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Old 05-08-2009, 12:36 PM #1
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Blessings to you for all you did for your dear grandmother, Holly.
She's without pain and at peace now.
I am sure she would wish peace for you at this time after all your hard work. My prayers are being sent up for you and for her at this time.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
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I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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hollym (05-08-2009)
Old 05-08-2009, 03:16 PM #2
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Today started out better. I didn't cry nearly as much. I didn't have to go to the funeral home to discuss arrangements and sign papers (definite plus). The kids, my SIL and I went to the Olive Garden where DH is a manager and ate lunch. Then, reality hit. I came home to let the guy in from the medical equipment place so he could take all the equipment out of here. Her room seems so empty now.

I know it seems so soon, but my 12 year old son wants to move back into that room (it was his before Grandma moved out here last year). Since it doesn't bother him, I'm going to let him go ahead right away. I can't handle walking past that room and having it be empty.

Last night I stood in the doorway and cried. The bed was empty, the oxygen machine was silent, and it was just so sad. I felt like I should go sit in there and watch TV with her. While she was still alert, we watched TV together in there. The last few days, I was in there a lot watching TV and on the laptop while she slept.

If Michael moves back in, there will be life and energy in there again. I think she would want that. I think I need that.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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Old 05-10-2009, 08:35 AM #3
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Holly? How are you doing?


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Old 05-10-2009, 02:17 PM #4
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Quote:
Originally Posted by DAY1 View Post
Holly? How are you doing?


DAY
I don't know. I guess the best word right now is numb.

This weekend is kind of weird. Yesterday was Grandma's birthday and today is Mother's Day - kind of bitter sweet. DH and I went to dinner last night and we toasted Grandma for her birthday while we were out for his birthday (April 26) and Mother's Day. His birthday got kind of lost in the whole hospice thing. Last year, we went out the three of us (DH, me and Grandma) and celebrated Mother's Day and her birthday. Hard to believe so much changed in a year!

I finally made the arrangements for the memorial service. I just couldn't get it together and then it all suddenly fell into place. It will be on Thursday. The funny thing is that was the only day that would work out schedule wise and it turns out that it is my Grandpa's birthday. If he was still alive, he would be 96!! He was 10 years older than Grandma.

I also found the program from Grandpa's memorial service in Grandma's address book when I was calling people and now I know what poem to use on her's. I will use the same one we used for him. Here it is:

Do not stand at my grave and weep
I am not there; I do not sleep.
I am a thousand winds that blow,
I am the diamond glints on snow,
I am the sun on ripened grain,
I am the gentle autumn rain.
When you awaken in the morning's hush
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry,
I am not there; I did not die.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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Old 05-10-2009, 05:16 PM #5
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I like the poem Holly. I also like that the service will be on your grandfathers birthday.


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