WOW! You are so strong and brave. I couldn't imagine having all that! I am too a person with a very very very rare story. I joined this site today! I'm a 17 year old girl on Parkinsons disease medication for a brain condition causing my muscles to twist, contract and do all sorts which gave me severe scoliosis! Stay strong! You've overcome so much!

Silver, I'm sorry I haven't been back, but my son has been in the hospital gravely ill.

What have you decided? Have you made any decisions yet? I've been thinking about you and wondering what was going on. I know you have a lot to think about, and it's scary. Please let me know when you have some time. Sending prayers your way. Hugs, Lee

Sorry to hear of your sons illness. You will be in my thoughts and prayers with your son. I hope he gets well soon. ginnie

I am so sorry to hear about your son Leesa, I'll keep you both in my prayers. I've been trying to keep up with the new post...but ...running to doctors again...The two procedures I thought of having I've decided not to do it. I found a good site on both and the complicataions and reaccurance is so high, plus alot end up in more pain than before. My Primary Care Physician agrees, to just treat (medications) right now, however we have found more cysts but at least they are just in my kidneys, I go back to the doctor the 30th for that. I know things are going to get better, expecially once I get this infections out of my body and quit having these terrible chills, living under an elelctric blanket this pass week.
Leesa, Ginnie, when I win the lottery, I will fly us over to see greeneyes 1994, and we will have a girls night out...
everyone take care and remember that God is in control, he will never leave us or forsake us and will lift us up upon wings of eagles. ...Silver

Silver -- I have to tell you that I'm relieved !! The chance of recurrance is quite high, and I know you don't want to go thru that again!

Managing your pain isn't as bad as it sounds, as I've been doing it for quite a few years now -- we finally found a combo of meds that works quite well. So it's not all bad.

Keep us posted, will ya? And wouldn't it be nice if we could all meet? Ahhh well, we can dream, can't we?

Hi, and thank you for the kind words. Looking forward to the lottery. I believe in miracles! Getting ready for this storm. Will be off line until it is over. This is why my home is on the market. Very hard to evac being disabled. I pray this storm passes and lets people get out of harms way. It isn't just me, it is the whole of the western state of Fla. in danger. I do ask for prayer for the state, and for those in harms way. I am frightened as I am 127 steps from the beach, tidal flooding will be the issue. If I had been able to move before, I would have. House was in a trust and it took legal stuff to do it. Off to get car cleaned. I do have a great evac site about 40 miles inland. God bless all of us. ginnie