Hi everyone. I was wondering if some of my anxiety about the Short Form for SSD UPDATE report (SSA-455-OCR-SM) won't have any issues.

I have an autoimmune disorder; a rare form that is uncategorized. I often get infections from it. I am worried that instead of writing that my most recent visit was for AUTOIMMUNE that I will have to get a long evaluation. I have been a shut-in for years and something like this would be a nightmare for me.

I was also a bit wordy in my REMARKS section and included an index card detailing that I was diagnosed with ADD and where. I know that something like 2.5% get the long form and most are just reestablished but in my rush I think I hurt my process.

Instead of writing AUTOIMMUNE, I wrote that I had SHINGLES, ORAL THRUSH, and a LUNG INFECTION in the boxes. I also wrote that I was hospitalized for a lung infection.

I am worried now that my review will be sent over to a person. I wrote that my condition was SAME and that my doctor didn't recently discuss with me whether I can work.

Should I be concerned?

Thank you for the heads up.

You should NEVER put anything in the remarks section of the short form. That kicks it for a live person to review and then they decide if you should receive the long form. It can take as long as 3-6 months before you receive the letter, and you just have to wait unfortunately. DON'T CALL SS! You don't want to trigger the long form.

Odds are you won't receive the long form, but please read this for next time:
http://nymakesworkpay.org/docs/Guide_CDR.pdf

Thank you for the reply LIT LOVE. That is a bit concerning. I am now 13 and have been on disability since I was 18.

Was it also bad for me that I wrote down the symptoms rather than the condition?

Sorry, I meant I am now 30 and received since 18.

See pg 3 of that PDF link Lit gave- suggestions on best way to fill it out - But what is done is done, just have to wait if you already filled it out.
For next time...

[• Fill out the form exactly as instructed. Use a box for each
letter or number. If the boxes run out, stop, even if it’s mid-
word.
• No new information. The goal of this form is to simply
confirm the information they already have, so an individual
does not want to include any changes, not even administra-
tive changes such as an address change on this form. New
information will cause the form to be kicked out for human
review.
• Use original diagnosis. Under “Reason for Last Visit,” use
the same diagnosis for which the individual was originally
approved.
] http://nymakesworkpay.org/docs/Guide_CDR.pdf

I have a question about the section 5 and reasone for seing doctor. I see a therapist weekly and a pschiatrist every 3 months. So in June I saw them both. Therefore I should put PTSD Therapy June, PTSD psychotherapy June and PTSD Therapy May? Will two visits in June trigger anything. Techincally I could put PTSD medications for June also but then this would be June for all 3 places. Not sure which ones to put. Please advise.

Sigh! I'm sending out mine today!
Reason for Doctor's visit? Pain Management, Back Pain, Chronic Pain. I go Every month to renew my pain meds. I did list them on the Remark Section.
I pray I do not get the long form....I am in so much pain & tired.
3 failed back surgeries, knee surgery, the other knee has a torn meniscus & neck implant at C5, C4 is herniated/protruding disc.
T4-5 herniated. Depression. Thanks to a car accident 10 years ago, I can hardly walk today. Now is Hip Pain....I can't Take it! It is exhausting just getting out of bed.

according to this http://nymakesworkpay.org/docs/Guide_CDR.pdf you should just Use original diagnosis. Under “Reason for Last Visit,” use
the same diagnosis for which the individual was originally
approved.

Thank you for the replies LIT LOVE and Jo*mar.

I have another question. Is it true that they go by the rules from when you were first awarded rather than the current rules? Is the main goal they look out for a matter of whether or not your condition seems to be improving?

Is it more in my favor since it's an inherited condition (permanent)?

I don't remember ever receiving a CDR since I first receive SSDI since I was 18. That may mean that I have no point of reference. Is this bad or do they periodically check my medical records on their own?

I have also never been employed. Does this hurt or help my chances?

Thanks again.

Was your condition originally a listed impairment and no longer is? If there is a different rule change you're concerned about, please be more specific. For those that have been effected by changes in SS policy they seem to be given long form CDR right off the bat.

SS does generally expect you to see a doctor regularly, and if you have infections several times a year I would assume that would apply to you. They expect you to be to compliant with a doctor's treatment plan, but they won't request medical records for a short form, only if you undergo a long form CDR.

Working even part time can lead to more frequent reviews.

If you are interested in working from home (and capable), you might consider the Ticket To Work program.

You have to balance what makes sense as far as potentially risking your SS benefits and the financial reward of attempting to find a job that can accommodate your special needs.