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-   -   SCS Trial- How it went... (https://www.neurotalk.org/scs-and-pain-pumps/180264-scs-trial.html)

Mark56 12-01-2012 08:35 AM

Tears of Joy Worth The Sharing
 
Quote:

Originally Posted by DFW_Andy (Post 936054)
Believe me, after over 3 decades of dealing with chronic pain I have shed many tears of joy at finally getting not only an accurate diagnosis (something that eluded every doctor that's ever taken a shot at trying to figure it out) but also significant relief. For me it's an answer to a prayer that, quite frankly, I had stopped praying for relief. I had truly accepted that this was my 'cross to carry' and I was in good spirits about it. In fact very few around me that knew me in a casual way (e.g. coworkers) knew I was dealing with pain...I hid it quite well most of the time.


OH YEAH Yee Haw Andy! Your tears are definitely worth the sharing, for in the sharing, gratitude ooozessss from your every pore in testament you know whence your delivery came. Life with effective non-medicinal pain management.... what a sure and providential blessing. Thank you for sharing your vulnerability to expressing through tears of joy the blessing.
Prayin thanksgiving,
Mark56:hug::grouphug:

Mark56 12-01-2012 08:41 AM

WELCOME Matt!!!
 
:welcome_sign:
Quote:

Originally Posted by mattdcarpenter (Post 936040)
Hi Colleen,
I'm new on here and wanted to share a few thoughts about my SCS.
I'm 38 and have experienced extremely painful for peripheral neuropathy for some time, going on 12 years. About a year ago I had the spinal cord stimulator installed permanently in my back for the neuropathy. I was very hopeful, especially during the trial. I'm not having luck with the device at this point. I'm following up with the company now. Do you have burning neuropathy, on foot soles? I'm very hopeful for you!!!
Matt

Please stay and dwell with us sharing your thoughts, experience, what unfolds. Colleen gives great encouragement regarding "take it to the rep" to work toward possible resolution by tweak or revision. If the Trial was indicative of a definite go, there has to be something which cries out for addressing to help you realize the benefit indicated by the Trial.

Thank you for joining the discussion here, and do please feel welcomed :welcome_sign::Good-Post: among this group which cares and CARRIES gently the concerns, needs, and emotions of each who need prayer and support. You are valued and we want to heap blessings upon you,
Prayin ever,
Mark56:grouphug:

Rrae 12-01-2012 11:58 AM

Hi Matt!
 
Yes, WELCOME aboard! Your input is greatly appreciated.
I'm sorry you are having this trouble with your unit. Please keep us updated on how this goes for you. We CARE!

Rae
:hug:

Rrae 12-01-2012 12:09 PM

Colleen!
 
Your trial is thrilling the heck outta us!! I've been absent for a coupla days and look at all these posts I've missed!
I know this can be a bit of a rollercoaster, with the excitement one day, pain the next, uncertaintly the next, discouragement the next, and the pure elation after having been tweeked and seeing that this thing WILL work out afterall!

Regarding the end of the trial, yes, this is probably when you'll need an outpouring of support the most, as it is definately a downer.

Has Mark mentioned the bit about how the law enforcement have been called in on some occasions because the patient refused to give the trial unit back! Am I right on this Mark?
I found that to be very intriguing.

Rae
:grouphug:

Mark56 12-01-2012 01:07 PM

Yup- Depity Dawg and Barney Fife
 
You see, the Trial unit is owned by the manufacturer, as distinguished with the permanently implanted product. For this reason, if a patient enjoys wearing tape all over the body to hold things in place while receiving wondrous results and think they will get outa Dodge...... then a bench warrant for arrest is issued to bring the erstwhile "thief" into custody.

And that's the way it is,
Mark56;)

SnowWhyte 12-01-2012 07:33 PM

Medtronic Fugitive...
 
Mark... That is so funny! but when I think about it, it's understandable, as I do NOT want to give mine back! But then again, the tape is KILLING me (it itches!!! but as my P.A. pointed out- at least it's not summer, and I'm not sweating under it!).

Anyways, I also have an aunt that works for Medtronic- (the same brand temp SCS as yours truly has), so I'm not sure that I'd make it long on the run from them! lol.. Although I am surely saddened at the thought of giving it back. :(

However, I must force myself to look to the future, forward towards the permanent implant, which will, of course, be sans tape! Yay for that! Must focus on the positive!

~Colleen :)

Rrae 12-01-2012 07:51 PM

Daa's RIGHT.....focus!

What does your Aunt do for Medtronic? Is she in customer service, or is she an actual Rep?
Just curious, as this is my brand also :p

Rae
:grouphug:

Mark56 12-01-2012 10:59 PM

:hug:
Quote:

Originally Posted by SnowWhyte (Post 936193)
Mark... That is so funny! but when I think about it, it's understandable, as I do NOT want to give mine back! But then again, the tape is KILLING me (it itches!!! but as my P.A. pointed out- at least it's not summer, and I'm not sweating under it!).

Anyways, I also have an aunt that works for Medtronic- (the same brand temp SCS as yours truly has), so I'm not sure that I'd make it long on the run from them! lol.. Although I am surely saddened at the thought of giving it back. :(

However, I must force myself to look to the future, forward towards the permanent implant, which will, of course, be sans tape! Yay for that! Must focus on the positive!

~Colleen :)

Well Hey Colleen, ya know....... ifn you did do the fugitive justice thing..... maybe we would eventually see you on Cold Case Files..... and there would be this sorta pathetic long blond haired dude strutting mean and playin like he would come after you and hoist you up with his bounty hunter claws to take the unit away with his tow truck..... :D

Truly, that couple of weeks will pass and your permanent should be able to be scheduled, while in the meantime you can have auntie see whether there is a friends and family plan to provide a discount.:) Of course, if there was, you would become VERY popular over night....:D

Oh, and about summertime, when the temperture swelters, kids were jumpin, and my back was so wet...... I had infection, and my body was pus-eee, so be very happy, you have tape in late autumn time..... [Sing it to Summertime].
Yeah, mine was in June, and I think it could have been that perspiration which led to the infection which developed on my back. Awful.

Prayin you get the perm soon,
Mark56:hug::grouphug:

Mark56 12-01-2012 11:02 PM

See Colleen.....?
 
Quote:

Originally Posted by Rrae (Post 936200)
Daa's RIGHT.....focus!

What does your Aunt do for Medtronic? Is she in customer service, or is she an actual Rep?
Just curious, as this is my brand also :p

Rae
:grouphug:

Yup :D questions about discounts, miles, S&H Green Stamps [Oh, you are too young to know what those are.....:( ] sigh......... popular....... people knocking at your door ;) next thing you know, you will be on the cover of People magazine :cool: .
Uh huh,
Mark56:eek:

eva5667faliure 12-02-2012 01:16 PM

Quote:

Originally Posted by Mark56 (Post 936249)
Yup :D questions about discounts, miles, S&H Green Stamps [Oh, you are too young to know what those are.....:( ] sigh......... popular....... people knocking at your door ;) next thing you know, you will be on the cover of People magazine :cool: .
Uh huh,
Mark56:eek:

thanks again for the belly laugh
S&H STAMPS
loved it being i did the shopping
for my mom
i would love to get gifts
and the products were nice
belly laugh
thanks
wishing all well at the home front
and sooooooooo happy to hear
positive SCS reports

your friend
to a wise man
someone who cares


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