Hi!

I am 24 and I was born with a tethered spinal cord. I have had four major spinal surgeries to untether (throughout my life). None of them have been successful in untethering my cord because there is so much scar tissue now. I have been told I'll progressively lose function of my lower extremities. I have lost sensation in both feet and many areas of my lower legs (right more than left). I also lost my R calf and then my left. My legs are getting weaker, my back hurts a lot, and I don't want to complain all time, but it's difficult. We can't always chose what life throws at us, but we can chose how we handle it. Anyone have a tethered cord? I haven't met anyone else with it before.

Hi BWilliams,
First, here is a currently active thread about exactly this subject.

http://neurotalk.psychcentral.com/thread129013-3.html

You can also use the Search function to find other relevant Threads and Posts.

I must say your attitude is admirable, wander around all the Forums where you will receive a warm welcome and support, not only for your condition, but for the Chronic Pain too.

Dave.

Hello Bwilliams,

Welcome to the NeuroTalk Support Groups!

Here is the Forum Search feature that Dave has mentioned.
It's a very handy tool.

http://neurotalk.psychcentral.com/search.php

take care.