Hi Pony - neck problems too??? Man, you are like me. It never ends. When one thing gets a bit better, you are hit with 2 or more problems to deal with. Pain is so much a part of my life I don't know if I could live without it... but I"d like to try

Hope everything goes OK with the MRI. My last 2 MRI's were so terrible - laying flat, for one thing and keeping still for another. I told them I have involuntary body jerks from the medication. As you might imagine, this really screws up the test and they had to keep redoing parts ARGH. And they'd tell me - 'really try not to move OK?' I thought... do I have to tell you the meaning of involuntary?!?!?!?

Good luck Pony!!!!!!

Double Mar

My daughter turned 21 a couple weeks back and will graduate in 07 from college. This is one thing in my life that turned out better than expected.

I am trying to do some fishing down here in the deep south but it gets harder all the time and a days worth of recovery. I have downsized to delta fishing from the Gulf but even that gets more difficult each year.

We are in our "Indian Summer" down here with some very nice days, but I will leave the deep south for the northwest on Mon. Time for a change of scene.

Hope you all find some painfree and happy days this fall. I'm looking for some myself.

jb

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Leaving your beloved LA for the northwest, jb? That is a big change! Let us know how it goes, and good luck!

Well, here we are, another Friday, another week in the books....Gene - I like your self-portrait !!

Hi all - it's good to see you all, and I see our numbers are slowly increasing! Linda, I'm sorry that you are having such pain issues still! Maybe yoou should give your PM dooc a chance w/ his suggestions? (just a thought!) I started on a long acting med - Kadian 30 mg only twiice a day, and iit's truly made such a big difference in my daily pain levellss. Not waking up in pain is really helpful and I don't really think that I could be doing this full time job w/o it. Yet, I''m still experiencing some pain daily, even thinking of pushing up my 5 year check up with my OSS in Philly - maybe another MRI is in order? Anyhow, I'm doing fairly well. My main problems, tho, has been my constant fatigue due to my hereditary anemia. Thiis pm I see the nephrologist, next week, the oncologist and the cardiiac doc for a stress test. I may have to have my spleen removed to keep those RBC as long as possiblle, since one of the functions of the spleen is to destroy RBC, and I don't need any help there . It's a longish story, just gave you the short version, as my lunch hour is just about over....

It's supposed to be a lovely week-end, and there is an Italian-American Festival here in Mercer Cty today through Sunday - lots of neat things and, of course, there's the FOOD!!!! We're going to try to go with my son and the family - Angelo is such a living doll - 10 mos old already and smart as anything! Of course, that's one of the many pix I have of him as my avatar!

Well, lunch is over, it's back too SSA business again - oh, and did I tell you all lately that ...I REALLY LOVE MY JOB?!?!

HAVE A GREAT WEEK-END ALL! Hugs, Jacquie

All!! Good to see you! Billie you have me terrified about meeting with Neurologist next week about SCI, but I've waited so long for meeting I'm going, and in any case I have a funny feeling he's going to tell me he wont give me one because it would confuse the other problems in my gut, and they have to be dealt with very soon, (October) surgically, so I think he will just put me off again, ie. for the fourth time.
My last MRI, about 6 weeks ago showed that C. verts are beginning to crumble, and I think that is why I have neck pain, and a weak Left arm. I cant carry anything in that hand, but am I bothered? I still go swimming, not often enough though. I think I am luckier than many. My divine grandchild is one tomorrow. I took a picture of her, and got it into a national magazine. They paid £100 for it, which will go towards her college fund, or her first pair of shoes!! My eldest daughter seems to have found herself a lovely boyfriend after going out with a psychotic nutcase for the last two years. I'm so relieved.
Next week I'm off to London with my best friend. We have wangled a terrific deal on a swanky hotel in Mayfair and my son has got us free tickets for the London fashion week, and a preview viewing of a film that hasnt yet been released to the public, so life is quite good really, it will be a real adventure for us country bumpkins. I used to live in London, and I love going back, but my husband hates cities.
Big thanks to whoever it is started this site.

Marijo, Please don't be afraid of the Stim. Let's put it another way. The ones's that have sucess probably don't come back on here. You have waited so long, if I were you I'd give it a chance. I did! If your Dr. will, don't let me scare you.I never intended to do that. Sorry Marijo! If you don't like it somewhere down the line, have it taken't out. It's no big deal, like other surgeries are. Maybe I didn't tell you this. I am allergic to most metal's and I just build up so much scar tissue to cover it up. I have also had to have screw's and rods taken out in a year too!

Each one of us are different, that's why one pill may help you and not me. I am always open to ideas and I know you are to. I pray that the Stim. is a sucess Margio. You can always turn it off, if you don't like it. I told my Dr. I wish he would invent something "plastic" instead of metal. Maybe someone yet will, who knows.
Billie