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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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05-29-2013, 06:34 AM | #11 | |||
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Yeah, it was weird that he decided to take it out. I didn't expect that. He asked me if I had gone to the emergency room after I had called him, which I don't understand why. I am pretty sure he was mad at me that I didn't go. But I didn't think he really wanted me to go. He had just said it once. Like I shouldn't have called I should just go to the ER if I was worried. But he didn't seem worried so I didn't go. But he kept bringing it up like he was upset that I didn't go. So i am wondering if that is the real reason he took it out...because I didn't "listen" to him. He said that it wasn't hitting my ankle so we should just take it out. And it doesn't sound like it is working anyway. But it would have been nice to try it out for a couple more days. I told the rep that it seemed that I could walk better, but with my back I couldn't really try it out yet. So I don't understand his reasoning for taking it out early. I thought the rep was going to change the frequency (I think) so it wouldn't pulsate so much. I think that would have helped alot. But now my right leg is starting to hurt really bad. It has woken me up. Hopefully I just slept on it wrong. I am hoping that the fact that it was going into my right leg doesn't hurt it.
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"Thanks for this!" says: | AZ-Di (06-08-2013), eva5667faliure (05-29-2013), german shepherd man (06-01-2013), Hannabananna (05-30-2013), Mark56 (05-29-2013), Rrae (05-31-2013) |
05-29-2013, 08:07 AM | #12 | |||
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Grand Magnate
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you endured so much in such a short time i find it hard to swallow the behavior of the surgeon should be marked in a way patients can beware i am so so sorry i have my own story opted not to get a pain pump just another surgery and my deal is i had ENOUGH OF THE BULL TURD these doctors take an oath i believe that just maybe the medical association should have some kind of grading system keep them on their toes not on just their performance but mostly on the pre and post behavior i don't care how busy they are or that the patient can send in some kind of survey to the board AND SOMEBODY DO SOMETHING MY SURGEON STILL HAS NOT RELEASED ME AS A PATIENT AS I HAD TO REMOVE MY BREASTS CANCER IN MY RIGHT ONE OPTED TO TAKE THEM BOTH OFF MY ANNIVERSARY IS 1-9-12 PLEASE HAVE YOUR EXAM I FOUND MY OWN HE NEVER CALLED ME TO FIND OUT WHY I HAVEN'T RETURNED I went for a third opinion traveled to NYC Hospital for Special Surgeries and prognosis is bleak for my future however i too pray for a miracle and too believe in JESUS CHRIST AND ALL FOR A REASON AMEN! I AM SO SORRY YOU HURT MAY HE KNOW WHAT IT FEELS LIKE WHEN SOMEONE PULLS THE RUG UNDER HIS FEET SOMEONE WHO CARES
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someone who cares eva Last edited by eva5667faliure; 05-29-2013 at 08:13 AM. Reason: TYPO |
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"Thanks for this!" says: | Angelina55 (05-30-2013), AZ-Di (06-08-2013), german shepherd man (06-01-2013), Hannabananna (05-30-2013), Mark56 (05-29-2013), pooh_ac (05-29-2013), Rrae (05-31-2013) |
05-31-2013, 11:02 AM | #13 | |||
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Grand Magnate
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Geezum pete, I am so sorry your trial went the way it did. I'm also disgusted with that doctor! I have a few choice words to say about him, but thankfully this forum has a built-in edit system.
Some doctors have such high egos (aka MINE ) that they get on the defense whenever their handywork goes wrong. I'd go for a 2nd opinion with a Dr who remembers his hippocratic oath. Caring, Rae |
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"Thanks for this!" says: | Angelina55 (05-31-2013), eva5667faliure (05-31-2013), german shepherd man (06-01-2013), Mark56 (05-31-2013) |
05-31-2013, 02:19 PM | #14 | ||
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Junior Member
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I was in the same position in 2008, its very frustrating. I agree with Mark seek another doc.
My stim has worked great, it does take some getting used to. I have a Medtronic unit with 6 programs I can change, each give sensations in different areas. I found one that suited my needs and have never changed it in 5+ years. I also experienced extreme pain from the trial site leads, awful things hanging outside the body. As active as I am amazed I didn't rip them out. It may just be your body adjusting to it. As far as rejection, that may be possible but they do use inert materials which the body cannot see or sense. Talk to your rep and doc about that. I hope things calm down for you, my stim gave me back a somewhat normal life, even under the extreme conditions that were upon me. Hoping to see a positive update soon. German Shepherd Man. |
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"Thanks for this!" says: | Angelina55 (05-31-2013), eva5667faliure (05-31-2013), Hannabananna (05-31-2013), Mark56 (05-31-2013) |
05-31-2013, 02:32 PM | #15 | ||
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Junior Member
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for some reason I didn't see the post that removed your device, I am truly sorry it didn't work for you.
Hoping and praying that some relief comes your way soon. German Shepherd Man. |
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"Thanks for this!" says: | Angelina55 (05-31-2013), eva5667faliure (05-31-2013), Hannabananna (05-31-2013), Mark56 (05-31-2013) |
05-31-2013, 09:55 PM | #16 | |||
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Quote:
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05-31-2013, 11:48 PM | #17 | |||
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Grand Magnate
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happy birthday to you
happy birthday to you happy birthday dear Angelina happy birthday to you enjoy your birthday! someone who cares
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someone who cares eva |
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"Thanks for this!" says: | Angelina55 (06-01-2013), german shepherd man (06-01-2013), Hannabananna (06-01-2013), Mark56 (06-01-2013) |
06-01-2013, 07:51 AM | #18 | |||
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Grand Magnate
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From me, to YOU!
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06-01-2013, 10:14 AM | #19 | ||
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Celebrate. Celebrate. Dance to the music!
Happy Birthday Angelina!: Sandy Kay Last edited by Sandy Kay; 06-01-2013 at 10:15 AM. Reason: typo |
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"Thanks for this!" says: | Angelina55 (06-02-2013), eva5667faliure (06-02-2013), Hannabananna (06-01-2013), Mark56 (06-01-2013) |
06-02-2013, 12:03 PM | #20 | ||
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Member
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I am sorry about your doctor. That's terrible. It really does seem like you might need a second opinion, but I can understand the not wanting to go through the pain again. I have two scs's and both were painful. They were worth it for me, but in your case I would say it wasn't. My reps were also great working with me. Even now, when I'm dealing with some battery issues and earlier last year when I had to have a revision due to a fall. Anyway, I hope you find some relief soon. So sorry things didnt work with the scs. Hopefully another option can help ease your pain.
TK |
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