SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 03-25-2013, 12:25 PM #1
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There is another thing ... called a Dorsal root Ganglion http://www.dovepress.com/getfile.php?fileID=12054

It's a little like a scs but based lower down as they cannot get into my back any more.

I am seeing the surgeon on Thursday so will see what he says. It's a VERY new operation and they don't know the long term effects .. i.e. I would be a guinea pig .. weeep weeeep.

I'm open to anything at the moment.
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Old 03-25-2013, 03:07 PM #2
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Poor Saffy!

I'm so sorry. What are the possible effects if it doesn't work?

I remember you couldn't get your scs. I felt(and still feel) terrible about that.

I wish you luck. I have never heard of it, but I don't blame you. I would want to do anything to stop the pain!!

TK
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Old 03-25-2013, 05:57 PM #3
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Quote:
Originally Posted by Saffy View Post
There is another thing ... called a Dorsal root Ganglion http://www.dovepress.com/getfile.php?fileID=12054

It's a little like a scs but based lower down as they cannot get into my back any more.

I am seeing the surgeon on Thursday so will see what he says. It's a VERY new operation and they don't know the long term effects .. i.e. I would be a guinea pig .. weeep weeeep.

I'm open to anything at the moment.
always praying for a miracle
and for you i'll do the same
a heavy cross to carry

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Old 02-18-2013, 01:55 PM #4
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Quote:
Originally Posted by dawngri View Post
Has anyone out there had a bad experience with the SCS? After all my back surgeries due to an accident, my NS recommended an SCS for the pain.

The trial was fabulous. But the permanent implant was a disaster. ......I got home and vomited for 12 hrs. This misplaced one side of the wires. So every time I turned it on, my chest wall was being zapped.

As you can imagine, horrible things were happening. I stopped using it and after a few weeks, the tech asked the doc to check with X-ray, and the migrated wires were found.........the doc sent me home using just the good side....

Yet still, I used it only twice....I have severe muscle spasms in my back, chest, other places and stabbing chest wall pain........Then I stopped using it and still the symptoms continued................when I began losing control of my legs, it was removed................only 45 days after implant.

But I still have horrible non stop muscle spasms and can not tolerate any minor temperature change........I go from freezing shaking chills to being a furnace in a matter of minutes.........now it is 4 months later, still no better....

The anesthesiologist that placed the SCS and my NS, both said they have never seen this happen before.............
Now back to the pain which is worse than before the surgery in addition to the other problems that began with the SCS...........

Anyone out there have this problem?????????.

DAWN
Dear Dawn
i am sooooooo
sorry
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miracle

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Old 03-24-2013, 02:21 PM #5
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Exclamation Spinal Cord Stimulator Damage

I have made an Adverse Event Report to the FDA due to the injuries caused by my spinal cord stimulator................the report is complete and online at the FDA MedWatch site....................
I urge all of you suffering from the SCS to file a report. .......
This is the only way the physicians will make an effort to find out why we have debilitating injuries, find out how to help, heal and prevent such horrific damage.................
Send me a personal message and I will be glad to help you file, it only takes a few moments online.
Still suffering after 7 months post removal.....................Dawn G
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Old 03-24-2013, 04:27 PM #6
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I'm so sorry yours didn't work and damaged you so. I have two, and I would be lost without either of them. My rep(I have INS/st. Jude's) says they are usually love/hate for my disease (crps now dx full body complete with gastro paresis) anyway, I'm so sorry and I hope your pain eases. My pain levels were off the scale before I had my devices implanted. My dr. Says there are so many factors at play. I got blood clots during my revision. Not everything works foR everyone. I wish you luck. Again, I'm sorry!!

TK

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