SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 07-24-2013, 10:10 AM #1
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Default Spread

Hello Az-Di,

Have you asked each of your doctors why they think one treatment is better than the other? Once you have that information then you could ask yourself if either sound more like what you expect to get out of it? At the end of the day the treatment plan whatever that may be, should be helping you reach your goal. For instance: in my case I couldn't walk but just a few steps before the pain left it's ugly mark upon my face. So my first goal was to merely be able to walk without tears - this was discussed along with other hopes/goals with my treating doctors. I discussed alternative therapies (ketamine, calmare, HBOT) and the SCS. With many of the alternative therapies there was a higher cost involved and a long wait list - TIME that I personally didn't feel I had. I was only 7 months into this disease and wanted whatever treatment to start fast, so that I had the best chance to recover. So that narrowed the list. I discussed further the benefits of the SCS for my situation and went for the trial. For me it was like night and day - as soon as I was allowed to get up I did, I walked with no limp and with much less pain. Relief was possible!! I then touched my own leg as if to brush pet hair from it.. voila, I could also do that with the trial SCS buzzing away. Over the next few days friends & family all commented how you could hear the relief in my voice. I was back to my cheerful self. I knew right away that the SCS would help me have a better life for however long it worked and I wasn't going to pass that up.

The best way to prevent spread is to get your body out of pain. To do what you can do to find happiness. Eat healthy and get plenty of rest. Keep your body moving so your blood is circulation and healing. Quit smoking (if you do) and try hard not to let the fear of spread consume you.. it will most likely spread at some point.. but live like you never knew that was a possibility. Drink plenty of water. Soak in epsom salt. Get rid of negativity and try to keep stress down. Think positive and believe that you will get through this.

I hope you find relief for your pain soon,
Tessa
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Old 07-24-2013, 05:55 PM #2
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Default well said

I need to remind myself of all those things...the combination really makes a difference in my health...I still sleep 9 hours a night...is great!!

thank you Tessa for the primer

and do what you can to find happiness!!
love it
Johanna
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Old 07-27-2013, 05:43 PM #3
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Trophy Very well said!!

Quote:
Originally Posted by zookester View Post
Hello Az-Di,

Have you asked each of your doctors why they think one treatment is better than the other? Once you have that information then you could ask yourself if either sound more like what you expect to get out of it? At the end of the day the treatment plan whatever that may be, should be helping you reach your goal. For instance: in my case I couldn't walk but just a few steps before the pain left it's ugly mark upon my face. So my first goal was to merely be able to walk without tears - this was discussed along with other hopes/goals with my treating doctors. I discussed alternative therapies (ketamine, calmare, HBOT) and the SCS. With many of the alternative therapies there was a higher cost involved and a long wait list - TIME that I personally didn't feel I had. I was only 7 months into this disease and wanted whatever treatment to start fast, so that I had the best chance to recover. So that narrowed the list. I discussed further the benefits of the SCS for my situation and went for the trial. For me it was like night and day - as soon as I was allowed to get up I did, I walked with no limp and with much less pain. Relief was possible!! I then touched my own leg as if to brush pet hair from it.. voila, I could also do that with the trial SCS buzzing away. Over the next few days friends & family all commented how you could hear the relief in my voice. I was back to my cheerful self. I knew right away that the SCS would help me have a better life for however long it worked and I wasn't going to pass that up.

The best way to prevent spread is to get your body out of pain. To do what you can do to find happiness. Eat healthy and get plenty of rest. Keep your body moving so your blood is circulation and healing. Quit smoking (if you do) and try hard not to let the fear of spread consume you.. it will most likely spread at some point.. but live like you never knew that was a possibility. Drink plenty of water. Soak in epsom salt. Get rid of negativity and try to keep stress down. Think positive and believe that you will get through this.

I hope you find relief for your pain soon,
Tessa
This post belongs in a frame!
Thank you Tessa, especially about the 'negativity' part.
I really need to work on that one.

Rae


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Old 07-31-2013, 08:42 PM #4
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Originally Posted by Rrae View Post
This post belongs in a frame!
Thank you Tessa, especially about the 'negativity' part.
I really need to work on that one.

Rae

Awe thanks Rrae glad it made someone smile
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