SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 03-13-2013, 01:34 PM #1
fionab fionab is offline
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He said that the only way he would do epidurals in my cervical area was if I had the cervical SCS and its leads removed. He asked if I thought I'd get more pain relief with epidurals given that the cervical SCS is not helping my pain as much as I need. Will have to think about this
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Old 03-15-2013, 07:49 AM #2
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I absolutely get it
have it
take it off everyday
and the head
i experience right ear
and jaw ache
there are certain i have
just learned to live with it
pray for a miracle

someone who cares
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eva
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Old 03-15-2013, 08:23 AM #3
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Heart Ummmmm yeah

Quote:
Originally Posted by fionab View Post
It ended up being just a consultation as he didn't feel that doing the pain generator test would be beneficial. I think I mentioned it was to be a nerve block using an anesthetic to see if I got temp. pain relief in neck so they could clarify which nerves are the problem.

He said that there was no point in doing it because even if I did get relief there would be little he could do given the SCS leads in my cervical area. I asked about getting epidural shots and he says he would not give them to me as it's too easy to nick the cervical leads or cause an infection on the cervical leads and he wasn't going to take that chance.

The other option is to do an ablation but he would rather have the dr. who implanted the SCS's resume my care and talk about that possibility with me. I'm rather bummed because I thought epidural shots every few months would be an easy remedy.

This dr. did say that a last resort is to have a fusion where the problem nerves are. I thought a fusion was just for a ruptured/herniated disk but he says they are also done to open up the space around the nerve to give it more room. He suspects the main culprit is C7-T1 (which is what is affecting my arms/hands/upper back) and that the nerves at C3-4 were brought into play when another doctor twisted my head/neck. He says the nerves at C3-4 are what affects the jaw, teeth, face etc. Hopefully those nerves will calm down in time but given the fact that they were so easily irritated may indicate they are problematic and were just waiting to become a problem.

He did think that I have a separate shoulder issue, so will continue getting the steroid shots into my shoulders. So, will keep on trying to figure things out

Thanks for your prayers, Mark

How are things going for you, Pooh?
That was the reason for my cervical fusion last Aug. Too tiny a space left for my nerve roots, so the arms were losing function while pain was out of the roof.

Prayin your nerves will just calm. Kinda hoping the same for my right arm, as the nerve has been a bad little kid and hurting to beat the band. Don't especially want anymore surgery, just working with physical therapy to see if it will calm.

Prayin yet for FIONA

AND

for POOH

Yup
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Old 03-24-2013, 11:47 PM #4
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Hi Pooh and Fiona
I had RFA in Dec. 2012 on the right side and in Jan. 2013 on the left side on my facet nerves.
I hurt my back twisting and lifting May 2012 and had a series of 4 steroid injection which didn't help at all. The pain just kept getting worse. At first I didn't think the RFA helped but over time I have gotten tremendous relief. I have heard the relief can last from a month or two and up to two years. At this point I get the feeling my lower back gets stuck and kind of locks in place when I reach or bend but it only lasts a few seconds and then releases but no real pain. I hope it lasts!
I do know of someone who has it done every three months to control his back pain.
During all this I learned that the steroid injections can cause spotting for some women. This side effect wasn't mentioned until I mentioned it to my Dr.

Good luck. I hope you find relief. Nursing is such hard work with out pain, I don't know how you manage with the pain.

Sandy Kay
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Old 03-26-2013, 08:28 PM #5
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Help Well #$@#$#@!!!

Nothing seems to be helping me tonight. Heating pad on high, SCS turned up to its own ouch, Lortabs taken as often as I dare and more Motrin then is good for my liver and kidneys.
I see the man tomorrow. Don't have any options but to try the ablation. Talked with our CRNA (the man with the goodies to make you sleep and not care during surgery) A man I respect and trust. I would allow him to "put me to sleep" any time. I feel that is saying something for a cynical old nurse to say. Said he felt like the ablation would be worth a try. I am so torn. I see/hear anything and everything from: "It did no good"..."It hurt more then my pain before" to "was wonderful and no worse then a block" there is also the return of the pain anywhere from three weeks to 2 years.
I know all to well that the pain returns with a vengeance when it returns. Not wanting to repeat that "fun" EVER AGAIN! Not sure I can handle that again. But I am not sure how much longer I can do "this". Frustrated that I can relieve others pain at work, but do not seem to be able to control my own
Well enough whining from me.
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Old 04-28-2014, 10:45 PM #6
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Default Rfa

Quote:
Originally Posted by pooh_ac View Post
As many of you know I am struggling with an area in my left hip that seems to be getting worse despite multiple changes in medication, too many nerve blocks to count and multiple trips 200 miles one way to see my wonderful pain doc and his lovely PA. This last visit I saw my docs partner, she stated that I have had "far" too many blocks and steriod injections. She feels that I need to have a nerve ablation. From what little research I have done it does not look like something this darned old nurse wants to proceed with. However I am not sure how much longer I will be able to continue my work in surgery, on the acute care floor and in the ER.....
I guess I just want to hear what the thoughts round here are about this "lovely" procedure

z
Hi! I am new here. I had an RFA on my left cervical/shoulder a couple of weeks ago, and have experienced about 80% relief. I get the right side done next week and hope it is as successful.
Tomorrow I am having the trial SCS by Boston Scientific put in. I hope it works.
I think the RFA is worth trying. Hope this helps.

Nancy
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Old 04-29-2014, 09:36 AM #7
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Default hey there

Hi Nancy,
welcome and so cool that you just jumped right in.

What SCS unit are you doing a trial for?

So wonderful to hear that you have found relief for some of your pain.

Do tell us all about your journey...I enjoy our connections here and do hope you keep right on jumping in!!

Hannabananna
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