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SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions. |
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07-07-2017, 02:19 PM | #1 | ||
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Magnate
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Glad your Mother will be coming to help and showing her concern. I think that will in itself will be good for you. She might be right in suggesting a private hospital. Hope she does give the ER at the hospital a "piece of her mind" on the treatment you received.
DB's Barrett's issues are concerning; the upside tho is he is not drinking. Know you and DB are in my daily/night prayers. Gerry |
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"Thanks for this!" says: | eva5667faliure (10-18-2017), PamelaJune (07-07-2017) |
07-07-2017, 09:07 PM | #2 | |||
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Senior Member
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No X-rays given, hopefully if I go to St John of Gods Murdoch Private they can access on line. I normally go there but the ambos said I needed to go to RPH. So Murdoch must have been full. I will check bed availability online before I go. And I have to go, I can't be at home like this for the next 2 days. DB really struggling seeing me like this, it's taken him back to the last time I was when in London & his drinking enabled him to cope. He's just had to put himself to bed, the stress is exacerbating his Barrett's and I can see he is in agony. Hopefully mum will come and take me.
It's a lot to put on an 86 yr old I know, but I've no one else to turn to, my 3 nieces (I was appointed their legal guardian) I've had live with me many, many times over the years but with the domestic abuse / trauma they've suffered in their lives as young adults they're all just a bit to flakey and they won't cope seeing me like this. They've sent their love but not offered to come help in anyway. I looked at the script she discharged me with 10 Temgesic, I have been taking 2 every 4 to 6 hours in the last 48 before I went to hospital. The 10 she gave me will last today only so by tomorrow afternoon I will have nothing in the house unless DB goes to the pharmacy - they keep all my scripts. But that ED doctor would not have known that. The more I think on it, the angrier and dissapointed I get. I just had a re-read of the discharge letter. It says for me to see my PM to deal with my chronic pain. Confirming in my mind she has in no way taken on board my comments this is new & acute pain not what I normally suffer. I'm still sobbing when I move, this is not normal.
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I can still remember what life was like before pain became my life long companion |
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"Thanks for this!" says: | eva5667faliure (10-18-2017), ger715 (07-08-2017) |
07-08-2017, 02:11 AM | #3 | |||
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I've just been admitted to another private hospital St John of Gods Murdoch. the doctor who just saw me said I've had some vertebrae disc slippage and gone into severe spasm. About to put me on morphine and medazolam drip so I'll be non compos with the the medazolam as we all know how it affects me. My pain score is a 10, if they can't get it under control will do an MRI on Monday x
Post edit Can't get a canula in my veins have collapsed so they've given me morphine injection, 2 x 5mg Valium and 1 ondancetron for nausea. Hopefully they will try the canula again later as I know the medazolam will work. The pain hasn't abated one bit, tried to take me to the toilet and my right leg gave way again & my bladder has decided if I want to hold i absolutely have to go or I'll have an accident. Apparently that's indicative of muscle spasm either nerve trapped. .....
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I can still remember what life was like before pain became my life long companion Last edited by PamelaJune; 07-08-2017 at 03:39 AM. |
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"Thanks for this!" says: | eva5667faliure (10-18-2017) |
07-08-2017, 10:43 AM | #4 | ||
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Magnate
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Pam,
Was your Mother able to be there with you? I can somewhat relate of sorts what you are going through. When my L4-5 vertebrae slipped, the disc caused pressure on the spinal cord. I remember it was almost impossible to move without just about screaming. Hopefully by now they were able to get a canal in your veins. Not the same having the morphine injections. For me the morphine injections were like having nothing for pain; which also seems the same for you since you are having absolutely no relief. I know you are worried about what is going on with DB especially his feeling of helplessness. He must be somewhat relieved you have been admitted into the hospital. Pray you continue to have the strength and courage to cope with all you are going through. Gerry Last edited by ger715; 07-08-2017 at 11:02 AM. |
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"Thanks for this!" says: | eva5667faliure (10-18-2017), PamelaJune (07-08-2017) |
07-08-2017, 05:57 PM | #5 | |||
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Yes mum came as well, was comforting to have her here. The pain lying down is a 7 or 8 as soon as I move about. They've just given me dome more pain relief it'd knocking me out do I'll write again later xx. At least I managed to sleep last night.
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I can still remember what life was like before pain became my life long companion |
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"Thanks for this!" says: | eva5667faliure (07-13-2017), ger715 (07-08-2017) |
07-13-2017, 07:23 AM | #6 | |||
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Irony, it's a funny thing. Before we left the house my mum said will I being over my walking frame. DB said NO we have enough stuff of yours and Robs here, will all respect Betty, when we need our own, we will get our own. I know he was referring to the shower stool stuck in the back bathroom, it's hers, uts been here since my cousin Billy arrived last year for a supine bithday visit. But as she has no room in her house she decided in a fit of gerenroisty oh I'll give it to my daughter she'll need it one day, not for one moment thinking she is 86 and I'm 56 ... anyhoo, DB emphatically said no, I think a part of him lives in fear of when they say the time for the wheelchair has arrived.
So we arrive at SJOG Murdoch I'm hanging off of his back using my walking stick to the point of bending and I confess it's probably not the best of looks. So days pass and I won't bore you with the other than they have been filled with excruciating pain and very little joy. But, a walking frame seems to have made its way into my room, bought by one of the nurses, it seems to be a permanent fixture, I got old off or using the walking stick yesterday And then today arrived, I've had many X-rays nuclear X-rays and all number of tests. So my hips are (both) lit up like Christmas lights where the titanium bits all but what has been removed, (left behind for one reason or another) but due to various problems bits and pieces (thin shavings, 1/2 pedicle screws etc were left behind) So, not only do I have bone and arthritis problems, it seems I may have a touch of titanium blood poisonining thank you very much. No wonder I feel like death warmed up so much, no wonder I don't get good consistent blood results every time. So today I had to have an AWAKE nerve injection. They assured me it will be ok, they neglected to tell me I will have to lie on my stomach for over an hour ( I struggle with 15 minutes) so, in the end in tears, I consented. They must think so little of us older ones addled in pain, I thanked the lovelady who could see just how bad a state I was in while in the SKG room. She handed me tissues, she helped regulate my breathing, she held my hand and in general squeezed me when the pain was so bad I let out an involuntary low moan. In all the procedure (targeted injection under fleuro) took well over an hour, that's over an hour of me lying on my stomach awake. As you all know I struggle with 10-15 minutes. Normally I'm would have been be sedated. But today, for whatever reasons, school holidays probably, no one was available to knock me out. They gave me 10mg Valium, 40 minutes later they realised nope it's not working, I don't even look like I'm nodding off in anyway. They huddle again and agree to give me alprazolam, my dreaded drug, how I dislike it. Anyway, it soothed me a little, but in no way knocked me out. I felt even the peircing injections including those that are supposed to provide numbness and then the large (super large) needle as it threaded itself into the bone, I felt it makes its way all the way in. So here I am back in my room. I'm quiet, I'm in shock I think. DB stayed for a while but he fell asleep and I said with this weather you're best to go home. He has apparently in the last two days moved all the furniture back into the house and a friend has been and helped him put the beds together. The windows and grooves have been cleaned. All that needs doing now is the screens replacing where the cats have destroyed them, but that's a different day / conversation, he's tried his best to put me back into the house so I have somewhere safe and warm to sleep. Isn't that nice of him. I'm going to get the doctor who did the procedure today, I want her name so I can write her and thank her, I so think it is importnant those doctors who so often are forgotten due to sedation get some form of thank you and recognition. I have also name of the doctor from last week at RPH I'm going to wait until I'm walking a little better and I'm going to take my X-ray results and asked her to read them. If she won't, I'm going to give them a copy of my letter addressed to her with a copy to her boss. I'm thinking of contacting the news as well. She deserves to be ashamed of herslf. I know they face drug addicts all day long, but we are not all drug addicts, some of us are genuine. I wonder if I had been so subdued by her and her treatment and taken taken her at face value how much damage today blood poisoning would have done, I wonder if I would be walking today. To the lady of RPH - I bet you are sleeping well at night, I want you to know sleeping well is a luxury, and I hope for you there may be perhaps 25 years more luxurious sleeping (but for the grace of god) there may be you in 25 years time if you succumb to the young leading doctors of their time who promise the world; who seem to promise health and happiness. Notice I didn't say wealth. Wealth never factors into it, I just wanted a good life, able to come home from work and provide for my family. I didn't get that, I got instead broken promises, lies and more lies. Mostly from people just like you there, that familiar treatment with disdain. I will well remember your face young lady. I hope your future family don't remember it as I do, the look of disdain and horror as you wished someone would just take me away from your space, and believe me I want invading it. I was too much in pain to step even remotely close to someone. I was embarrassing you with my tears of agony. You didn't want to know me, you were not remotely interested, I was an inconvenience. Poor poor you.
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I can still remember what life was like before pain became my life long companion Last edited by PamelaJune; 07-13-2017 at 12:15 PM. |
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"Thanks for this!" says: | eva5667faliure (07-13-2017), ger715 (07-20-2017) |
07-13-2017, 09:09 AM | #7 | |||
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Grand Magnate
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Quote:
PRECIOUS SLEEP to a sick body You are not alone dear ear Pam There are many here I haven't touched base with like I have As typing is a problem I don't think I'll ever get it right Thinking and praying for them too You are a strong woman Pam Glad mum can be there for you Love Me
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"Thanks for this!" says: | ger715 (07-20-2017), PamelaJune (07-16-2017) |
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