SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

Reply
 
Thread Tools Display Modes
Old 04-09-2013, 03:06 AM #1
Sandy Kay Sandy Kay is offline
Member
 
Join Date: Jul 2011
Location: Southern California
Posts: 263
10 yr Member
Sandy Kay Sandy Kay is offline
Member
 
Join Date: Jul 2011
Location: Southern California
Posts: 263
10 yr Member
Default

Love Light and prayer Saffy. Statements and letters that say I'm sorry there is nothing else we can do are so hard to comprehend. God willing there will be something in the future to help. Here is a prayer my friend gave to my husband in some of his darkest times years ago. It's now my prayer.
Sandy Kay

A PRAYER FOR HEALING
Lord,
You invite all who are burdened to come to You.
Allow Your healing hand to heal me.
Touch my soul with Your compassion for others.
Touch my heart with Your courage and infinite love for all.
Touch my mind with Your wisdom, that my mouth may always proclaim Your praise.
Teach me to reach out to You in my need.
Help me to lead others to You by my example.
Most loving Heart of Jesus, bring me health in body and spirit so that I may serve You with all my strength.
Touch gently this life which you have created.
Amen
Sandy Kay is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-09-2013), ginnie (04-10-2013), Hannabananna (04-09-2013), Mark56 (04-10-2013), Rrae (04-23-2013), Saffy (04-12-2013)
Old 04-09-2013, 07:23 AM #2
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by Sandy Kay View Post
Love Light and prayer Saffy. Statements and letters that say I'm sorry there is nothing else we can do are so hard to comprehend. God willing there will be something in the future to help. Here is a prayer my friend gave to my husband in some of his darkest times years ago. It's now my prayer.
Sandy Kay

A PRAYER FOR HEALING
Lord,
You invite all who are burdened to come to You.
Allow Your healing hand to heal me.
Touch my soul with Your compassion for others.
Touch my heart with Your courage and infinite love for all.
Touch my mind with Your wisdom, that my mouth may always proclaim Your praise.
Teach me to reach out to You in my need.
Help me to lead others to You by my example.
Most loving Heart of Jesus, bring me health in body and spirit so that I may serve You with all my strength.
Touch gently this life which you have created.
Amen
thank you Sandy

with others i have
taken on thank you
for sharing such a humbling
way to have him
LORD HEAR OR PRAYERS
AMEN
LIVE LIFE AS IT IS GIVEN TO YOU
REACH OUT AND ASK AND WE SHALL
RECEIVE
THY WILL BE DONE
__________________
someone who cares
eva

Last edited by eva5667faliure; 04-09-2013 at 07:23 AM. Reason: TYPO
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (04-10-2013), Mark56 (04-10-2013), Rrae (04-23-2013), Saffy (04-12-2013)
Old 04-10-2013, 08:49 AM #3
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
15 yr Member
Heart Prayers Abundantly

Showered upon and over you in buckets full,
you are surrounded by prayer that this will sort out
that all will be well
and that all manner of things, and hardships, and pains, and anger
will ultimately be overcome
AND that caregivers who instead of "doing first no harm" inflict it,
be taken to task by those who are meant to keep humanity safe
from poor practices.
Prayin,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-10-2013), ginnie (04-10-2013), Rrae (04-23-2013), Saffy (04-12-2013)
Old 04-11-2013, 10:05 AM #4
fionab fionab is offline
Member
 
Join Date: Feb 2010
Posts: 487
15 yr Member
fionab fionab is offline
Member
 
Join Date: Feb 2010
Posts: 487
15 yr Member
Default

I'm so sorry to hear you're going through all this. Even with having two SCS's, I still have to go in for a double cervical fusion so can understand your frustration at things continuing to go on and on. We hope that we will finally come to the end of the road with our pain/suffering and when it doesn't happen it can be hard to deal with. And when your dr. says there's nothing more that can be done...well, I can only imagine the hopelessness you may be feeling. Please know that we are all praying for you!

I'd like to pass on a suggestion, if I may, in case you have to forego any more surgical intervention and simply rely on pain medication for pain management. Several years ago my PCP told me she could no longer be my dr. because I was too complicated of a patient for her (I have other medical issues other than spine problems). I searched and searched for a dr. who would accept me as a new patient to no avail. Too complicated, they all said. I finally came across a dr. (I know it was the Lord's intervention) who is actually a hospice dr. He is now my PCP. Although he works with hospice, he is great for me because he is compassionate (would have to be to work in hospice), but is also very educated on helping patients deal with pain issues and does not downplay one's pain but tries to find adequate pain relief. In fact, he'll be overseeing my pain mgmt. needs after this upcoming cervical fusion.

All that to say this, you may find help with pain mgmt. if you can link up with a hospice dr. that would be willing to work with you. My hospice dr. also sees non-hospice patients so maybe you could find a hospice dr. that also sees non-hospice patients. Would be worth looking into and if found, could offer much needed help for good pain mgmt.

God bless you and keep you

Last edited by fionab; 04-11-2013 at 10:10 AM. Reason: typo
fionab is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-12-2013), ger715 (04-20-2013), Hannabananna (04-11-2013), Mark56 (04-12-2013), Rrae (04-23-2013), Saffy (04-12-2013)
Old 04-22-2013, 12:11 PM #5
Saffy's Avatar
Saffy Saffy is offline
Member
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Saffy Saffy is offline
Member
Saffy's Avatar
 
Join Date: Oct 2010
Location: Derbyshire, UK.
Posts: 758
10 yr Member
Default

It's funny isn't it .. how, when you are needing someone, someone or something, steps into your life - for a reason.

I'd been to see the Doctor today. She told me that there was nothing else she could really give me and is writing to the Chronic Pain Clinic at Sheffield to ask them now that Dr. Atcheson (my previous specialist) has now left, to ask for someone to see me.

I read this letter on her computer and asked if she would run a copy of for me.

Basically, when I last saw my surgeon and he said that there was no operation he would give me and therefore there is little they can do at this point. This is the letter my Surgeon wrote to Mr. Atcheson, my Pain Specialist and anaesthetist. He is the one responsible for placing the leads in my spine.

Dear Rob,

I reviewed this lady in the clinic today who we have discussed on several occasions in previous MDT meetings. Unfortunately due to the epidural scar tissue she would no longer be a candidate for insertion of a dorsal column stimulator, whether lead or paddle, and as matters stand currently there are no other surgical options that would be appropriate for her. We have discussed other technologies such as dorsal root ganglion stimulation, but for the reasons we discussed pertaining to events from her previous admissions, I would not consider a candidate of this particularly as it is a completely new and untried technology in our hands.

Her operative would have healed well and as there is little further that I can do at this point in time I have discharged her from my follow up care. I wish her all the best.

Yours sincerely,

John Yiannis
Consultant Neurosurgeon

I was crying as I came our of the doctor's room, and there stood an old friend who opened his arms and held my whilst I cried buckets in the full surgery waiting room.

I felt his love and it soothed me ...

Derek, thank you .. wherever you are now.
Saffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-22-2013), ger715 (04-22-2013), ginnie (04-22-2013), Hannabananna (04-22-2013), Rrae (04-24-2013)
Old 04-22-2013, 01:48 PM #6
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by Saffy View Post
It's funny isn't it .. how, when you are needing someone, someone or something, steps into your life - for a reason.

I'd been to see the Doctor today. She told me that there was nothing else she could really give me and is writing to the Chronic Pain Clinic at Sheffield to ask them now that Dr. Atcheson (my previous specialist) has now left, to ask for someone to see me.

I read this letter on her computer and asked if she would run a copy of for me.

Basically, when I last saw my surgeon and he said that there was no operation he would give me and therefore there is little they can do at this point. This is the letter my Surgeon wrote to Mr. Atcheson, my Pain Specialist and anaesthetist. He is the one responsible for placing the leads in my spine.

Dear Rob,

I reviewed this lady in the clinic today who we have discussed on several occasions in previous MDT meetings. Unfortunately due to the epidural scar tissue she would no longer be a candidate for insertion of a dorsal column stimulator, whether lead or paddle, and as matters stand currently there are no other surgical options that would be appropriate for her. We have discussed other technologies such as dorsal root ganglion stimulation, but for the reasons we discussed pertaining to events from her previous admissions, I would not consider a candidate of this particularly as it is a completely new and untried technology in our hands.

Her operative would have healed well and as there is little further that I can do at this point in time I have discharged her from my follow up care. I wish her all the best.

Yours sincerely,

John Yiannis
Consultant Neurosurgeon

I was crying as I came our of the doctor's room, and there stood an old friend who opened his arms and held my whilst I cried buckets in the full surgery waiting room.

I felt his love and it soothed me ...

Derek, thank you .. wherever you are now.
dearest Saffy

may you find comfort
any way you can
may a miracle happen
in your case
new devices are
considered old after a year
may something come forward
where they can do something
when someone is scarred as
badly like yourself
call upon me anytime
GOG BLESS

someone who cares
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (04-22-2013), ginnie (04-22-2013), Rrae (04-24-2013), Saffy (05-02-2013)
Old 04-22-2013, 03:15 PM #7
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Hannabananna Hannabananna is offline
Member
 
Join Date: Sep 2012
Location: SE Florida..close to the ocean
Posts: 336
10 yr Member
Default Angels

To lift us...hold us....and remind us how precious we are in the world.

A blessing for sure.

Miracles are supposed to happen!!!!
Sometimes I forget that.
Johanna
Hannabananna is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-22-2013), ginnie (04-22-2013), Rrae (04-24-2013), Saffy (05-02-2013)
Old 04-22-2013, 05:44 PM #8
eva5667faliure's Avatar
eva5667faliure eva5667faliure is offline
Grand Magnate
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default

Quote:
Originally Posted by Hannabananna View Post
To lift us...hold us....and remind us how precious we are in the world.

A blessing for sure.

Miracles are supposed to happen!!!!
Sometimes I forget that.
Johanna
consider yourself a miracle
you are among many who believe
as i hope and pray for it
and always remember to thank
God Almighty
praying for miracles
trust in Jesus Christ
who hung to his death
for our sins
oh thank you merciful LORD
THY WILL BE DONE
YOU ARE A BLESSED MIRACLE
johanna

someone who cares
__________________
someone who cares
eva
eva5667faliure is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (04-22-2013), Rrae (04-24-2013), Saffy (05-02-2013)
Old 04-22-2013, 09:19 PM #9
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Heart Oh Saffy....

Quote:
Originally Posted by Saffy View Post
It's funny isn't it .. how, when you are needing someone, someone or something, steps into your life - for a reason.

I'd been to see the Doctor today. She told me that there was nothing else she could really give me and is writing to the Chronic Pain Clinic at Sheffield to ask them now that Dr. Atcheson (my previous specialist) has now left, to ask for someone to see me.

I read this letter on her computer and asked if she would run a copy of for me.

Basically, when I last saw my surgeon and he said that there was no operation he would give me and therefore there is little they can do at this point. This is the letter my Surgeon wrote to Mr. Atcheson, my Pain Specialist and anaesthetist. He is the one responsible for placing the leads in my spine.

Dear Rob,




















I reviewed this lady in the clinic today who we have discussed on several occasions in previous MDT meetings. Unfortunately due to the epidural scar tissue she would no longer be a candidate for insertion of a dorsal column stimulator, whether lead or paddle, and as matters stand currently there are no other surgical options that would be appropriate for her. We have discussed other technologies such as dorsal root ganglion stimulation, but for the reasons we discussed pertaining to events from her previous admissions, I would not consider a candidate of this particularly as it is a completely new and untried technology in our hands.

Her operative would have healed well and as there is little further that I can do at this point in time I have discharged her from my follow up care. I wish her all the best.

Yours sincerely,

John Yiannis
Consultant Neurosurgeon

I was crying as I came our of the doctor's room, and there stood an old friend who opened his arms and held my whilst I cried buckets in the full surgery waiting room.

I felt his love and it soothed me ...

Derek, thank you .. wherever you are now.

How lovely; can feel the love you shared with Derek all the wayyyy across the pond.
No conincidence he just happened to be there when you came out of the doctor's room.


Gerry
ger715 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eva5667faliure (04-23-2013), Rrae (04-24-2013), Saffy (05-02-2013), Sandy Kay (04-29-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
anyone on line now DMACK Survivors of Suicide 7 03-29-2011 09:28 AM
end of the line Stellatum Myasthenia Gravis 5 06-25-2010 06:52 PM
OT- off line Silverlady Peripheral Neuropathy 9 09-18-2008 03:26 PM
Off line Alkymst Peripheral Neuropathy 11 11-07-2007 10:45 AM


All times are GMT -5. The time now is 12:15 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.