but somtimes it seems to me that ssa makes up the rules as they go. i contacted ssa via email with my concerns. 4 days day later they responded with an explaination that applied to people on ss retirement.

You want to avoid human interaction when possible when dealing with SS.

They got your money, just like bank bailouts, they got what they wanted from disillusioned taxpayers, and could care less.

I'm not sure who you emailed or what your question was? As a general rule, staff at the 800# or a national office will have more experience with SS retirement then SSI/SSDI and they sometimes don't have adequate training. When possible, it's best to contact your local field office since they have more training.

With the form that is scanned, a computer follows the rules exactly as programmed. Most staff will as well, as you can see from the POMS I linked, their instructions are very specific. Many beneficiaries unknowingly will make an error on the form that will encourage a Long Form. Be very careful how you fill your CDRs out. If you're unsure how to do it, ask questions before starting. http://nymakesworkpay.org/docs/Guide_CDR.pdf

Many attorneys encourage their clients not to ever work, even pt. I think if you can work, you should. Hopefully, you'll end up being able to return to work ft eventually.

I returned to work PT - I believe it triggered a short form 455 and while I am under 20 hours a week and under 700 a month (15 hours a week - 600 a month) I just received notification that I will NOT lose my SSDI benefits.
I wanted to tell others that it probably depends on your physical scenario.

I'm 60 - on SSDI for 10 years. I was truly paranoid that I was going to lose my benefits but with my husband on the liver transplant list and ultimately almost going to lose housing I *had* to figure it out to keep a roof over our heads.
I had to.
Fortunately, I guess because of my age, because of my disability, because, because... I am OK.
thank God.
It's not easy... trust me - it's not...

Ever consider a room mate to share in the monthly rent and other expenses?