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Old 07-09-2015, 11:39 AM #1
canifindagooddr canifindagooddr is offline
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I'm sorry I have gotten lost. What was the info that Lit put out that she is now calling a mistake and/or is in need of correct? Thank you.

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Originally Posted by Hopeless View Post
Hi Lit Love,

Thanks. That is exactly why I warned D of the sources of information he might gather. I guess I was thinking only of the grid rules.

Thanks for explaining where my thinking goes a bit off kilter, especially, for the sake of the person that began the thread, and me, too. (And all others that might read the posts.)

I would feel really bad about disseminating erroneous information.

As I mentioned in my first post in the thread, I was hoping someone like you would fix my info.

Thanks.
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Old 07-09-2015, 11:54 AM #2
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Originally Posted by canifindagooddr View Post
I'm sorry I have gotten lost. What was the info that Lit put out that she is now calling a mistake and/or is in need of correct? Thank you.
Now you have me a bit at a loss. Lit Love made NO mistake. She did mention that she was "capable" of one and that others would catch it IF one was to be made.

No one is perfect but when it comes to SSDI information, she is as close to that perfection as one can be and still be human.

The ONLY error I have seen in any post to this thread is my using your name and that has been corrected. I may have stated some things that were not applicable but Lit Love expounded and explained them for me.

Hopeless
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canifindagooddr (07-09-2015)
Old 07-09-2015, 12:18 PM #3
canifindagooddr canifindagooddr is offline
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I used my own name and I want it deleted out but I cannot find the area/icon to contact admin on. Thanks.

Quote:
Originally Posted by Hopeless View Post
Now you have me a bit at a loss. Lit Love made NO mistake. She did mention that she was "capable" of one and that others would catch it IF one was to be made.

No one is perfect but when it comes to SSDI information, she is as close to that perfection as one can be and still be human.

The ONLY error I have seen in any post to this thread is my using your name and that has been corrected. I may have stated some things that were not applicable but Lit Love expounded and explained them for me.

Hopeless
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Old 07-09-2015, 12:24 PM #4
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Originally Posted by canifindagooddr View Post
I used my own name and I want it deleted out but I cannot find the area/icon to contact admin on. Thanks.
I sent a message to admin to help you with that. There is an icon REPORT that you click on and send them a message regarding the posts involved.

It is on the left of the screen.

You may want to locate any posts YOU made that include your name and send a message so they don't have to look for them.

Hope this helps.
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canifindagooddr (07-09-2015), Jomar (07-09-2015)
Old 07-09-2015, 12:29 PM #5
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Quote:
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I used my own name and I want it deleted out but I cannot find the area/icon to contact admin on. Thanks.
If you can PM the specific post # - or report the post where the name is we can edit it out..
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canifindagooddr (07-09-2015)
Old 07-09-2015, 12:59 PM #6
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Quote:
Originally Posted by Hopeless View Post
Now you have me a bit at a loss. Lit Love made NO mistake. She did mention that she was "capable" of one and that others would catch it IF one was to be made.

No one is perfect but when it comes to SSDI information, she is as close to that perfection as one can be and still be human.

The ONLY error I have seen in any post to this thread is my using your name and that has been corrected. I may have stated some things that were not applicable but Lit Love expounded and explained them for me.

Hopeless
I wish Janke still posted actively. I know enough to know how much I still need to learn, but thank you.
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Old 07-09-2015, 02:49 PM #7
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Originally Posted by LIT LOVE View Post
I wish Janke still posted actively. I know enough to know how much I still need to learn, but thank you.
Yes, it would be nice to have the added input from Janke. It would also help that you would not have to be the primary responder. Everyone needs a break now and then.

Enjoy your time away from NT for the next few days. Talk with you upon your return.

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Old 07-09-2015, 03:58 PM #8
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cani your neurologist is very inconsistent which im sure you realize. he says you can work with pn but then tells you to rest more, work 15 minutes and rest 30 minutes. there are no jobs in the economy where that is possible.
Many people with PN are treated by neurologists or even GP's for pain since most people with pn are treated with antidepressants and anti seizure medicine for pain. Not many use opiates since they are of limited value in nerve pain and consequently dont wind up using a pain management clinic.
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Old 07-09-2015, 04:18 PM #9
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Echoes made me think about another point.

Echoes is right, many neuropathies are not treated with analgesics but with anti-seizure meds.

They will also look at your medications. If someone claims extreme pain but are not taking any type of medication for pain, that is a flag.

I can not tolerate oral pain meds. I have to use pain patches, otherwise, I get terrible nausea.

I made sure I stated that so there would be no questioning about why I was not taking any oral pain meds. My medication list was long but none were analgesic oral meds. I made sure my patches were listed.

Not everyone sees a pain mgt. doc, but if your claim is based upon PAIN due to a condition, having a pain mgt. doc would be a plus in my opinion.

I would probably have self amputated my leg had it not been for my pain mgt. doc.
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Old 07-09-2015, 04:40 PM #10
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But, for neuropathies, the anti-seizure meds are what they use as a first line med for the controlling of neuropathic pain. So, I think I'll be OK with that. I have multi-health issues going on all the time. I have been under the care of shrinks for the last 8 years now. I have DX's for BP, OCB, GAD and ADD. It would appear that having worked 25 straight years of teaching elementary PE, plus my age (51) plus TONS of medical records on MANY conditions . . . Yeah. I feel a little better now. The KU doc is young and very inconsistent. I like him but . . .


Quote:
Originally Posted by Hopeless View Post
Echoes made me think about another point.

Echoes is right, many neuropathies are not treated with analgesics but with anti-seizure meds.

They will also look at your medications. If someone claims extreme pain but are not taking any type of medication for pain, that is a flag.

I can not tolerate oral pain meds. I have to use pain patches, otherwise, I get terrible nausea.

I made sure I stated that so there would be no questioning about why I was not taking any oral pain meds. My medication list was long but none were analgesic oral meds. I made sure my patches were listed.

Not everyone sees a pain mgt. doc, but if your claim is based upon PAIN due to a condition, having a pain mgt. doc would be a plus in my opinion.

I would probably have self amputated my leg had it not been for my pain mgt. doc.
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