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Old 06-08-2008, 12:28 PM #31
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lol.

well, since this is an organ donation thread, I figured I'll put it here.

Anybody who is reading the coffin thread, is probably reading the organ donation thread too!!!

but you are correct.

I am thoroughly chastised.

Melody
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Old 06-08-2008, 01:12 PM #32
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I told my husband he can donate me to science or whatever... We figure that after I die, he can write his cell phone on my butt with a sharpie with a note - "please call when you have figured out what is wrong as no one did when she was alive" and hopefully someone will call him with an answer and they can keep all the parts they want.

I have some sort of weird platelet thing that sometimes they work, and... sometimes they do not... so they made up a word for me - idiopathic (of course!) thrombocytopathy and told me to get a medic alert. I used to give blood all the time and so I contacted the blood bank and it went all the way up to the top and they finally said no, stop... they did not want my faulty platelets in the supply.
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Old 06-08-2008, 01:30 PM #33
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Doing some research, I found articles regarding recipients of organ donations and the use of Medical Marijuana which I found interesting:

Here is one dated May 19, 2008:

Quote:
Medical marijuana and organ transplants don't mix
Quote:



Patients who have used doctor-prescribed pot are being turned away from hospital transplant programs.
In this article, the issue of the patient/organ recipient using not only prescribed medical marijuana but other medications as well is cause for rejection. This may not be what Cindy is looking for, but it is just as important.
http://www.latimes.com/news/nationwo...9.story?page=1

I found this table:

Table 3.2

Reasons for Non-Use of Recovered Organs, 1997 to 2006

Kidney



http://www.optn.org/AR2007/302_ord.htm

here's the entire report of all organs:

http://www.optn.org/AR2007/data_tables.htm
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Last edited by tovaxin_lab_rat; 06-08-2008 at 10:22 PM. Reason: spelling
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Old 06-08-2008, 01:47 PM #34
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Quote:
Originally Posted by yeahbut View Post
I know I didn't answer any questions and probably hijacked the thread but there are other ways to help as Southie stated......
You didn't Hijack the thread at all - there's
multitudes of ways people can help, and yours
was another way; however, these things must
be done in advance.

1) You have to register with the specific Research
or University or wherever the body is to go to, so
that they can have this information and data on
file.

2) THEY send you the paperwork - which you fill it
out, and copies are sent to the Physicians, State,
and/or Federal / National database registry system
(in the event if there was an tragic accident which
was unfortunate for example, where the party was
out of their State)

3) A special card, usually laminated, is provided,
along with a serial number, telephone number, etc;
because in some cases - time is a critical factor!

(I can't remember what all is there that goes along
with it - but every Organization / Research varies
specifically in regarding to the body)
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Old 06-08-2008, 03:22 PM #35
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Hello everyone! I just have to come back here and say a huge THANK YOU to AMN for bringing awareness to organ donation. My DS had his labwork yest and is holding his own on kidney function. (yah) He goes to the Univ for his transplant checkup Wed.

The labs are so important *BUN and Creatinen* as they monitor kidney function. Thank you everyone from a family that knows how organ donation can save lives.

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Old 06-08-2008, 03:38 PM #36
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Great thread, Cindy . I will be donating my organs and my brain tissue (I just read about that in the summer issue of Momentum). I did find out today that Ms'ers an d people with certain other autoimmune disorders can't donate bone marrow . I really wanted to do that because I've heard that there is a real need for people to sign up on the bone marrow registry. I wonder what effect my Tysabri use could have on my candidacy for organ donation? Does anyone know anything about that? There really needs to be one place where you can find all of this type of info. It is just scattered everywhere as far as I can tell.
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Old 06-08-2008, 04:27 PM #37
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Cheryl said the organs of those who take meds will be regected. Though I take meds for my epilepsy, whats wrong with my organs (besides liver)? If something is wrong with my organs, why are they giving these meds? Besides, I'd love them to have my brain to inspect & maybe learn, so others could be helped.
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Old 06-08-2008, 06:55 PM #38
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Quote:
Originally Posted by lor View Post
Cheryl said the organs of those who take meds will be regected. Though I take meds for my epilepsy, whats wrong with my organs (besides liver)? If something is wrong with my organs, why are they giving these meds? Besides, I'd love them to have my brain to inspect & maybe learn, so others could be helped.
Lor, Cheryl didn't say that, she offered a few articles that talk about it.

We're trying to learn whether there is a searchable database or index of specific Rx meds and their influence (if any) on organ donation acceptance.

Have you looked into the different, ongoing medical studies on epilepsy? There may be a donor bank that will gladly accept your gifts.

I'm afraid I'm a bit ignorant when it comes to epilepsy, is there a society or foundation to support those in the epilepsy community? They would surely have available resources for you.
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Old 06-08-2008, 07:16 PM #39
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Quote:
Originally Posted by lor View Post
Cheryl said the organs of those who take meds will be regected. Though I take meds for my epilepsy, whats wrong with my organs (besides liver)? If something is wrong with my organs, why are they giving these meds? Besides, I'd love them to have my brain to inspect & maybe learn, so others could be helped.
Nope Lor, that's not what I said. If you read the article I posted, Lor, that's what the articles are talking about, as Cindy pointed out. I did some online research to see if I could add to what Cindy was posting. It seems to be a subjective issue doctor to doctor, hospital ethics committee to hospital ethics committee. Not really fair as they are judging the recipients based on their lifestyle and not medical science. If that is the case, then that opens the door for a lawsuit as I found out.

If it's based on medical science, then there should be a protocol for it...and if there is, I certainly couldn't find it written down anywhere.



Quote:
Originally Posted by AfterMyNap View Post
Lor, Cheryl didn't say that, she offered a few articles that talk about it.

We're trying to learn whether there is a searchable database or index of specific Rx meds and their influence (if any) on organ donation acceptance.

Have you looked into the different, ongoing medical studies on epilepsy? There may be a donor bank that will gladly accept your gifts.

I'm afraid I'm a bit ignorant when it comes to epilepsy, is there a society or foundation to support those in the epilepsy community? They would surely have available resources for you.
Check out the Epilepsy forum and the useful links.
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Old 06-10-2008, 01:42 AM #40
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This is for the Australians amongst us in regards to organ donation -

If you've ever wondered whether organs and tissues of people with MS would be accepted for donation in Australia, given that the cause of this condition is unknown, an aquaintance rang and asked that question.


"At the time of a possible transfer of organs or tissues an assessment is made which looks at the medical history of the donor and a decision is made then. Some tissues, such as the cornea, could be rejected on the basis of MS. So registering as a donor is still a good idea if that is what you wish to do."


Of course, the Brainbank usually want MS brains.

Just so you know.........
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