[tkayewade]

First me: still having quite a few problems with my thoracic stim turning itself off. Diagnostic tests say only 2 contacts are dead, so no reason at this point to why. The only way to really know is to open up and see. Since my rsd is systemically widespread and it's just a minor annoyance, we are just going to let it ride.

I've been falling again.ive also been having time blackouts where I lose track of 15-30 minutes at a time. It's happened twice now. Going to a neuro psych and neuro biologist Monday.

The fall this time left me with a sprained neck, separated shoulder, pulled tendons, in right wrist, grade 3 left ankle sprain, almost every tendon and ligament is out of place, a fractured right ankle, and a mild concussion. I am starting to get really worried about the falls, but not sure whom to speak with. I don't know how to stop them. I'm worried one day it's going to knock a stim cord loose, and I sure don't want another surgery. I even moved the wheel chair into the house and just don't go into our step down parts.

I'm at a loss. I seem to be flying downhill. I'm not sure what brought on this rapid chain of bad events.

So that's me.

Baby Jaxyn is still hanging in there. He weighs about 1 pound 6 oz. he had a hole in his heart which they had scheduled surgery to close. They did an echo right before surgery, and miraculously, the hole loses on its own. Now, he has hat they're afrid is an intestinal blockage. This would also be an extremely risky surgery to such a tiny little baby. Please keep this family in your prayers!!! He's a fighter, that one.

Anyway, I hope all of you are well. I think you all often, and hope everyone is having better days than I am. Have a good Sunday!

xoxo,
TK