Spinal Disorders & Back Pain For discussion of all spinal cord injuries, spinal issues, back-related pain or problems.

Reply
 
Thread Tools Display Modes
Old 11-06-2012, 08:52 PM #1
tdouglas tdouglas is offline
Junior Member
 
Join Date: Nov 2012
Posts: 22
10 yr Member
tdouglas tdouglas is offline
Junior Member
 
Join Date: Nov 2012
Posts: 22
10 yr Member
Default

Quote:
Originally Posted by gatorhead View Post
To be honest I didn't expect to see it that badly! It is in the cord pretty darn good, as I said I have multiple levels like that, not quit as severe but in the same grade. I have refused the surgery for now, and I will until I cant go any longer but that is just how I roll lol. I think that yours is the most perfectly centered that I have seen usually they are paracentral left or right. It is probably why you haven't had the leg pain's.
Because it is so centered, would I be able to just let it heal on its own? Or can it move to paracentral left/right? And hearing that you haven't had to get the surgery is reassuring. Did your doctors recommend the surgery, and what did they say was the worst thing that could happen if you don't have the surgery?
tdouglas is offline   Reply With QuoteReply With Quote
Old 11-07-2012, 02:26 AM #2
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

IMO (and the opinions of others on this forum, none of us being doctors, but all of us being patients) surgery should only be considered:
  1. After all other therapeutic options have been tried & failed
  2. After careful consideration of multiple medical opinions
  3. If not having surgery would result in permanent damage (e.g. paralysis)
(subject to correction/discussion -- I'm a little distracted this evening and not at my best)

I have "severe" stenosis and discs so degenerated I have 'bone on bone' in my cervical (c5-c7) and lumbar (l3-s1) regions and in both cases, my doctors have advised against surgery for me, citing that the risks, in my case, outweighed the potential benefits (better than 50% chance of my coming out the same or worse). This was several years ago, I get periodic follow-ups, and their opinion has not changed. Looking back, even through the pain and disability, I don't regret not having surgery; it will always be an option, but it can never be undone.

Surgery can correct physical abnormalities; it cannot always eliminate pain.
Quote:
Several recent studies have shown that the chronic pain management approach can be as effective in treating spine pain as spine surgery.
http://www.spine-health.com/treatmen...hich-right-you
Back/spinal surgery is the only type of surgery I'm aware of that fails so often they actually have a name for it -- Failed Back Syndrome

See also: Failed Back Syndrome: The Disturbing Statistics

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dubious (11-27-2012), Spiney95 (11-07-2012)
Old 11-27-2012, 01:32 AM #3
gatorhead gatorhead is offline
Junior Member
 
Join Date: Oct 2012
Posts: 93
10 yr Member
gatorhead gatorhead is offline
Junior Member
 
Join Date: Oct 2012
Posts: 93
10 yr Member
Default

Quote:
Originally Posted by tdouglas View Post
Because it is so centered, would I be able to just let it heal on its own? Or can it move to paracentral left/right? And hearing that you haven't had to get the surgery is reassuring. Did your doctors recommend the surgery, and what did they say was the worst thing that could happen if you don't have the surgery?
I am sorry that I missed this until now. Could it heal on it's own? There are some studies that suggest that they could heal themselves if they are bulging and not torn or prolapsed. This can be achieved by physical therapy and injection type therapy. I personally think the injection therapy is something they are forcing down our throats because they can charge and be paid for an outpatient surgery! I have not had personal success with either, and I don't know a single person who has and I know A LOT of spine patients!

Can it move left or right? It can in essence, if it were to prolapse or for a lack of a better analogy, terminology, and visual reference, squirt out and move left or right. I would be referring to the nucleus here and it it what mine did only because it had no where else to go. It stays in the general area, and that area isn't large at all. It could be positioned more to one side or the other and still remain central. That was harder to explain than I thought lol

The doctors are on me to have the surgery, YES! I have not had it, and I will not have it until I 1. can't take it no more 2. can't walk at all 3. defecate on my shoes. Kinda graphic but that's how I feel. My mom had her's fused in 82 and I grew up watching that nightmare scenario unfold so for me it is an ultimate last option. I have had 2 neck surgeries now, those were necessary and unavoidable (VERY similar to your condition only in my neck). What I have been told about the back at those locations is that it could permanently affect bladder/bowel function, walking, and sexual function.

That all being said I agree with the other's it is a case by case scenario. True I am not a doctor, but I am very well versed with these things as is most other's here from having to deal with it first hand. I can also tell you that what I saw on your reports your surgeon seemed to see the same thing, it is severe central stenosis. What makes this a problem is your cord is being compromised and at a point where, not the pain, but the preservation of the cord is at risk. There is no more room for error. The type of surgery most often used for this is decompression or laminectomy. However if there is any sign of DDD then they will most likely want to fuse. All of that being said I would have a thorough discussion with the surgeon and ask EVERYTHING you want to ask and he/she should be able to answer them all immediately and appropriately. I always recommend a second opinion to a surgeon OUTSIDE of that hospital or medical firm completely independent of the first.

Not trying to scare you or be doom and gloom, just trying to put it into layman's terms. I will pray for you and I wish you the best. PLEASE get that second opinion soon!
gatorhead is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
mg neck prob (11-29-2012), tdouglas (11-27-2012)
Old 11-27-2012, 04:37 AM #4
tdouglas tdouglas is offline
Junior Member
 
Join Date: Nov 2012
Posts: 22
10 yr Member
tdouglas tdouglas is offline
Junior Member
 
Join Date: Nov 2012
Posts: 22
10 yr Member
Default

Quote:
Originally Posted by gatorhead View Post
I am sorry that I missed this until now. Could it heal on it's own? There are some studies that suggest that they could heal themselves if they are bulging and not torn or prolapsed. This can be achieved by physical therapy and injection type therapy. I personally think the injection therapy is something they are forcing down our throats because they can charge and be paid for an outpatient surgery! I have not had personal success with either, and I don't know a single person who has and I know A LOT of spine patients!

Can it move left or right? It can in essence, if it were to prolapse or for a lack of a better analogy, terminology, and visual reference, squirt out and move left or right. I would be referring to the nucleus here and it it what mine did only because it had no where else to go. It stays in the general area, and that area isn't large at all. It could be positioned more to one side or the other and still remain central. That was harder to explain than I thought lol

The doctors are on me to have the surgery, YES! I have not had it, and I will not have it until I 1. can't take it no more 2. can't walk at all 3. defecate on my shoes. Kinda graphic but that's how I feel. My mom had her's fused in 82 and I grew up watching that nightmare scenario unfold so for me it is an ultimate last option. I have had 2 neck surgeries now, those were necessary and unavoidable (VERY similar to your condition only in my neck). What I have been told about the back at those locations is that it could permanently affect bladder/bowel function, walking, and sexual function.

That all being said I agree with the other's it is a case by case scenario. True I am not a doctor, but I am very well versed with these things as is most other's here from having to deal with it first hand. I can also tell you that what I saw on your reports your surgeon seemed to see the same thing, it is severe central stenosis. What makes this a problem is your cord is being compromised and at a point where, not the pain, but the preservation of the cord is at risk. There is no more room for error. The type of surgery most often used for this is decompression or laminectomy. However if there is any sign of DDD then they will most likely want to fuse. All of that being said I would have a thorough discussion with the surgeon and ask EVERYTHING you want to ask and he/she should be able to answer them all immediately and appropriately. I always recommend a second opinion to a surgeon OUTSIDE of that hospital or medical firm completely independent of the first.

Not trying to scare you or be doom and gloom, just trying to put it into layman's terms. I will pray for you and I wish you the best. PLEASE get that second opinion soon!
Thanks for taking the time to explain. I understood it clearly (or I think I did, at least ). I am against surgery for many reasons, so I can see why you are waiting on it. In my case, though, this pain is affecting my ability to work even the most menial job, and the longer it lingers, the longer I'm putting off finishing college and starting a career. It's a serious cause of frustration for me.

Like I said, I will be ecstatic if this injection will alleviate my pain, but I'm worried about any permanent damage that I either already have or will eventually have if the severe stenosis doesn't get dealt with. I was quite surprised at how blunt my doctor was about having surgery: he said that even though I'm a younger guy, he didn't want to wait very long to make the call for surgery or not because of the severity of the issue. He said he wanted me to do the pt and injection to make sure he covered all the bases before resorting to surgery. I'm not sure what three weeks of physical therapy could do, but I'm willing to try it if it gets me to a solution sooner. If we decide on having the surgery, I'll definitely have a large list of questions ready to ask.

Again, I appreciate your support, as well as everyone else who has taken the time to comment in this thread. Without you guys, I'd be going insane, trying to decipher this MRI report, and I'd probably end up with some very wrong conclusions, like assuming my legs are going to fall off or something.
tdouglas is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gatorhead (11-27-2012)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Help I have back pain, need to understand x ray report majesticgoddess Spinal Disorders & Back Pain 3 09-08-2012 11:25 PM
Please help me to understand my MRI report, praj Spinal Disorders & Back Pain 1 10-10-2011 12:46 PM
PLEASE Help me to understand Just Jacquie Bipolar Disorder 21 09-05-2011 11:05 AM
Help me understand my MRI report doydie Multiple Sclerosis 4 04-10-2011 02:43 PM
Please help me understand MRI pkayd183 New Member Introductions 2 09-04-2010 08:18 PM


All times are GMT -5. The time now is 06:50 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.