last year 2006 november is where all of my real problems took a spin i went through pretty much hell for 6 months while the doctors were trying to figure out all of the weired symptoms that could be anything as all of you tos people know all to well right? I was so scared i stayed with my family for awhile thinkin i was dying of somthing.after all of the testing they finally figured it out through a very smart doc that did his homework TOS .I said what is that?.whatever it is get it the hell out of my body .It took me 4 months to do my own research and i found a surgeon.i had two removed ,but the ribs were the tip of the iceburg i had pec syndrome they removed that musclewhat i had was alot of nerve compression that permently disabled me.Istill suffer today and i can barely walk at times and i cant lay directly on my upper back because it sends pain like you wouldnt believe and the head bobbin,hands shake,ect please someone .thankyou so much for all of your help and id love to help anyone if i can.

Connor,

I am glad that you found us. I am TOSers and possible RSD (keeping fingers crossed).

There are some great people and in a little while several will respond with some ideas.

I sooooo know what you are saying about upper back. For a year I could not lay on T1-T4 because of muscle spasms and nerve entrapment. I had surgery (scalenectomy in Dec) and am still recovering but can now lay on back. Doc said the back problem was entrapped long thoracic and spinal accessory nerve. It's better now that it's freed. Still sensitive but better.

Some of us also have sciatic problems. Matter of fact I went back to doc today and he ordered tests for neurography for pelvic area to look for nerve entrapment of piriformis muscle or prudenal nerve which can impact walkng.

What tests have you had done? When did you have surgery? Where did you have surgery? Areyou taking meds?

I sure hope you can find some relief. Take care

welcome to NeuroTalk, connor

I see you have found the TOS forum ....lots of great info and a really supportive and helpful group of members there

connor,

Welcome to Neuro Talk. There are a lot of supporting friends here. Hope you have good luck in treatment.

Darlene