Hi Sam,

I am so happy to read such sage advice and support from everyone. Many good points have been raised. Sorry, I am bit behind on posting having had treatments in and out of town this week.

DejaVu raises an interesting question about the weird smells and the question about an EEG is very important. I saw that you went to neurology but if they didn't do an EEG it is certainly worth exploring. They cannot always see what's going on in the brain from their physical exam. Making sure you aren't misfiring somewhere seems like a no brainer, pun intended. hee, sorry, please forgive me. Gotta add some levity sometimes.

Also I noticed that you mentioned making it through your first two classes okay then the feelings starting after that. You also mentioned being dehydrated sometimes and being a skinny kid. Feelings of disassociation, anxiety and low mood are indicators of low blood sugar in some individuals. I myself am one of those people who has to snack pretty much all the time so that I don't become a public threat through aggravated mood or mild confusion. I have no blood sugar disorder of any kind, just wired to burn fuel quickly.

This is so basic but...it might help a little. You are growing, your brain is growing, learning utilizes a huge amount of glucose and then the brain goes into starvation mode and crashes. Do you take a mid-morning snack to school? A handful of almonds or trail mix or even just a protein drink that would address hydration too. I don't mean to reduce your symptoms to low blood sugar, just problem solving here and as a Mom I always feel compelled to make sure young'uns are properly fed and watered.

Keep at it Sam. Clearly we don't all think you're crazy and I refuse to believe that we are under some joint delusion.

sending hugs and prayers,

Once again thank you everyone for the suggestions and information to try to help me put together this mess.




I think that with all this new information about subtle migraine variants and such I will take action as follows:



1. I'm going to take the thyroid test as soon as it's avaible, and see how that comes back. I believe that I still have hypothyroidism but it just did not show on the "normal" blood test because not all thyroid issues SHOW on the standard blood test. And who knows what my doctor even tested me for.



2.if I don't have hypothyroidism or a thyroid issue than I will show my parents the article DejaVu has provided, and hopefully find a correct neurologist.


3. If I don't have either of the above, I guess more research and figuring out what's wrong with me.


But, once again, I PRAY at this point that I have an issue with my thyroid. They would be able to provide immediate treatment and I could get my life back!





As soon as I take the test, will let you all know the results. Hopefully it's in a couple days.

Littlepaw makes excellent points.
So basic, yet so very important!

Our brains need glucose and are sensitive to an excess and/or a deficit in glucose.

Sam, have you had a Glucose Tolerance Test?
In this test, you fast and have a baseline blood draw. You then drink 8 ounces of a syrup-like drink and have blood drawn at certain intervals thereafter.

http://www.mayoclinic.org/tests-proc...n/prc-20014814

Sound familiar? Most people don't quickly forget having had this lab test.



DejaVu

Sam, Considering you're not quite 15 years of age, I think it's really important that you talk with your parents about all of this. You already have PCS and/with anxiety, so talking with them about your current symptoms and anything that you may read here is really imperative for your own wellbeing.

As a parent myself, I know that my children didn't always discuss ALL of their concerns with me when they were your age. That's natural but when you're unwell it's very important to tell them everything so that they know what's going on. I think you've said that you do talk to your parents about your concerns but just wanted to make sure.
take care Sam.

DejaVu I have not gotten a gluclose tolerance test.



And Lara, I have been talking to my parents and they are well aware of my dreamy/unreal feeing/state.



I've been doing more and more research about thyroid issues and deficiency. There are thousands of people each year who get misdiagnosed with there thyroid and there doctor says there "fine".

Happy I'm going to this other place. It's a doctors office dedicated to diagnose people who have been MISS diagnosed.





I Have faith in this. And in this journey, I don't remember the last time I had this faith.

Sam, Your post about experiencing Faith has evoked a huge smile!
My husband is across the room and has inquired as to the reason for such a sudden and such a large smile. I simply said, "Sam" -- and he knew. He asks about you daily.

So many people care about you and want to see you feeling better.
So many more people read this forum and don't sign-in to introduce themselves. We cannot possibly know the number of people offering you positive support with thoughts, prayers and otherwise.

I am very hopeful for you.
I am glad you are also feeling hopeful!

How are things going Sam?

Sorry for the late reply! Forgot to check yesterday.


Things are going okay I guess.


Well..


I still haven't taken the thyroid test because I have to wait for some liquid to get delivered. I have to drink this liquid in order for them to proceed with the test. I think the liquid increases my iodine levels? I don't really know.


Anyways, this is taking FOREVER, and its really getting on my nerves. I mean, how long does it take to just take a freaking thyroid test? My mom has been playing phone tag with the doctors office, and shes trying to reach them to make sure that liquid is on its way.



Besides that taking forever, I haven't been feeling that good lately. My symptoms are on and off, but today, I feel horrible. Yesterday I was at a moderate level, today the dreamy feeling is very high. I feel like I'm going to throw up.




So, in summary:


Still waiting on test, and feel like crap still.

Also,



School is getting really stressful for me already. With my constant feeling of unreality its hard to do homework, pay attention, etc. Everything is a constant struggle and challenge when in school.

Sam,

I hope you and your parents have discussed your condition with the relevant teachers and Guidance Counsellor at school. This will explain you have medical reasons for your struggles, ones which are being investigated.

As for homework - your family can really help you break it down into bite-sized, manageable chunks which you can handle. Get into the habit of having no distractions, no tv, phone or music and work for no more than 20 minutes, then take a break. Get up, leave the books/laptop, get a drink, discuss what you have done with family. Then go back for another session. Never overwhelm yourself.

Dave.