"I'm reminded of the old joke that a GP treats what you have, and a specialist thinks you have what s/he treats. " - YES, EXACTLY!! I feel especially this way after my first sleep study when I looked over the report and it said that my apnea levels were almost non-existent, yet the spontaneous arousals that weren't related to apnea or periodic limb movement were 108 (which average out to something bit higher than 28 an hour) and were the cause of me getting the second sleep study, and the specialist recommended a CPAP (even though it did not prevent the sleep jerks on the night of the sleep study) with no mention of treating or pursuing the causes of the jerks at night! Reading what you said is very reassuring -

In any case, thank you also for explaining what goes on when I go see a neuro. I have been internally and on here waffling between spending more $$ (close to $3,000 already ) on doctors to try to get an answer, or simply living with my symptoms but I think I may cave and see a neuro.

This whole experience has been shocking, and a wake up call for me as I have never needed to go through the medical world outside of the routine flus, vaccinations, strep throat etc. It feels like a revolving door, or maze truly.

One other quick question if you don't mind - what other specialists could be consulted in this? I am guessing that it depends on the results of the tests that I have done?

I am ubber appreciative of the responses you and all the others have posted here. I would seriously be going crazy if it was not for this forum.

Thanks again!

Matt