Another VERY Curious SCS Member - PLEASE HELP?

PamelaJune · 07-24-2015, 11:51 PM

Welcome back mam, we missed you. I confess I have been absent a lot as well, being back and working is good, but it is painful and tiring some days and I fail to log in and touch base with my wonderful NT friends.

Quote:

Originally Posted by Rrae

Good to meet you!
Thank you for your service and sacrifice to this wonderful country of ours **meaningful fist bump**

Thanks for posting your background. It's heart wrenching to read, that's for sure. The good that comes out of each of our experiences is the fact that here we are, all together in a place where we can share and understand on a level that many people just don't quite 'get', though our friends and family do the best they can to be supportive. Living with chronic pain and the depression that it can bring is something that is hard to comprehend to others, unless actually having experienced it themselves.

I've been MIA from NT for quite awhile, but it sure is good to see the ol' gang still here being absolutely wonderful (as always)

So much heart and soul comes from this wonderful group. Isn't it amazing?
I remember when I first came here feeling completely alone, scared, drained of hope, and not having a clue what an SCS was. I live in a very rural area where information on these pain issues and medical options is few and far between.

I'm in my 5th year of my lumbar SCS. Love it!
It does a great job of covering over the horrid burning neuropathy/RSD pain in lower extremities. It feels like a cat purring.
As this 'kiddo'

ages however, I've been dealing with other painful issues, mainly in my lower back (DDD, ruptured disks, bla bla) in which the SCS can't do anything for, so I still take strong pain meds unfortunately.

In reading thru your thread, it's obvious that your pain is not being adequately controlled, thus you run out too early. I wonder if your Dr would consider putting you on pain patches? Have you tried those?
I wish I didn't have to take anything, but for the sake of quality of life, I am grateful for my Fentanyl 50mg patches that I change once every 60 hours.No ups and downs with withdrawals to worry about. Just thought I'd throw that out there....

So, how are you feeling at this point about doing the trial SCS since you've received all this wonderful input? I'd say go for it. It certainly isn't for everybody, but the trial will sure give you an idea. If it's not right for you, such as in Ger's case, she opted to not go thru with the permanent.
**Thank YOU Ger for being such a big part of the backbone which makes up this wonderful forum!**

I wish you the best Gunner, as you sift thru your options.
You've got a wonderful supporter! Your dog is so sweet!
Please keep your thread alive and keep us posted!

Caring,
Rae

Mark56 · 07-25-2015, 07:06 AM

Yeah, I do remember as well that with the SCS implant it was the laminectomy which took quite a while to resolve. No problem anymore, though!

How about the RRae, huh? Yep she bounces back just full of vim and vigor as though never missing a beat? Pretty cool!

M56

Similar Threads
Thread	Thread Starter	Forum	Replies	Last Post
Curious	laurie1787	Aneurysm	7	07-23-2010 12:06 AM
Curious....	Alffe	Weight Loss & Healthy Living	11	10-14-2007 09:41 PM
For Curious....for all of us	Alffe	Survivors of Suicide	8	10-27-2006 10:51 PM

Site Navigation

NeuroTalk Online Support Groups

Another VERY Curious SCS Member - PLEASE HELP?

NeuroTalk Forums