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06-26-2015, 10:31 PM
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Junior Member
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NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801 Bethesda, MD 20824 Tel: (301)496-5751 Fax: (301)402-2186 Tel: (800)352-9424 TDD: (301)468-5981 Internet: http://www.ninds.nih.gov/ http://www.ninds.nih.gov/disorders/t...rlov_cysts.htm Genetic and Rare Diseases (GARD) Information Center PO Box 8126 Gaithersburg, MD 20898-8126 Tel: (301)251-4925 Fax: (301)251-4911 Tel: (888)205-2311 TDD: (888)205-3223 Internet: http://rarediseases.info.nih.gov/GARD/ Tarlov Cyst Disease Foundation 326 Norton Rd. Knoxville, TN 37920 Tel: (865)577-4945 Fax: (865)577-4835 Email: retahoneyhiers@tarlovcystfoundation.org Internet: http://www.tarlovcystfoundation.org National Organization for Rare Diseases National Organization for Rare Disorders National Headquarters 55 Kenosia Avenue Danbury, CT 06810 Phone: 203-744-0100 Fax: 203-798-2291 https://rarediseases.org/rare-diseases/tarlov-cysts/ |
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