The Stumble Inn The place for social chat for our M.S. community. The Stumble Inn


advertisement
Reply
 
Thread Tools Display Modes
Old 04-05-2010, 07:37 PM #11
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default

Isolation. I understand how you feel. Losing friends because everyone is moving forward. Since I cannot walk as well, I do not go out often. I get jealous of friends when I hear of their travels, playing golf/tennis/cycling/class at a gym, fill in the blank.

I am thinking about rescuing a smaller dog from the pound. Lots of dogs are being given up in foreclosures (my state is one of the highest in foreclosures and the dog/cat places are busting at the seams). DD got a small dog and we went to the dog park close by. I used my rollator. Lots of dog people, conversation. It was nice to be outside.

I feel the way you do, Friend. Isolation. I am getting used to it. My life is on a different path than I had planned. I wish it was different, I had some really good ideas as to what to do. I would have made an awesome grandmother who had my grandkids over for a weekend, etc.

Moving forward. One day at a time. I do not make many plans anymore, I just live in the moment.

And at this moment, I choose to give you a .
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-09-2010), Friend2U (04-10-2010), Lady (04-06-2010), SallyC (04-05-2010), Twinkletoes (04-10-2010)

advertisement
Old 04-05-2010, 08:00 PM #12
karousel's Avatar
karousel karousel is offline
Senior Member
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
karousel karousel is offline
Senior Member
karousel's Avatar
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
Default

Sending hugs How you are feeling is understandable. It's hard to accept it some days.

When my DH starts his new job, with my DD at school all day, I think I'll finally realize that I've lost my career to this horrible disease. I've been home for 9 years but it's felt like a really long vacation because I've never been home alone for more than one day at a time. 5 days a week will be new for me. When it happens we can have a pity party together.
karousel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-09-2010), Lady (04-06-2010), SallyC (04-05-2010)
Old 04-09-2010, 04:19 PM #13
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default

i too understand. i felt like my co-workers were a big part of my life.
i really grieved when i had to leave my job (RN with sick babies).

in my 1st yr away not once did i hear from anyone. no phone calls, no nothing.
so i just had to move on. but my life was much emptier when i quit my nursing career. it was such a big part of my life.
to you. it'll take some time. i hope things change for you soon.

can you pick an interest you may have and get involved with something?
like plants or flowers. i loved bonsai and took a class thru the botanical gardens. you never know when you will meet someone with like interests.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-09-2010), Friend2U (04-10-2010), SallyC (04-09-2010)
Old 04-09-2010, 07:16 PM #14
barbo's Avatar
barbo barbo is offline
Senior Member
 
Join Date: Apr 2007
Location: South Bend, IN
Posts: 1,098
15 yr Member
barbo barbo is offline
Senior Member
barbo's Avatar
 
Join Date: Apr 2007
Location: South Bend, IN
Posts: 1,098
15 yr Member
Default About Pam

I wwatched my daughter go through what you all describe. There came a time when she just could no longer work. She had her computer and her music but I remember her saying so often, "I'm bored." It's not an easy hand you've been dealt.
barbo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-10-2010), SallyC (04-09-2010), Twinkletoes (04-10-2010)
Old 04-09-2010, 11:18 PM #15
doydie's Avatar
doydie doydie is offline
Elder
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
Default

Wow, hugs to you!
we have all been through that. I worked as an RN at the same hospital for almost 30 years before I had to quit. A lot of the friends there have kept in touch, I'm glad I didn't have to deal with some of them!!!! I'm glad they are no longer a part of my life. And the others, well if they didn't think enough of our relationship to keep in touch that's their loss! I have had to work on making other intersts and of course God gave me a few more responsibilities that would have been quite a burden if I were still working. And being on SSD allowed me to heal enough I could take care of my Mom and MIL like I am. My computer has been a godsend.

I know this sounds all philisophigal (yeah I know the spelling is wrong) but our life is one big book full of a lot of chapters. Some of them haven't been written yet and we have the power to write them ourselves. So take that power in your hands and do someting for yourself and maybe some one else will learn from it.
doydie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Friend2U (04-10-2010), Twinkletoes (04-10-2010)
Old 04-10-2010, 12:09 AM #16
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Barb,

Quote:
Originally Posted by barb02 View Post
I a planning on retiring in two years (if I make it that long) and your posts all make me a bit nervous. My sister wants me to move to Austin to be near her (at least that is what she says, but I am unsure. I would love to be near her and see my niece grow up, but there are lots of negatives too -- finding all new doctors, cost of living, heat ... I have lived and taught here for 21 years and while I do not have a lot of friends ( have lost a few over the past few years), I do have a few close ones and lots of friendly colleagues. Oh well, I guess I have some time to figure this all out.

Friend - Are you able to get out? Are there any groups you could join (book groups, church volunteer organizations)?
I live in kinda a rural area to not much opportunity to get involved. I also taught school for 24 years. When the dr. persuaded me to retire my plans were to go back and visit often. Maybe volunteer. Bake cakes for the workroom...etc....and stay involved. But the fact just is now I don't feel like it. I've visits twice this school. I invisioned going back once a week and it just isn't happening. With me, it has all hinged on 'me' not feeling like staying involved or getting involved... not other people's fault.

I guess it would vary for each individual. I hope you are able to retire still feeling well enough to stay involved. Sure don't want to discourage or depress anyone.

Wishing you the best!
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
Old 04-10-2010, 12:12 AM #17
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Sally,

Quote:
Originally Posted by SallyC View Post
(((((F2U)))))..I hear you and understand. In my younger years, I fought the isolation tooth and nail, but when I discovered that my Friend's lives were all going on without me, I gave up (not without a lot of tears), and quit calling them. Guess what, they don't call me either.

Some Family and a couple of friends keep in touch and I with them, mostly thru e-mail. I'm not a phone person. Of course, my Children and Grands don't get off that easy...they are forced to visit me on a weekly basis.. I assume they want to..LOL

After relaxing and figuring out the truth (I like to be alone, most of the time), I'm quite content the way things are. I'm not alone, I have all of you to be with on a daily basis and I'd be willing to bet that some of you would either come running or send someone to help, if I needed you..

I remember this..."In order to have a Friend, you must be a Friend"....I guess, I just couldn't put all the effort it took, anymore.

I do feel for you, F2U, because I know how you feel. I hope that it will all work out, for you, as you wish.
I feel like I'm in a period of transition and trying to find my place in this new life. It simply isn't easy. Such a drastic change. I'm working on it. Thank you for the encouragement!
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-10-2010), Twinkletoes (04-10-2010)
Old 04-10-2010, 12:21 AM #18
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Aarcyn,

Quote:
Originally Posted by Aarcyn View Post
Isolation. I understand how you feel. Losing friends because everyone is moving forward. Since I cannot walk as well, I do not go out often. I get jealous of friends when I hear of their travels, playing golf/tennis/cycling/class at a gym, fill in the blank.

I am thinking about rescuing a smaller dog from the pound. Lots of dogs are being given up in foreclosures (my state is one of the highest in foreclosures and the dog/cat places are busting at the seams). DD got a small dog and we went to the dog park close by. I used my rollator. Lots of dog people, conversation. It was nice to be outside.

I feel the way you do, Friend. Isolation. I am getting used to it. My life is on a different path than I had planned. I wish it was different, I had some really good ideas as to what to do. I would have made an awesome grandmother who had my grandkids over for a weekend, etc.

Moving forward. One day at a time. I do not make many plans anymore, I just live in the moment.

And at this moment, I choose to give you a .
Thank you so for for the much needed . I can see you definitely understand my present concern. I think most everyone goes through it at one time or another. And during this time when I'm down in the dumps, I am so thankful I can come to NT and visit with others who truly understand. I get what you are saying about not living out what you had planned. Sometimes that all we need is for someone who 'does' understand just to say so and give a little sympathy. A few days from now, I will be back to my positive, uplifting self. So this too shall pass. But right at the time....it sure doesn't feel good. Thank you for listening and understanding. A right back to you!
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-10-2010), Debbie D (04-12-2010)
Old 04-10-2010, 12:24 AM #19
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Karousel,

Quote:
Originally Posted by karousel View Post
Sending hugs How you are feeling is understandable. It's hard to accept it some days.

When my DH starts his new job, with my DD at school all day, I think I'll finally realize that I've lost my career to this horrible disease. I've been home for 9 years but it's felt like a really long vacation because I've never been home alone for more than one day at a time. 5 days a week will be new for me. When it happens we can have a pity party together.
Count me in when the time comes!!! Maybe I will have my act more together then and let you lean on me! I at least have my DH home with me because he had to retire on disability about the same time following his cancer treatments. So I don't have to deal with absolute deafening quiet. I am glad for that.
Thank you for your encouragement!
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-10-2010)
Old 04-10-2010, 12:29 AM #20
Friend2U's Avatar
Friend2U Friend2U is offline
Senior Member
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Friend2U Friend2U is offline
Senior Member
Friend2U's Avatar
 
Join Date: Jan 2008
Location: Great Midwest, USA
Posts: 1,370
15 yr Member
Default Doydie,

Quote:
Originally Posted by doydie View Post
Wow, hugs to you!
we have all been through that. I worked as an RN at the same hospital for almost 30 years before I had to quit. A lot of the friends there have kept in touch, I'm glad I didn't have to deal with some of them!!!! I'm glad they are no longer a part of my life. And the others, well if they didn't think enough of our relationship to keep in touch that's their loss! I have had to work on making other intersts and of course God gave me a few more responsibilities that would have been quite a burden if I were still working. And being on SSD allowed me to heal enough I could take care of my Mom and MIL like I am. My computer has been a godsend.

I know this sounds all philisophigal (yeah I know the spelling is wrong) but our life is one big book full of a lot of chapters. Some of them haven't been written yet and we have the power to write them ourselves. So take that power in your hands and do someting for yourself and maybe some one else will learn from it.
Thank you for the wise words! I know this is all in God's plan and I understand what you are saying with new responsibilities. And I do get to spend more time with my mom. And I am very thankful for that. Because working I didn't have time for hardly anything. So you are right about me being able to write the next chapters. I will keep that in mind. It is very encouraging and i thank you for that.
__________________
~ Friend2U
.


.

HANG IN THERE!

If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

MS/dx2006
BETASERON (Quit May 2011)
COPAXONE (Began June 2011)
Friend2U is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
barb02 (04-10-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 10:38 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.