for me for theft of the unit.... darn.

Colleen, I am so thrilled for you it has gone quite well.
Prayin yet,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), CoralToe (12-02-2012), eva5667faliure (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012), tkayewade (11-30-2012)
Old 11-30-2012, 07:09 AM #16
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Default trial results

Oh we are all smiling with you Colleen

You took me right back to my trial week..actually 5 days and I did cry when they took it out and I hugged the surgeon.

the hope of relief.......... from the debilitating pain that was stripping my life energy...was now a knowing ....Estatic...yes that is the word!!

Go slow...go easy ...

Johanna
Hannabananna is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), Mark56 (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012)
Old 11-30-2012, 09:14 AM #17
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Heart Good Job Johanna

And I don't think I ever used that smiley Do you think there should be flies circling it?

Seriously though, taking it easy is a good recommendation, while also making sufficient use of the device to ensure the Trial illustrates its breadth of possibility. is appropriate..... with all due care, use that hummer.... or buzzer to its potential learning all range of its benefit.

In great HOPE,
Agape,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon21816 (11-30-2012), eva5667faliure (11-30-2012), Hannabananna (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012)
Old 11-30-2012, 04:01 PM #18
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by Mark56 View Post
And I don't think I ever used that smiley Do you think there should be flies circling it?

Seriously though, taking it easy is a good recommendation, while also making sufficient use of the device to ensure the Trial illustrates its breadth of possibility. is appropriate..... with all due care, use that hummer.... or buzzer to its potential learning all range of its benefit.

In great HOPE,
Agape,
Mark56
and that operative word of course is HOPE
extending the same
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012)
Old 11-30-2012, 04:17 PM #19
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Default my job on this board

[QUOTE=Mark56;935817]And I don't think I ever used that smiley Do you think there should be flies circling it?

oh I have been waiting to use it too!!!

oh yes..flies...LOL

and this one too

Jo*
Hannabananna is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (11-30-2012), Mark56 (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012)
Old 11-30-2012, 04:21 PM #20
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
DFW_Andy DFW_Andy is offline
Member
 
Join Date: Jul 2012
Location: Take a wild guess!
Posts: 131
10 yr Member
Default Yeeeeee-hawwww!!!!

Sorry I've been absent from the board but I sure have been thinkin/prayin for y'all and this is WONDERFUL News to come back to, Colleen!!

I'm prainin God all the way down to my boots! (well, ain't wearin 'em but you git the idea!!)

Thanks for keepin us posted!
__________________
YEEEE-HAW!!!
Android-Andy

.
DFW_Andy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (11-30-2012), Hannabananna (12-01-2012), Mark56 (11-30-2012), Rrae (12-01-2012), SnowWhyte (12-01-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SCS Trial Lisa in Ohio Reflex Sympathetic Dystrophy (RSD and CRPS) 7 12-16-2010 11:21 PM
DBS Trial Enrollment - Boston Scientific Begins Patient Enrollment in Clinical Trial CarolynS Parkinson's Disease Clinical Trials 0 11-09-2010 06:45 PM
WC Trial catra121 Reflex Sympathetic Dystrophy (RSD and CRPS) 6 08-11-2010 03:04 PM
CLINICAL TRIAL...Phase III Trial with Pimavanserin in Patients with PD Psychosis Stitcher Parkinson's Disease Clinical Trials 0 06-16-2007 12:23 AM


All times are GMT -5. The time now is 04:12 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.