I sure wish I could give better input. I did find a site which talks about DGR Stim and also "Axium" stim (which is new to me). It does mention the positional changes in stimulation which occur with each movement we make (standing, sitting, walking, etc). Not sure if this is exactly what you described. It also has patient stories and other info that may be of help.
Might be worth checking out:

http://www.spinalmodulation.com/pati...g-stimulation/

Neuropathic pain is certainly frustrating. The SCS is notorious for covering lower extremity pain. Is your saphenous neuropathy pain similar to peripheral neuropathy (burning, stinging)?

Well hopefully between the bunch of us we can dig around until we get the information you are hoping for!

Rae

And this be a perfect example of how
wonderful a place this is
Beautiful absolutely beautiful

Thanks very much for your reply. Yes what I seem to have is very localized neuropathy in the sensory nerves around my knee. Some type of "short circuit" was set off by damage to a little branch during arthroscopy and it's never been turned off since this happened 3 years ago. It is burning, stinging, electrical. , lancing in description and is stimulated usually by exercise . I didn't get the whole RSD sympathetic syndrome and it is still very specific , limited to the area on the medial side of the knee. Tried just about every therapy hence the trials with SCS.My docs are looking for a place for me to get DRG stim .Your link sis familiar to me but I will looks into it again.
Thanks again

Evil twins Rae? I can be very aggressive, vindictive, narcissistic, and scrappy, but also very caring, forgiving, sympathetic, and empathetic. I'm a mixed bag!! One descriptor to summarize - winner. I find ways to win even in the Gulag of neuropathic pain.

Belated welcome mdinpain2.

The saphenous nerve - doesn't like to be messed with. Glad that you have not developed full blown crps2, but I know a bad saphenous neuropathy is still a huge issue. Will l3 drg stim cover all of that? Have you tried lf scs? HF scs - if it works= Europe and serious Canadian $.

Peripheral nerve stim an option - but I'd worry about migration. Hard to imagine they can scar down really well.

Heya! Haven't posted in awhile around these parts, but thought I would chime in as this is pretty much what my SCS is.

I have peripheral neuropathy in my left foot, and my leads were placed on the nerve rootlet rather than directly over the spinal cord itself. This makes it so that I can get stimulation on my forfoot only (or whole foot, depending on my program) - thus I don't have to have my entire leg buzzing just to get pain relief in my foot. Not many docs do lead placement like this, so I am curious how many your doc has done?

As for positional changes - it will get better with the permanent, but I have major changes depending on how I sit, stand etc...and because you are stimulating the root directly, a minor shift can give a HUGE jolt. Along the same lines, it takes so little power to stimulate the root - mine is so low I can go 4-6 weeks between battery changes. My guess is that this is why the positional changes may be more of a "shock" with a lead placed on the root - it takes less electricity to zap anything at that level...

And finally - since I haven't been around for a bit, a small update on me...I have now been officially opiate free since Feb 15th of this year! It took many months of weaning, and a not so nice withdrawal period, but that is behind me

dear friend
so happy to hear
you are med free
be well
me

Well done you, congratulations definitely in order. To be opiate free is such a heavenly feeling.

That is so cool....I dream of the day...........

Congrats!!!!

HB