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Old 11-21-2013, 06:50 PM #19
Myelogirl Myelogirl is offline
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Join Date: Oct 2013
Location: Australia
Posts: 52
10 yr Member
Myelogirl Myelogirl is offline
Junior Member
 
Join Date: Oct 2013
Location: Australia
Posts: 52
10 yr Member
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Yes, that's what I'm talking about, along with the increased blood vessels in the fat over that lump.

I've been to the GP to get results. They say they can't find anything. They don't even mention my previous bone grafts or the spondylolisthesis (that they diagnosed two and a half years ago). The only thing they were interested in was the "patchy bone marrow" which is in keeping with a haematological malignancy. Well, considering I've had chemo for a haematological cancer that doesn't take a genius to work that out, especially when it's in the clinical notes.

As I said to the GP, how can you have a visible and palpable lump that is symptomatic but not see it on a scan?

Anyway, I've been offered no further testing but just been told to take Morphine which I have refused. Starting to take narcotics for undiagnosed pain and pathology is on the slippery slope to oblivian and I'm not going there yet. I'm not going to allow my health care professionals to fob me off without a diagnosis! It's not as if they can say it's all in my head (I bet they're disappointed they can't use that old Furphy) because it quite obviously isn't!

I've rung the radiology company and asked them for my scans to be given to another radiologist for a second opinion but they have refused. They suggested I take them to another radiology company for that second opinion. So I've rung 3 other companies (we don't have much choice here) and they've all refused to look at them. It's a closed little community where they protect each other's back, it seems. I would have thought offering to pay a good amount for a second opinion would have worked but no, one radiologist won't undermine the findings of another.

When I first got sick I had an MRI which was reported as normal except for arthritic changes. 3 months later when I was having trouble walking I was sent for another. Same result....normal but for discs and arthritis. 3 months further I couldn't walk at all, for another MRI. This time the report stated that the lesion in my cervical spinal cord had extended into the thoracic cord as far as they could visualise and was worse than on previous scans!!! Worse than previous scans? THEY WERE REPORTED AS NORMAL!!!

I was livid. I went and complained about the incompetent radiologist who misread my first two MRIs. I never even received an apology. It was because of this incompetence and my moronic neurologists inaction that I became permanently disabled. If I had been treated earlier, the damage was reversible.
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