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NeuroTalk Support Groups (https://www.neurotalk.org/)
-   SCS & Pain Pumps (https://www.neurotalk.org/scs-and-pain-pumps/)
-   -   SCS Trial- How it went... (https://www.neurotalk.org/scs-and-pain-pumps/180264-scs-trial.html)

tkayewade 11-30-2012 07:51 PM
Lol mark! I too, did not want to return mine!! I'm glad it's working for you. I'm not sure if you're a crps chickie or not, but my perm gives me 85-90 relief in my legs. Very few pain meds!! Bad news is I have it in right arm. They think I have back spread but I am ignoring that theory lol. I'm glad You're doing great. Recovery is worth it!!!

TK

:hug::D

eva5667faliure 11-30-2012 11:44 PM
[QUOTE=Hannabananna;935937]
Quote:
Originally Posted by Mark56 (Post 935817)
And I don't think I ever used that smiley :deadhorse: Do you think there should be flies circling it?

oh I have been waiting to use it too!!!

oh yes..flies...LOL

and this one too :deadhorsebeat:

Jo*
loving it!!!

Njbackpain 12-01-2012 12:25 AM
Quote:
Originally Posted by SnowWhyte (Post 935766)
When you say you were in tears when your trial was done... happy tears because it worked, or sad tears because it didn't..?

~Colleen
Sad because it was coming out. Sorry for not being clear.

Dean

Mark56 12-01-2012 12:47 AM
That I understand Dean
 
Approaching the end of Trial removal is definitely a torror eposonde for any who have been served well by the SCS therapy. I felt as though I was travelling to my doom as I was driven that day to the appointment to remove the Trial..... even thorugh the Trial had resulted in puss filled infection at the entry points to my spine.

I am so sorry for the feeling you mention Dean,
Mark56:hug:

mattdcarpenter 12-01-2012 12:47 AM
Scs
 
Hi Colleen,
I'm new on here and wanted to share a few thoughts about my SCS.
I'm 38 and have experienced extremely painful for peripheral neuropathy for some time, going on 12 years. About a year ago I had the spinal cord stimulator installed permanently in my back for the neuropathy. I was very hopeful, especially during the trial. I'm not having luck with the device at this point. I'm following up with the company now. Do you have burning neuropathy, on foot soles? I'm very hopeful for you!!!
Matt

Quote:
Originally Posted by SnowWhyte (Post 934944)
Well, it's day one of my SCS trial and it went shockingly well! This time (as opposed to other procedures at same facility) the nurse anesthetist was AMAZING, they (yes I had two all to myself!) did their job perfectly, and I hardly even remember most of the surgery. My rep is great. and all in all I don't think the surgery could have gone much better!

The only issue I had was a moderate headache post-op for which they asked me what I'd prefer (they offered me percocet, but I requested Vicodin instead, as it seems to work better for me, which it did. They gave me two and it cleared it right up! Then after all of the discussions with the Medtronic rep, my dad and I dropped off my Rx at Walgreens and had breakfast at McDonalds next door, that's how good I felt!

I'm now getting some back soreness, but nothing too major. I'm really shocked about how minor it is! I feel so blessed, and am thankful to all of you for your prayers, as I'm sure they played a roll in this working out so well. :grouphug:

And as for the SCS...So far, I LOVE IT!!! :D


~Colleen

DFW_Andy 12-01-2012 12:51 AM
Yuppers!
 
I remember being very sad about trial coming out. When I went in for the 1-week check doc asked, "So how's the trial going?" She barely had the words out of her mouth and I shot back with, "When can we do the implant!!" She's one that believes you must wait 2 weeks but not more than 3 (due to scar tissue beginning to build up from the trial) and we had it scheduled exactly 14 days from trial being removed.

Time goes fast - even when it's painful. I hope you're able to get the implant quickly, Dean, so you don't have to suffer for too long. Once someone finally experiences relief the one thing you don't want to do is go back to feeling all that pain again!

God bless

Njbackpain 12-01-2012 01:06 AM
Actually I told the dr about crying and she was upset and asked why. I stated: because it worked so good!

SnowWhyte 12-01-2012 02:15 AM
Matt...
 
Hi Matt!

I actually have CRPS/RSD in my L foot which spread to my L leg and R leg... But that does equate to burning neuropathy basically in my foot, just not "peripheral neuropathy" diagnosis. If that makes sense...

I hope your SCS will work for your after some "tweaking" from your company rep! I know that for my trial, after seeing my rep for the second time (the first being during surgery), my pain management increased by approx 50%! So I'm at now at least at 75% pain reduction! Whereas before seeing her to get it adjusted I honestly worried if maybe this wouldn't really work for me... So I hope you have to same great experience when you see your company rep, hopefully they can get yours working well for you!!! I'll be praying for you! :grouphug:

Anyway, I'll keep posting with my updates, but for now things are still great... with the exception of the tape COVERING my entire back, from top to bottom, side to side, and it ITCHES! but I can live with it for the pain relief I'm getting :D

As always, thank you for all of your prayers, as you all remain in mine!

~Colleen :)

DFW_Andy 12-01-2012 02:18 AM
Tears of joy
 
Quote:
Originally Posted by Njbackpain (Post 936047)
Actually I told the dr about crying and she was upset and asked why. I stated: because it worked so good!

Believe me, after over 3 decades of dealing with chronic pain I have shed many tears of joy at finally getting not only an accurate diagnosis (something that eluded every doctor that's ever taken a shot at trying to figure it out) but also significant relief. For me it's an answer to a prayer that, quite frankly, I had stopped praying for relief. I had truly accepted that this was my 'cross to carry' and I was in good spirits about it. In fact very few around me that knew me in a casual way (e.g. coworkers) knew I was dealing with pain...I hid it quite well most of the time.

Mark56 12-01-2012 08:29 AM
Wonderful Encouragement Colleen!
 
Quote:
Originally Posted by SnowWhyte (Post 936053)
Hi Matt!

I actually have CRPS/RSD in my L foot which spread to my L leg and R leg... But that does equate to burning neuropathy basically in my foot, just not "peripheral neuropathy" diagnosis. If that makes sense...

I hope your SCS will work for your after some "tweaking" from your company rep! I know that for my trial, after seeing my rep for the second time (the first being during surgery), my pain management increased by approx 50%! So I'm at now at least at 75% pain reduction! Whereas before seeing her to get it adjusted I honestly worried if maybe this wouldn't really work for me... So I hope you have to same great experience when you see your company rep, hopefully they can get yours working well for you!!! I'll be praying for you! :grouphug:

Anyway, I'll keep posting with my updates, but for now things are still great... with the exception of the tape COVERING my entire back, from top to bottom, side to side, and it ITCHES! but I can live with it for the pain relief I'm getting :D

As always, thank you for all of your prayers, as you all remain in mine!

~Colleen :)
OH PLEASE DO continue with regular updates and sharing regarding your walk, for in the sharing the knowledge base here becomes more so enhanced and we ALL Learn. Thank you Colleen for your bravery and steadfast resolve to help all find best solutions through what you learn personally.
YOU ROCK :You-Rock:
Uh huh,
Yup,
Prayin as you follow the path,
Mark56:hug::grouphug:


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