FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems. |
Reply |
|
Thread Tools | Display Modes |
![]() |
#31 | ||
|
|||
Junior Member
|
Quote:
I'm going to do a ton of research on the injections and find out just how successful they are and find out what I can reasonably expect. |
||
![]() |
![]() |
![]() |
#32 | ||
|
|||
Junior Member
|
Quote:
![]() Like I said, I will be ecstatic if this injection will alleviate my pain, but I'm worried about any permanent damage that I either already have or will eventually have if the severe stenosis doesn't get dealt with. I was quite surprised at how blunt my doctor was about having surgery: he said that even though I'm a younger guy, he didn't want to wait very long to make the call for surgery or not because of the severity of the issue. He said he wanted me to do the pt and injection to make sure he covered all the bases before resorting to surgery. I'm not sure what three weeks of physical therapy could do, but I'm willing to try it if it gets me to a solution sooner. If we decide on having the surgery, I'll definitely have a large list of questions ready to ask. Again, I appreciate your support, as well as everyone else who has taken the time to comment in this thread. Without you guys, I'd be going insane, trying to decipher this MRI report, and I'd probably end up with some very wrong conclusions, like assuming my legs are going to fall off or something. |
||
![]() |
![]() |
"Thanks for this!" says: | gatorhead (11-27-2012) |
![]() |
#33 | ||
|
|||
Elder
|
The reason why I am a bit leary of injections is they are NOT regulated as of yet by the FDA. Steriod shots need to come into compliance as well as the other medicines we take.
Sean said that mild Yoga, is a good beginning. It allows gentle stretching of the body, and does not tax any one joint in the back. He did say alot about massage. If you have a friend, or even a health club, they can do massage. When I was recoverying from my surgery, 90% those first two weeks were spent with massage, and only 10% on strength building. You start with small gentle movement, and increase over time. His take on it, was if there is surgery a possible, then to do no harm, and only be gentle. He agreed no chiropractic, unless cleared from a neruo surgeon. If it hurts, stop. I will try to get some specifics written out for you as well. Look into Lidocane patches, as they can relieve some of the pain. Most are covered under insurance programs. I will stay in touch. ginnie |
||
![]() |
![]() |
"Thanks for this!" says: | mg neck prob (11-29-2012), tdouglas (12-04-2012) |
![]() |
#34 | ||
|
|||
Junior Member
|
I don't have an update yet, but I'm getting the epidural steroid shot tomorrow, and I have a question. Over the past couple of months or so, while I sleep, I get woken up by a burning sort of numbness that runs down the outside of my right thigh. It's hard for me to explain exactly how it feels, but the best I can do is that it is very numb to the touch, but it also has an uncomfortable burning to it. This burning happens when I sleep with my right leg extended out, and when I wake up from the discomfort, I move my right leg around and keep it bent, and after 10-15 minutes, it goes away. I was wondering if anyone had any explanation for this. I assume that a nerve is being compressed, but I don't know if it's something to worry about.
Also, there's something I haven't really paid attention to, but it dawned on me that I should explore it -- my upper spine/neck region is also painful and has been for over a year. Whenever I bend my neck downwards (chin to my chest), I get a pain in my neck, upper spine, and mid-spine. I can also feel pain in my lower back on the right side (where most of my major pain is). It is at its worst when I wake up in the morning, to the point where I can barely move my head. I was wondering if you guys thought I should explore getting an MRI on that, or if you think it's just the symptoms of DDD. Finally, I've been reading up on ankylosing spondylitis, and a lot of it sounds like what I have. There's the obvious lower back pain, but I've also had joint pain in my knees, shoulders, and hip, and unexplainable breastbone and rib pain for years (the symptoms of costochondritis). I also have pain that basically runs down both sides of my body, like where the muscle attaches to the bone and general fatigue. None of this is particularly debilitating (except the lower back pain), and I guess I haven't thought much about it because I've been dealing with it for so long that being in pain is my new normal. I'm going to bring this up with my neurosurgeon on the 17th, but I was wondering if you guys know anything about this disease. I know I'm asking a ton of questions, so if anyone can help with any of this, I totally appreciate it. I don't want to start sounding sappy, but you guys have been so awesome to me, and you've really helped me get through this whole process. |
||
![]() |
![]() |
![]() |
#35 | ||
|
|||
Elder
|
Hope the shot gives you some relief. You know we are not professionals, but you did say alot of symptoms that are considered Neurological in nature. Therefor I would be inclined to get an MRI of the spine, to make sure you do not have nerve inpingment of the cord. The neck pain you described can be from a number of things. May I ask what you do for a living? feel better soon, ginnie
|
||
![]() |
![]() |
![]() |
#36 | ||
|
|||
Junior Member
|
Quote:
|
||
![]() |
![]() |
"Thanks for this!" says: | ginnie (12-04-2012) |
![]() |
#37 | ||
|
|||
Junior Member
|
Small update. I had my shot today. I was ecstatic to feel almost total relief from the anesthesia. Unfortunately, it made me notice my knee and hip pain more. The anesthesia has already worn off, and I'm feeling about the same amount of pain I always have. I'll monitor the situation closely over the next week and see what happens.
I talked to my primary care doctor today for the first time since I got my MRI results. She was unsurprisingly much more open to giving me pain medication; she even apologized for it taking so long for me to get some. I understand that she didn't want to give a 22 year old narcotics without proof of pain. I could have been any other drug junkie. After telling her all of my symptoms, she seemed to agree that ankylosing spondylitis could be a very real diagnosis. She ordered blood tests to test for the blood marker that is found in 90%+ of AS patients. I know this is a back forum, but I've been having pretty bad knee pain and hip/groin pain for at least a year, so I'm getting X-Rays and MRI's done on those areas soon. Also, I'm getting my cervical spine imaged, too. I'm not expecting more than some basic DDD being there, but it does hurt quite a bit, and problems with the spinal cord up there scares me. I finally feel like I'm getting somewhere with all of this. I don't want to make this my personal blog, so I'll try not to clog up the board with unnecessary posts. I'll still be checking daily for any advice you guys may have, though (I still really, really need it!). You guys are awesome! Last edited by tdouglas; 12-05-2012 at 09:36 PM. |
||
![]() |
![]() |
"Thanks for this!" says: | ginnie (03-01-2013) |
![]() |
#38 | ||
|
|||
Member
|
Quote:
You are about the right age for AS; I am assuming you had a positive HLAB27 on your labs, when you speak of a marker? Usually a panel is run along with that...including ANA, CRP, sed rate and rheum factor (sometimes CBC if RA is suspect as anemia is associated with it). Did you have those too? Sounds like you'll soon be visiting (or should be) your friendly rheumatologist! |
||
![]() |
![]() |
![]() |
#39 | ||
|
|||
Junior Member
|
Quote:
Last edited by tdouglas; 12-06-2012 at 03:09 AM. |
||
![]() |
![]() |
![]() |
#40 | ||
|
|||
Junior Member
|
I thought I would update you guys on my situation. I had the discectomy surgery about three weeks ago to shave down that disc. The neurosurgeon said it was one of the worst cases he's ever seen, and he was surprised I could even walk. He told me there was only a 60% chance the surgery would alleviate the pain in my back, and it seems like I'm in the other 40% right now. I'm still hopeful that after six weeks (the recommended recovery time), the pain will be gone, but as of right now, I'm still feeling about the same amount of pain I was before the surgery.
I've got a follow-up appointment in a few weeks, so we'll figure out what's next for me. I was in immense pain for about a week after the surgery, so if he suggests a lumbar fusion, I'll probably decline it. I don't want to go through that again. Of course, there are other negatives to having a lumbar fusion at my age as well. |
||
![]() |
![]() |
"Thanks for this!" says: | ginnie (03-01-2013) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Help I have back pain, need to understand x ray report | Spinal Disorders & Back Pain | |||
Please help me to understand my MRI report, | Spinal Disorders & Back Pain | |||
PLEASE Help me to understand | Bipolar Disorder | |||
Help me understand my MRI report | Multiple Sclerosis | |||
Please help me understand MRI | New Member Introductions |