Social Chat This is a place for daily chit-chat and other discussions that are not directly related to a neurological or mental health issue.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-10-2009, 04:44 PM #21
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Holly

I'm glad you're finding that Hospice is a good thing. I honestly don't know what we would have done without them. God bless those people who do that type of work every day.....they have a special calling for it.

I'm praying for you and your family as you take this journey with your Grandmother. I was with my Dad in hospice when he passed and they made it a peaceful, calm experience for all of us. I wasn't ready (who ever is?) but I knew he was and that's all that mattered.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-10-2009), weegot5kiz (04-13-2009)

advertisement
Old 04-11-2009, 11:34 AM #22
lor's Avatar
lor lor is offline
Magnate
 
Join Date: Sep 2006
Location: Ohio
Posts: 2,808
15 yr Member
lor lor is offline
Magnate
lor's Avatar
 
Join Date: Sep 2006
Location: Ohio
Posts: 2,808
15 yr Member
Default

Holly, Your grandmother reminds me of my FIL. But he has no place to go.
Bless you & yours for what you are doing.
lor is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-12-2009)
Old 04-11-2009, 05:23 PM #23
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

hospice is amazing holly.
best to you and your family.
i'm glad they found a pain med that works for her.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
Old 04-13-2009, 07:06 PM #24
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

I'm kind of melting down today. She is so much slower every day. What am I going to do when she's gone? She's my last older relative. My Grandpa's been gone since 1994, my mom died in 2006 (she was an only child), I never knew my biological father or his family. It will be just my brother and me left from my original family. I never thought I would have so little family left at age 39.

I'm sorry, it's just really hitting me today that I'm really going to lose her. I'm so confused because I really do want her to go and be at peace. I selfishly want to keep her, though.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (05-19-2009), Kitty (04-14-2009), NurseNancy (04-20-2009), sabimax (04-14-2009), SandyC (04-13-2009), soxmom (04-14-2009), Taffy (04-13-2009), tovaxin_lab_rat (04-13-2009), weegot5kiz (04-13-2009)
Old 04-13-2009, 07:46 PM #25
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Quote:
Originally Posted by hollym View Post
I'm kind of melting down today. She is so much slower every day. What am I going to do when she's gone? She's my last older relative. My Grandpa's been gone since 1994, my mom died in 2006 (she was an only child), I never knew my biological father or his family. It will be just my brother and me left from my original family. I never thought I would have so little family left at age 39.

I'm sorry, it's just really hitting me today that I'm really going to lose her. I'm so confused because I really do want her to go and be at peace. I selfishly want to keep her, though.
Hi Holly:

Just happened to come across this thread.
Believe me, what you are doing for your beloved Grandma, well, let me assure you, you are an angel. And she knows this and she loves you.

You will learn to let go, when the time comes. For now, just hold her hand, and speak to her. She'll hear you and she'll be comforted.

I don't know if this is all on you, or do other members of your immediate household, speak to her also?? I know she probably does not respond, but this is a great learning tool for others.

Often, people don't know what happens during this time, (or they don't want to know). People shut down, or walk away, or just plain turn away.

You didn't do that and for that here's a hug.

I've been to many homes where there was hospice. And in my immediate family, my dad (when he lived in Florida), he had hospice. I will never forget all those lovely people, tapping on his hospital door and saying "Frank, we're here, how are you today?" and my dad's face would light up.

They came every day. In fact, I never got a moment alone with him, he was so busy talking to this gal, or that guy. My father loved all the attention and he actually thrived off of it. They had given him 18 months to live and he lived one more year (I believe this was because of all the good care he got and all those hospice people).

I learned much from that experience.

I learned that we each have a role on this earth. Some...more than others.

You are doing a good thing my dear.

You didn't have to.....you chose to.

Good job my dear.

Blessings,

Melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-13-2009), weegot5kiz (04-13-2009)
Old 04-13-2009, 08:29 PM #26
Taffy's Avatar
Taffy Taffy is offline
Magnate
 
Join Date: May 2007
Location: Washington State
Posts: 2,700
15 yr Member
Taffy Taffy is offline
Magnate
Taffy's Avatar
 
Join Date: May 2007
Location: Washington State
Posts: 2,700
15 yr Member
Default

Hospice are angels!

Holly...

Hang in there Holly. Grandma is proud of you.
__________________

.
Taffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-14-2009), soxmom (04-14-2009), weegot5kiz (04-13-2009)
Old 04-13-2009, 09:37 PM #27
weegot5kiz's Avatar
weegot5kiz weegot5kiz is offline
Elder Member
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
weegot5kiz weegot5kiz is offline
Elder Member
weegot5kiz's Avatar
 
Join Date: Jan 2008
Posts: 11,805
15 yr Member
Default

Holly sorry if this makes you cry, just wanted you to know you have friends here who care for you I debated making this private or public deb said public so send hate mail to her

girl that last post of yours got me all teary eyed, it isnt easy, it never is, losing someone you love so much, the love is what makes it so much harder. but she will always be there in your heart along with mom and Grandpa. My dad is in my heart and i talk to him often, yes this may sound odd to some folks but he answers me, helps guide me. Grandma has had a good life and a wonderful friend in you, she is truly blessed to have you in her life, as are your friends. you are a wonderful caring loving person, thats what makes it harder. its those who have a heart that the loss of loved ones hit hardest, you have many friends here and a lot of us would squeeze you so hard you would need a body cast. You keep loving grandma now and always, and grandma shall never leave your heart

how can we let go, when our heart says no
how can we try, when deep inside we want to cry
how can this be, when its her face i want to always see
how can i let go, when being with her is all i know
how can i say say goodbye, and trying not to cry
how can I see, from her pains she is free
how can i say i miss you so, and please dont go
how can i say i shall be blue, and grandma I love you

hope i didnt goof by making this public, sorry if i did all of debbies and my prayers and thoughts
__________________

.


History doesn't repeat itself, but it does rhyme.............................Mark Twain



.
.......
.
...
.

Last edited by weegot5kiz; 04-13-2009 at 09:58 PM.
weegot5kiz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-14-2009), sabimax (04-14-2009)
Old 04-14-2009, 08:27 AM #28
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

You didn't goof, Frank. That was beautiful. It did make me cry, but that's OK. Don't you know that your wife is always right?? That is what I tell my DH.

I guess now you know why something as stupid as being kidnapped over on FB is so amusing to me right now. I like the diversion of it. Now, if only I could actually be kidnapped and taken somewhere in real life.....
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (05-19-2009), weegot5kiz (04-14-2009)
Old 04-14-2009, 04:39 PM #29
sabimax's Avatar
sabimax sabimax is offline
Magnate
 
Join Date: Jan 2008
Location: michigan
Posts: 2,186
15 yr Member
sabimax sabimax is offline
Magnate
sabimax's Avatar
 
Join Date: Jan 2008
Location: michigan
Posts: 2,186
15 yr Member
Default

Hey Holly, had not been on this thread, I think I was shy, with my sister gone, and now my father fighting the cancer fight... just a bit emotional for me... I am emotional even when there is not anything to be emotional about!!

I am thinking of you, I am hugging you tight, !! we are here for you, and tears are a GOOD thing for you, a release, no matter how many times you tear up..that is Aok!!

I am glad you have her there, good for you for doing that, you are wonderful for that!! Hospice is a great service glad you have that too.

Frank made me cry too, and glad he did the poem publicly, Is he just the greatest, although we keep having to remind him his wife is always right!!

FRANK WIVES ARE ALWAYS ALWAYS RIGHT!!!! hugss

hugss to you holly, sorry it took me a few days to get on here and type, hugssssss,sarah (another one here for you when you need hugsss)
__________________

.
KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!!
.
sabimax is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
hollym (04-15-2009), weegot5kiz (04-16-2009)
Old 04-22-2009, 08:18 PM #30
hollym's Avatar
hollym hollym is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default

I'm freaking out. She is completely out of her mind right now. She is not making any sense, she is talking to people who aren't there (my Grandpa, her cousin), seeing things, can't remember that she is immobile and forgets that she has a catheter.

She keeps telling me over and over that she has to get up to pee and I keep reminding her that she has a catheter. This is every five minutes! She has had a catheter for about 2 months now, but suddenly she doesn't know.

The scariest part is that she gets mad at me because I don't understand what she is looking for. Is she going to die thinking I'm mean because I won't take her to the bathroom to pee? This is by far the most disturbing part of this. It's just not fair for someone to suffer so much. I had to leave the room because I just couldn't take it.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
help i am scared suziq Aneurysm 16 01-29-2009 05:29 AM
I Am Scared azoyizes The Stumble Inn 41 01-25-2009 04:02 PM
Scared!!! over0protected Reflex Sympathetic Dystrophy (RSD and CRPS) 6 07-08-2008 02:04 PM
I am scared Mrs. Bear Bipolar Disorder 16 02-05-2008 04:22 PM
New and scared daisy mae New Member Introductions 5 01-18-2008 05:21 PM


All times are GMT -5. The time now is 08:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.