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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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#1 | ||
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Love Light and prayer Saffy. Statements and letters that say I'm sorry there is nothing else we can do are so hard to comprehend. God willing there will be something in the future to help. Here is a prayer my friend gave to my husband in some of his darkest times years ago. It's now my prayer.
Sandy Kay A PRAYER FOR HEALING Lord, You invite all who are burdened to come to You. Allow Your healing hand to heal me. Touch my soul with Your compassion for others. Touch my heart with Your courage and infinite love for all. Touch my mind with Your wisdom, that my mouth may always proclaim Your praise. Teach me to reach out to You in my need. Help me to lead others to You by my example. Most loving Heart of Jesus, bring me health in body and spirit so that I may serve You with all my strength. Touch gently this life which you have created. Amen |
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"Thanks for this!" says: | eva5667faliure (04-09-2013), ginnie (04-10-2013), Hannabananna (04-09-2013), Mark56 (04-10-2013), Rrae (04-23-2013), Saffy (04-12-2013) |
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#2 | |||
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Grand Magnate
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Quote:
with others i have taken on thank you for sharing such a humbling way to have him LORD HEAR OR PRAYERS AMEN LIVE LIFE AS IT IS GIVEN TO YOU REACH OUT AND ASK AND WE SHALL RECEIVE THY WILL BE DONE
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someone who cares eva Last edited by eva5667faliure; 04-09-2013 at 07:23 AM. Reason: TYPO |
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#3 | |||
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Grand Magnate
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Showered upon and over you in buckets full,
you are surrounded by prayer that this will sort out that all will be well and that all manner of things, and hardships, and pains, and anger will ultimately be overcome AND that caregivers who instead of "doing first no harm" inflict it, be taken to task by those who are meant to keep humanity safe from poor practices. Prayin, Mark56 ![]() |
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"Thanks for this!" says: |
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#4 | ||
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I'm so sorry to hear you're going through all this. Even with having two SCS's, I still have to go in for a double cervical fusion so can understand your frustration at things continuing to go on and on. We hope that we will finally come to the end of the road with our pain/suffering and when it doesn't happen it can be hard to deal with. And when your dr. says there's nothing more that can be done...well, I can only imagine the hopelessness you may be feeling. Please know that we are all praying for you!
![]() ![]() I'd like to pass on a suggestion, if I may, in case you have to forego any more surgical intervention and simply rely on pain medication for pain management. Several years ago my PCP told me she could no longer be my dr. because I was too complicated of a patient for her (I have other medical issues other than spine problems). I searched and searched for a dr. who would accept me as a new patient to no avail. Too complicated, they all said. I finally came across a dr. (I know it was the Lord's intervention) who is actually a hospice dr. He is now my PCP. Although he works with hospice, he is great for me because he is compassionate (would have to be to work in hospice), but is also very educated on helping patients deal with pain issues and does not downplay one's pain but tries to find adequate pain relief. In fact, he'll be overseeing my pain mgmt. needs after this upcoming cervical fusion. All that to say this, you may find help with pain mgmt. if you can link up with a hospice dr. that would be willing to work with you. My hospice dr. also sees non-hospice patients so maybe you could find a hospice dr. that also sees non-hospice patients. Would be worth looking into and if found, could offer much needed help for good pain mgmt. God bless you and keep you ![]() ![]() Last edited by fionab; 04-11-2013 at 10:10 AM. Reason: typo |
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"Thanks for this!" says: | eva5667faliure (04-12-2013), ger715 (04-20-2013), Hannabananna (04-11-2013), Mark56 (04-12-2013), Rrae (04-23-2013), Saffy (04-12-2013) |
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#5 | |||
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It's funny isn't it .. how, when you are needing someone, someone or something, steps into your life - for a reason.
I'd been to see the Doctor today. She told me that there was nothing else she could really give me and is writing to the Chronic Pain Clinic at Sheffield to ask them now that Dr. Atcheson (my previous specialist) has now left, to ask for someone to see me. I read this letter on her computer and asked if she would run a copy of for me. Basically, when I last saw my surgeon and he said that there was no operation he would give me and therefore there is little they can do at this point. This is the letter my Surgeon wrote to Mr. Atcheson, my Pain Specialist and anaesthetist. He is the one responsible for placing the leads in my spine. Dear Rob, I reviewed this lady in the clinic today who we have discussed on several occasions in previous MDT meetings. Unfortunately due to the epidural scar tissue she would no longer be a candidate for insertion of a dorsal column stimulator, whether lead or paddle, and as matters stand currently there are no other surgical options that would be appropriate for her. We have discussed other technologies such as dorsal root ganglion stimulation, but for the reasons we discussed pertaining to events from her previous admissions, I would not consider a candidate of this particularly as it is a completely new and untried technology in our hands. Her operative would have healed well and as there is little further that I can do at this point in time I have discharged her from my follow up care. I wish her all the best. Yours sincerely, John Yiannis Consultant Neurosurgeon I was crying as I came our of the doctor's room, and there stood an old friend who opened his arms and held my whilst I cried buckets in the full surgery waiting room. I felt his love and it soothed me ... Derek, thank you .. wherever you are now. |
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"Thanks for this!" says: | eva5667faliure (04-22-2013), ger715 (04-22-2013), ginnie (04-22-2013), Hannabananna (04-22-2013), Rrae (04-24-2013) |
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#6 | |||
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Grand Magnate
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may you find comfort any way you can may a miracle happen in your case new devices are considered old after a year may something come forward where they can do something when someone is scarred as badly like yourself call upon me anytime GOG BLESS someone who cares
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someone who cares eva |
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#7 | ||
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To lift us...hold us....and remind us how precious we are in the world.
A blessing for sure. Miracles are supposed to happen!!!! Sometimes I forget that. Johanna |
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"Thanks for this!" says: |
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#8 | |||
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Grand Magnate
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you are among many who believe as i hope and pray for it and always remember to thank God Almighty praying for miracles trust in Jesus Christ who hung to his death for our sins oh thank you merciful LORD THY WILL BE DONE YOU ARE A BLESSED MIRACLE johanna someone who cares
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someone who cares eva |
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#9 | ||
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Magnate
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How lovely; can feel the love you shared with Derek all the wayyyy across the pond. No conincidence he just happened to be there when you came out of the doctor's room. Gerry |
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