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Grand Magnate
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Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Grand Magnate
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
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Agreeing with Nanc regarding the CRPS spread issue. I sure hope this is NOT happening to you 
Spreading of CRPS due to SCS is discussed a lot at the RSD forum, as it is certainly a possibility. Glad to see you posted this question over there also.
One thing I might interject is that after having the trial leads removed, the pain can come back full-force in a lot of cases, and waiting for the permanent implant can seem like an eternity. I hope the doctor who did the trial will address the pain to try and determine if it might be spreading.
Do keep a journal. It's a great reference.
How well (if any) did the trial work as far as covering over the original pain? I know how difficult it can be trying to figure out which pain is what.
My heart goes out to you as you wade thru the pros and cons.
Rae
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07-22-2013, 02:36 PM
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