My girlfriend, a landscape gardener, has PD and having to work with PD is really doing a number on her, mostly because of her tremors, the rigidity on the left side of her body, her frequent every-20-minutes urination needs, and the terrible fatigue that comes of PD and working in 90+ degree heat. It's brutalizing her. She's in tears a lot, is always exhausted, is suffering also from insomnia and depression, has to take naps during the day just to make it through another day. She's her own boss, and I think she ought to shut down her little one-person business and apply for SSDI, but the fact is, she can still make it to work, if only because she's stoic like that and refuses to give up, no matter the cost to her health or her sanity.

She's also having a terrible time running her business, the paperwork and all, because of mental fatigue. She's become extremely forgetful and that aspect of her business is in shambles. She has a fairly severe case of ADHD (her 55 year old brother has been on SSDI for like 20 years because of his ADHD), but PD only worsens the problem.

So, in terms of SSDI, who or what determines when you can no longer work?

The other issue is, she has minimized her problems when she's gone to see her doctors, again because she's stoic but also because she's still trying to deny them. Recently, though, she's beginning to see that her problems are getting worse ....

Me, I want her to stop work now or at the end of the summer and spend the next six months going to her doctors and telling them the unvarnished truth about what she's experiencing, so that those experiences will be reflected in her records, when she goes to apply for SSDI.

Is this the right way to go about things? Or does one have to be told by a doctor, you can no longer work?

She's going to her GP tomorrow and I"m trying to ready her for the visit.

thanks!

Your girlfriend is the person who decides when she can no longer work. Having said that, it's best to have some doctors lined up who agree with her. Any documentation medical or non-medical needs to be submitted with the application in order to have the best chance at winning. Start with family and co-workers who can write letters affirming her ph ysical and mental limitations in doing her job.
I assume by PD you mean personality disorder. If so there are a number of supplementary forms used for mental disorder. Check out http://ssdi-help.com/ssaforms/ssa-forms.htm which has copies of the Psychiatric Review and Mental Residual Functional Capacity Report. These are supplemental forms her doctors can complete. Also, personalily disorders are specific listing in the SSA's Bluebook which lists all the criteria for immediate approval, http://www.ssa.gov/disability/profes...ltListings.htm
PD is 12.08 in the Blue Book.
Also, if she can complete the Adult Function Reprot (also on the SSDI-help website) with thorough answers, it will help her case.
Good luck.
Trudi

oops. PD stands for Parkinson's Disease. But thanks for your thoughts anyway. Very helpful!

Read the "Stickies" at the top of this site.

Individuals make their own decisions about whether they go to work or not. Some people are very stoic and work through pain and others whimper at the least little problem.

In terms of qualifying for Social Security Disability Insurance (SSDI), there is a 5 step sequential evaluation that is applied.
http://www.socialsecurity.gov/OP_Hom...6/416-0920.htm
Briefly:
Step 1 - Is the indivdual still working and performing substantial gainful activity? Determined by hours worked, help given to do the work and how much is paid for the work. If she files a claim before she stops working, she may be denied if she is still doing what she used to do for the same amount of money. If she is not, she will have to show a whole bunch of proof. If no, go to step 2.
Step 2 - Does the individual have a severe impairment that is documented by objective medical findings? What do the medical records show? If no, denied. If yes, go to step 3.
Step 3 - Does the diagnosed condition meet or equal a listing - a specific definition of symptoms required to be found disabled. Not just a named illness. In cases involving progressive illnesses, the day the individual stops working is often considered the date of onset of disability since that is the actual date that they stopped dragging themselves to work. If the symptoms meet or equal a listing (not just the name of an illness), a person is found disabled.
http://www.socialsecurity.gov/disabi...book/index.htm

If a person cannot be found disabled at Step 3, SSA goes to Step 4 - can the individual perform their recent relevant work? If yes, claim denied. If no, go to step 5.
Step 5 - can the individual, considering their age and vocational background and education as well as their medical condition, be expected to be physically and mentally capable of doing an easier type of work? If yes, not disabled. If no, disabled. There are people who want to do away with Step 5. If it was eliminated, there would be fewer, not more, people approved.

Since this is a legal definition of disability in the Social Security regulations, government employees decide if someone is disabled according to the regulations or not. There are some government employees with medical degrees, but most are trained to follow policies previously established.

There is an appeal process for people who are denied. The higher you get in the appeal process, the more legal issues are raised to determine if the medical evidence is evaluated correctly.

You will hear that everyone is denied SSDI the first time. Totally false. Urban myth. However, it is true that close to 2 out of 3 cases are denied on the initial level and the first appeal level. That means 1 out of 3 cases are approved.

There is a five month no-payment period after date of onset before benefits can be paid. There is a welfare disability program, Supplemental Security Income (SSI) that also exists, but the person has to be found not just disabled but also limited income and assets.

Read the stickies in this forum. Read everything you can at socialsecurity.gov. Do not assume that anyone's anecdotal story applies to your girlfriend. Do understand that the people who post to these forum are generally the 2/3 that are denied initially. Not everyone who files has a severe problem. Do not expect this to be a simple process. If approved, she will also probably be bringing in a lot less money than she did while working. Social Security Statements with benefit estimates are now available online at socialsecurity.gov. Do that before starting an online claim. And print it.

I hope she shared with her GP everything that is going on with her symptoms and the difficult time she is having struggling to stay working.

Laying the groundwork now, even though she is still somehow managing to haul her butt to work may help her case when she realizes she can't do it anymore. Perhaps her GP could document the severity of her tremors, her insomnia, her mental status, her vital signs and labwork now....while she is stressing her body to the max. She might show some improvement in symptoms when her body is getting more rest.

Landscaping is also difficult manual labor. Perhaps she could work at something less strenuous.

If she can't work at anything, help prepare her mentally (and financially, if possible) for the lack of income while she waits for SSDI approval. As Janke mentioned, even if your gf were to be approved right away, she'd have a minimum of 5 months of no income. She'll also have to think about getting COBRA coverage for health insurance, as Medicare doesn't kick in until 24 months after SSDI finds you to be disabled.

It is critical that she be totally honest with all of her docs about her difficulties in working. If she has been lax about scheduling appointments, she needs to get on that NOW with frequent follow ups with her GP, a psychiatrist/psychologist and a neurologist. She will need thorough documention from them to support a claim.