Has anybody on this board ever been removed from SSDI after a review? I'm sure it happens. Yet you would think that if your still taking your meds and not working you should be safe-right?

I sure hope you're right.

I didn't know they made you see their doctor. Was this after you filled out the paperwork? My review will be in July of 2012. Someone asked if anyone knew someone losing thei rbenefits. Someone I know did lose theirs in May. They were awarded based on seizures. He had roughly 8-12 a year. They are now down to 2-4. So they took him off. He is 48 and is going to try again in 2 years. He has fought it but been turned down so far. The next step is to go before a judge again. He is very nervous about it.

Was he working while on SSDI? I heard that does raise flags. Is it true? I dont know, but I have heard if they see you working PT then they can say you can go back to FT work and lose the SSDI benefit.

my cousin who was recieving ssdi for about 15 years for bi-polar disorder and depression recently had his benefits stopped for the following reason.he recently had his disibility case reviewed by the social security admnistration..this was his 3rd review in 15 years since he first got on ssdi.social security sent him a letter giveing him there decision about his disibility case review.they said in the letter that they find that he no longer qualifies for disibility benefits under ss rules because he had not seen a doctor or takeing any medications for quite some time.the letter goes on to say that since he has not seen a doctor in a while or takeing any medications that his condition has improved to the point where he can return to work...

Was he working all those yrs? Like even part time? Also did he not see any doctors and take no meds at all? If so, for how long of a gap did he go on without seeing a doc or take his meds?

Thanks!

I received word from Social Security today that I've been re-approved. Thanks to everyone for their words of encouragement.

Thanks,
Kelly

Congrads Kelly !

A sigh of relief for the next few years until it's time for the next review !

Good for you!!!!!! Breath easy now!!!!

I am experiencing a review after receiving benefits for 8 yrs now. I had no idea that although I was deemed to have a permanent disability that I would still have to now prove I qualify. I keep reading here that a big issue is that you need to see your doctor regularly and take meds. After the first few yrs. of trying different medication "cocktails", nothing improved my condition, Paroxysmal Nocturnal Dystonia (seizures during sleep) There is no treatment for it. In fact all meds that were tried over the years practically turned me into a pharmacy smelling zombie. So, I now have a serious concern that although my condition is static, I will be denied continued benefits because I don't take meds.