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Melody - I have a call in to her pediatrician.
I have heard about the heart problems a few days ago, thanks. Missy - Thank you so much for the kind words I called the pediatrician today, I'M SO TICKED OFF!!!! Haylee has been taking concerta for a week now, she's taking at least 3-5 hours just to swallow it. I called her psychologist's office asking what i should do, should she come in for another script or if they had any advice. They called me back and said the doc said to wait until i see him on the 13th of may. NO ADVICE , NOTHING!!!..... So her peditrician's office today has said that this should not be happening, she's having more problems than she needs to be having. They have said that there is a med out there that is a capsule that we can open and sprinkle the powder over applesauce, pudding etc. They are calling me back later today, I'm so impressed with ther peditrician, she has gone above and beyond for haylee. I just wish her pyschologist would do the same for him... I'm going to FIRE him... Thanks for all your help i will check out the links. Have a nice day:winky: |
I've been reading this thread some...
and remembering our meltdowns HERE. My son and husband are ADD/ADHD, and my son used to have occasional meltdowns when he was overwhelmed.
He had one episode of school phobia when he was 6 that we finally traced to the dance teacher, whom he thought did not like him (because she yelled all the time).. Once we figured that out...it went away. But he would get so worked up twice a week at school, and even vomit...everyone thought it was something more dire. I tricked it out of him, since he could not verbalize it. I had a pillow fight with him one night to see if he would get angry, and he started punching the pillow, and yelling..."Take that Norma!" Who IS NORMA? I never even knew this teacher, as she rotated between schools on different days! But I remember meltdowns, I just let them go. I never punished him for them. Once his crying was over, he'd be back to normal. In this case here I'd really consider some metabolic, nutritional problem. Many kids can have deficiencies due to genetic errors (pyroluria for example) or gluten sensitivity, or amino acid disorders. Pyroluria is a defect in processing heme in the liver. Vit B6 and zinc become deficient and mood swings and anxiety and all sorts of bad acting out may result. It is totally fixed by giving extra B6 and zinc as vitamins. http://www.drkaslow.com/html/pyroluria.html I know someone who did this for her daughter. I'll email her to come on here for you. If your daughter is gluten sensitive, then the GI tract inflames and nutrients do not get absorbed either. The gluten peptide can react in the nervous system and cause many neurological things to malfire and can appear like ADHD or other autistic type symptoms. This website has a collection of papers from around the world to explain this: http://jccglutenfree.googlepages.com/ I would seriously explore some nutritional support. And also look to the diet and see if certain foods are craved (typically these are offenders), or if behaviors worsen after eating certain things. I'd keep a diary for a month, and see if anything stands out. ADHD mimics: http://www.incrediblehorizons.com/mimic-adhd.htm My son's ADHD resolved to a point where no Ritalin was needed any more, when I just supplemented him with essential fatty acids. I have a thread here on the vitamin forum about it: http://neurotalk.psychcentral.com/thread6092.html With the new food additives (and CAnada is very up to date with this) you can get the needed EFAs without supplements, by carefully choosing foods. (eggs, cheese, yogurt, peanut butter, mayo-- all have EFAs now in certain brands). It is possible to train a child to swallow a pill. You start with a tiny M & M and put it in applesauce whole and practice that way. Once that is done, you use the applesauce to hold the Concerta and give that a try. The shape of Concerta is strange and trying to swallow it sideways not pleasant for ANYONE!. Make sure she tries with it longways--for example. |
Wow, I am extremely impressed by all you did to get your child help.
Alan and I did much of the same. Many family therapists, many individual therapists, many varied diagnoses, from Oppositional Defiance Disorder, to ADD. No one ever said Bi-polar. NO ONE EVER SAID ASPERGERS. But by the time my son was 18, he had graduated high school, got a full scholarship to college and never had another meltdown. Then he just got on a plane saying he was going to school in Arizona. Alas, this did not happen. He discovered gambling, and the rest is history. I will always wonder, if we had had the correct diagnosis, and gotten him into ABA when he was very little, if we had a chance. Oh well, at least there is hope for the new generation. Every parent needs a doctor like the one you found. God Bless that man!! Melody Quote:
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This sounds like what was going on with our son.
All through grade school and Junior high all we heard were the words "mildly retarded", "not doing as well as he could be", needs professional help, tests and more tests to find out what was wrong etc etc! We knew he was a smart kid. He was speaking in sentences at 12 months and knew colors (even chartreuse and puce), different shapes at 2 years and reading and simple math at 4 years old. I dreaded school parent teacher meetings and talking to other parents and hearing how well their kids did in school really made DH and I feel like failures. My husband transferred to another state and we followed when the house sold. We enrolled our son in a much bigger school in a big city and I was afraid he would just get lost in the system. Imagine our surprize when we went to teacher conference we were dreading and instead heard the words "excelling in all classes", "pleasure to have your son in my class". He made the "A" honor roll!! He graduated 2nd in his class with a 4.0 grade average in a class of 350 students! There was an article in the paper about the honor students and grads and I sent it to our hometown paper and school admin office. He is a very successful, happy young family man now and I am so glad there were educators who were smart enough to motivate him to doing well and not labeling him! |
AZjanie:
Your son just needed an environment where he could SHINE. AND SHINE HE DID, DIDN'T HE??? Good for him!!!! |
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If it turns out she is austistic maybe there will be a good placement for her where she can develope to the highest standards. Friends of ours have a granddaughter who was born with numerous terrible afflictions and they have spent their life finding the best there is to offer for her. They are not wealthy and they have utilized all government programs (Statewide) and she has had the best of life under the circumstances. In her case she is physically and mentally afflicted. Her parents and her sibling give her love and the means to be successful. She is now in her 20's and living in a home with another person who has a similar problem. She is doing very well and it's really quite amazing. No, her life is not like what we call 'normal' but it is the best it can be. Don't try to compare your dd to norms. Get the best advice you can and work from there. Good Luck to you...I hope you can feel some peace soon and get some good answers. You must be exhausted. Tootsie |
Last night I was on youtube, looking at those various Asperger vidoe clips, and I was amazed and the vast differences in people who have an Autism Spectrum disorder. (You're not sure though are you, that your daughter does indeed have one of these spectrum disorders, right?) They are so vast and different from one to the other.
I saw various people (mostly boys) who have either Aspergers, High Functioning Autism, or sever autism. And some of these were Savants (which NO ONE CAN EXPLAIN). Well, I compared all the Savants and many of them have one thing in common. They all had head injuries prior to the savant behavior. One guy was about 8 and played on a baseball team. He had never had a problem before. Well, one day he gets hit in the head with a baseball and immediately after that, if you gave him a particular date (say for example, January 21, 1963), he could look at you and immediately say "oh that was a Monday, and the weather was partly clear, with showers). He was dead right on absolutely every date that he was given. Another guy did the same thing. Only he had fallen and hit his head, and became an artist. It was explained that when the brain is injured in a particular way (and no one knows exactly WHAT way), the wiring is screwed up, and the brain's electricity has to go SOMEPLACE, and when it goes to THAT PLACE, these kids become savants. No one really understands why. The film Rainman is based on Kim Meeks, who is a savant, is absolutely brilliant, but can't dress himself or tie his shoes. He is quote social and loves traveling with his dad. I have seen documentaries on this man. Most interesting. The most fascinating youtube video I saw last night was a young man, about 25 or so), who had been diagnosed with Aspergers. He's a mathematical genius, and a genius on the computer (aren't they all?) The mother was seated on the couch next to him, and this medical expert was interviewing her and asked her "how was he as a child?" and she said "well, if he had been my first born, I'll be honest, I would have never had another child, he cried for two years straight, and the tantrums and the meltdowns were awful". He just wouldn't listen". So there he was sitting next to her on the couch and spoke and looked perfectly fine. He drove a car, and I believe he either went to school or he worked. The medical guy said "this is a fascinating example of the difference of this young man with others. THIS YOUNG MAN HAS LEARNED TO ADAPT. Many people with Autism Spectrum disorders don't want to adapt. They feel the WORLD should adapt. But this guy learned way to adapt. I found the whole thing quite fascinating. Given the proper instructions, and the right discipline, and the right motivation, in many cases, these children can adapt. but it has to begin EARLY!!! Not when they are teens. The personality is formed by that time. They dont' want to adapt, change or do anything. We need more programs to recognize these problems, and address them. One kid said: "The difference between asperger kids and neurotypical kids is that, let's say we are put in school, and we are told to do THINGS A CERTAIN WAY!!". Why do we have to do anything a certain way? why do we have to fit into their mold?, why can't we learn in our own way, at our own pace, in our own time?" The guy was in his 20's and I found his video most enlightening. Oh, and if you want further proof that BILL GATES has Aspergers, get of load of his stimming. It's classic autistic behavior. http://www.youtube.com/watch?v=0qNVe024RvI Now he didn't turn out so bad did he??? |
Melody,
We aren't sure as of yet. Her ped said that she's in a broad sprectrum and that her disabilities could overlap. One week her psychologist says she's regressing, then the next week he says that he thinks that she's got add/adhd with anxiety.... So who knows, we won't know until she gets tested. We're getting her tested as soon as possible, it should be in about 4 weeks. We're just waiting for an appt. thanks Cindy |
Understood.
I've been there and done that. You can pm me anytime you need a friendly ear. And we all need this at one time or another. I know exactly what you are going through. Not an easy thing. Especially when you get different diagnoses, different causes for those diagnoses, and different ways of dealing with them. As I said, been there, done that. You are, however, in a much different position than I ever was. She's getting tested, she's being evaluated. She's YOUNG!!! She has a future. Know you are in my thoughts. Melody |
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