SCS & Pain Pumps For spinal cord stimulator (SCS) and pain pump discussions.

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Old 08-21-2014, 02:53 AM #1
anon21816
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[QUOTE=booklover;1090393]
Quote:
Originally Posted by Jackiey View Post
Hi
I had my unit implanted in Aug 2008 and since then I too lost weight. My battery is in my left buttock also up near the waistband of my trousers.
In February 2009 I had a new battery inserted as the old battery was faulty. It was unpleasant but necessary.

A couple of months ago I went to my Dr. As like you I had more weight loss and I was concerned that the battery had migrated to the top layer of my skin and was 'working its way out'.

My Dr examined me and then did some X-rays to show me that all was well. Yes the battery was very close to the surface but that it was better there than deeper as the remote might not pick up the signal as well as it was. He told me it was well anchored in and it was going nowhere.

He did ask me if I wanted to have it moved but I said absolutely not I dont want more surgery, another surgical site,more scar tissue etc I have gotten used to it now and I'm just careful when I'm doing things not to bang it off anything. And also in what clothes I'm wearing.

To me the less surgery the better and after 7 ops I don't want any more. Try not to worry and I'm sure it will be fine. Any surgery is a risk and each time you are building up scar tissue which itself is another issue.

Take care

Jackie [/QUOTE

Hi Jackiey,

I really appreciated hearing about your experience in choosing the non-surgical option and how it’s worked for you. What bad luck in getting a dud battery and requiring replacement surgery so soon! I would have found that very frustrating. I'm glad that the benefits for you have been worth the effort.

You sound so over surgery like me, I‘ve had a similar number, also a couple with serious complications (nerve root palsy, post op hemorrhaging). No wonder I’m a bit hesitant and look at the fine print now. I see the neurosurgeon this Friday and find out whether not operating is an option.

I also have Irish heritage, with a dad originally from near Cork. I'm not yet used to the idea of getting information and support from people who have dealt with these issues across the globe (to Australia). It's quite amazing.

Thanks,
Booklover
We irish seem to be everywhere lol. I have relatives near Cork but I'm from Dublin myself. It's a small world really.
Yes the internet can be a great advantage at time!!! When used in the right way. I hope all goes well for you.

Jackie
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booklover (08-22-2014), Hannabananna (08-21-2014)
Old 08-21-2014, 11:27 PM #2
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Hey ladies,

I haven't posted here in a while but, this post caught my attention.

I have both a medtronic SCS and a medtronic intrathecal pain pump and because of my small frame both stick out a lot! Something I've found to help with this is - KT tape. It really helps stabilize both implants and thus reducing the friction pain/irritation it can cause.

I apply it by starting the adhesion with no tension a couple of inches higher than the implant and then stretching about 50% tension directly over the top and past the implant, ending with no stretch for the last couple of inches. The tape stays on for about 7 days even when it gets wet from showering/bathing. I remove it when it is wet and haven't yet had problems with skin breakdown.

Give it a try you might be surprised..
Tessa
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Old 08-23-2014, 04:21 AM #3
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Quote:
Originally Posted by zookester View Post
Hey ladies,

I haven't posted here in a while but, this post caught my attention.

I have both a medtronic SCS and a medtronic intrathecal pain pump and because of my small frame both stick out a lot! Something I've found to help with this is - KT tape. It really helps stabilize both implants and thus reducing the friction pain/irritation it can cause.

I apply it by starting the adhesion with no tension a couple of inches higher than the implant and then stretching about 50% tension directly over the top and past the implant, ending with no stretch for the last couple of inches. The tape stays on for about 7 days even when it gets wet from showering/bathing. I remove it when it is wet and haven't yet had problems with skin breakdown.

Give it a try you might be surprised..
Tessa
Hi Tessa,

Glad you dropped by. You’re the first person I've ever met with CRPS 2, like me. My specialist calls us “atypical”. Thanks for explaining how you manage to push your battery and pain pump in with tape. I was interested to hear that having a device in the front also causes the same problem for you, as I have the option of moving battery to the front when I need to replace it. I have also noticed that if I hold the top of the battery in that relieves the pain, but I can't do that all night! Unfortunately, I react to any sport tapes with rashes, welts and skin breakdown, not what's needed over my battery! Nevertheless you’ve made me think, I may be able to achieve the same effect with elastic binding without affecting the skin.

I will look into this further,

Booklover
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Old 09-05-2014, 12:17 AM #4
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Default Just a question?

Quote:
Originally Posted by Jackiey View Post
Hi
I had my unit implanted in Aug 2008 and since then I too lost weight. My battery is in my left buttock also up near the waistband of my trousers.
In February 2009 I had a new battery inserted as the old battery was faulty. It was unpleasant but necessary.

A couple of months ago I went to my Dr. As like you I had more weight loss and I was concerned that the battery had migrated to the top layer of my skin and was 'working its way out'.

My Dr examined me and then did some X-rays to show me that all was well. Yes the battery was very close to the surface but that it was better there than deeper as the remote might not pick up the signal as well as it was. He told me it was well anchored in and it was going nowhere.

He did ask me if I wanted to have it moved but I said absolutely not I dont want more surgery, another surgical site,more scar tissue etc I have gotten used to it now and I'm just careful when I'm doing things not to bang it off anything. And also in what clothes I'm wearing.

To me the less surgery the better and after 7 ops I don't want any more. Try not to worry and I'm sure it will be fine. Any surgery is a risk and each time you are building up scar tissue which itself is another issue.

Take care

Jackie
I wore my jeans to my surgery and they marked me with my jeans on. Although I do intend to lose weight at some point, they assured me that they made the "pocket" deep enough that it shouldn't be an issue. Was that the same with any of you all?
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Old 10-20-2014, 10:38 PM #5
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Default Needing help what to do

I have a spinal cord stimulator through Boston scientific I have had it over three years for chronic pain and cancer I'm 32 I had prolong pain from chemo when I had cancer when I was 28 breast cancer , I'm having trouble being able to charge mine to get. A full charge if takes me two days to charge it and I can't charge it when I'm up and moving I have to be in bed in order to get a good charge without moving for four hours to get it charged , then I have to charge the pack and go back at charging it the second day I'm hoping I can get some answers tomorrow of what to do I'm so tired of this I'm to the point of having it removed I hope to hear from some of you at what problems you have had ,
Thanks sincerely terin
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Old 10-21-2014, 09:08 AM #6
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Welcome Terin2002.
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