Hi guys! So, I saw a new neurosurgeon today...finally!! We all decided that the best thing for me is to remove both SCS's. Surgery not scheduled yet, but shooting for after Christmas.

Hi Nanc,
You must have confidence in this new doc. While I am sorry you have to do this I know there is some relief in having the new direction after looking at all the facts.


I will be following closely....I dream of having mine out.

HB

dear friend

thank you for your honesty
i too am going to a new spine specialist
he will be #3
as per my pain specialist
he would like for me to see
his spine doctor
Marc S. Arginteanue, M.D., F.A.C.S.
Chief of Englewood Hospital

all that took me down 2008
1st ACDF 3 11 10
2NDPCDF 4 15 11
RADICAL DOUBLE MASTECTOMY 1 9 12
and starting all over
my left side is now behaving
ditto as my right did in 2008
so nervous just when i am
starting to see my preventative
doctors dentist, obgyn
went to my general yesterday

now to the bigger pic of
things going

this is not what i had ever
factored in
life changed overnight

again thank you for
the honesty

Oh, nanc, good luck! I keep meaning to call or text you. You know, on your note, I need a brand new thoracic. So my quandary is all my stuff will have to be taken out and replaced or should I just keep it out? It actually worked fantastically until I had a fall and a car accident. Them I was diagnosed with ms. I just don't know. A tough decision. Anyway, not to detract from you, nanc, please let me know if you need anything, if I may ask, what bladder procedure are you having done? I'm still having lots of troubles in that area as well. If that weren't enough, I need a knee scope of all ridiculous things and you know how dangerous that is for RSD! Please any help in that area, I would appreciate. Things are not going well. Well in any area really.

TK

................................. ((((((Nanc))))))

Hey TK!
That stinks that you need a new thoracic scs. Yes, I know it is a tough decision to make...have a revision or remove it?? My new doctor thinks removal is the best for me, over having a revision. I like this new dr so far, have a good feeling about him and have seen/heard good reviews too. They are supposed to call me by tomorrow to schedule that surgery. I am shooting for after Christmas.

Yesterday I had a cystoscopy with hydrodistention and bladder biopsies. I had to be under anesthesia and it was outpatient. I have to say that I had the best anesthesiologist ever!! Also, the nurse putting the IV in was fantastic. I absolutely NO nausea whatsoever, which is the first ever. Felt pretty good after I was good and awake. My bleeding is slowing down now and the pain is better...but I can tell when the medication they gave me for it is wearing off. Anyway, I have my follow-up appt on Dec 6, so I will know more after that.

Sorry that you received the MS diagnosis and are having so many other things going on too...like RSD is not enough right?!? If you need to have the knee scope, then you need to have it. Just make sure that dr is well aware of your RSD and what it means. Take all the precautions you need to. My dr yesterday said before my procedure that he would do his best to do as little as possible, didn't want to disturb my RSD. Again, I was happy that he was aware and understanding of it.

Good luck to you TK!!
Nanc