I have a rare immunodeficiency disorder that was inherited from my mother. It largely affects my CD4 count. It can fluctuate from normal to well below normal and it is pretty random. It's also a rare condition and is often difficult to describe to doctors since it isn't categorized. About a year ago I had a bad case of shingles then a year later a small case. I can sometimes get oral thrush 6 or more times a year and feel tired. I had colitis that was almost deadly about 8 years ago and I randomly get candidiasis of the throat. If I get, say the flu, it will last me 2x longer. Basically, my immune system doesn't increase when infected. If I don't get treated right away my immune system would spiral out of control and bring on more infections.

According to the SSA disability rules, it seems that if I have a number of "manifestations" then I qualify. I am worried since I have good years and bad years that it might cause me to receive a long form.

As far as treatment, they looked into giving me an immune transplant but later explained to me that my immune system is too matured for a successful transplant. I could also receive hemoglobin injections but my doctor is unsure of this as well. In my case, it's basically treat the infections as they come. It's possible that in 5 years time some major medical change can occur and a treatment plan may be very effective to me but thus far it's treat as I go.

I received the short form and I think I might be in the "low" category. But I concerned what is meant by "recent" doctor visits and if it always has to be several.

Any of us on SSI or SSDI should be prepared to undergo the CDR process as often as once a year or if you're not expected to recover every 7 years or so.

What you're describing doesn't sound like you'd have an easy time being approved for SSI/SSDI if you had a new application. You'd certainly have to stress the issue of environment...

Undergoing the long form CDR is often compared to the original application process. I'm not really sure how you'd fare if you received the long form CDR today.

Qualifying for SSI/SSDI is kind of a strange thing, because some of the rules are terribly antiquated. Using the Dictionary of Occupational Titles is crazy IMO because technology has changed job descriptions so drastically that few match them as written. (The DOT was last updated in the early 1990's.)

It is not at all uncommon for employees to telecommute today, but SS doesn't currently factor in those jobs. They will likely change that policy at some point.

You might consider utilizing the Ticket To Work program: ttp://www.ssa.gov/work/overview.html#a0=0

If your health worsens and you need to go back on SSI/SSDI you aren't required to reapply in the first 5 years I believe.

The Federal government recruits disabled workers: http://www.opm.gov/policy-data-overs...ty-employment/

Let's say you could get a job answering calls for a government program, you'd be earning much more than your current benefits (I'm assuming you receive SSI from what you've said) but you'd also be earning credits for SSDI in case your health becomes worse again later on.

OMG everyone is always so worried about that silly form. If you want a good idea of whether or not SSA is going to do a full review, call the national 800 number. They can answer questions but have no authority to trigger a review. Ask what your review schedule is and ask what priority your med cdr shows. If your review period is longer than 3 years and/or the cdr priority is low (they don't always show a priority) it's unlikely you'll have a full med review. if it's your first review, it's also unlikely. And the stuff you listed on your form is fine. A lot of that you deal with due to your condition. Quit worrying over the small stuff! :-) also, if the first person you talk to can't tell you those answers, call back. Some TSRs are more efficient than others.

Triggering the long form CDR would be a MAJOR inconvenience for many of us.

I would not advise anyone call the 800# unnecessarily. I've read that when certain areas of a person's file is accessed, the program, not the employee will send a CDR early. Also, SS lists a person's schedule and their priority on the second line of their CDR form and often on their FF decision.

Whether it's someone's first review or not does not make a difference. It's very clear that certain responses will mean they undergo a long form CDR.
priority on the second line k.

It's been almost three months and haven't received a letter saying that I won't be reviewed. Should I be worried or is it expect? What's the average time frame for waiting for a reply from a short form CFR?

I did however receive an award letter stating that I would be getting an increase in benefits. I am not sure if this reflects positively or not.

TY again.

An increase in benefits due to the COLA?

No need to worry at 3 months, it can take up to 6. You'll receive a letter if you have to go through the long form, or you'll receive a letter stating no further review is needed at this time.

Yeah. I thought that it would be a good sign that I would be receiving a letter that I won't be reviewed at this time.

Also thought that the 3 month waiting time might have been a sign that I would be reviewed since it seems people get their acceptance letters so soon (for short form replies).

My last one took much longer than 60 days.

Thank you Lit Love.

im 58 been on ssdi for 7 years,work all of 2014.my condition is not better i have lost all cartilage in one knee.i decided to drive a taxi this will keep me off my feet.i average 740.00 since january 2014. im adding this to my short form report ,will this trigger a red flag